Quality of life in stroke patients with aphasia

Lucot, C.; Koleck, Michèle; Laurent, K.; Darrigrand, B.; Bordes, Julien; Joseph, Pierre-Alain; Dehail, Patrick; Mazaux, Jean-Michel

doi:10.1016/j.rehab.2013.07.018

Cited by 5 publications

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“…Our results regarding the psychometric properties of the Icelandic SAQOL-39g are comparable to the psychometric properties of the original SAQOL-39g (25), and to results from various studies on the SAQOL-39g and SAQOL-39 in different languages (7,13,(35)(36)(37)(38)(39)(40)(41)(42). Our results on the difference between the HRQOL of aphasic versus nonaphasic stroke survivors are similarly consistent with prior literature on HRQOL after stroke (7,(18)(19)(20)(21). Specifically, several large-scale studies on the psychometric properties of SAQOL-39/g in various countries have come to a similar conclusion (see Table 5).…”

Section: Discussionsupporting

confidence: 89%

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Translation, adaptation and psychometric properties of the Icelandic stroke and aphasia quality of life scale‐39g

Kristinsson

Halldorsdottir

2020

Scandinavian Caring Sciences

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Translation, adaptation and psychometric properties of the Icelandic stroke and aphasia quality of life scale-39g Background: The overarching aim of aphasia rehabilitation is to improve people's quality of life. The most commonly used quality of life measure developed for use with individuals with aphasia is the Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39g). Aims: We aimed to translate and adapt the SAQOL-39g into Icelandic, and examine its psychometric properties. Furthermore, this study aimed to gather preliminary information on the health-related quality of life (HRQOL) of stroke patients in Iceland. Method: A traditional back-translation approach was applied to translate the SAQOL-39g into Icelandic. We recruited 20 poststroke patients, thereof ten with aphasia, for evaluation of the psychometric properties of the translated instrument. Acceptability was based on missing data, and floor and ceiling effects, internal consistency was measured by Cronbach's a and correlation between test items and overall score, and test-retest reliability was measured by intraclass correlation coefficient (ICC) for overall and domain scores. Results: The back-translation led to reviewing of eight test items for the final translation. No test items required cultural adaptation. The acceptability of the translation met criteria for both proportion of missing data (0%) and floor and ceiling effects for test items and domains (<80%). Internal consistency also met criteria, both for overall score (a = 0.94) and domains: physical domain (a = 0.93), psychosocial domain (a = 0.93) and communication domain (a = 0.89). Correlation between test items and overall score ranged from 0.30 to 0.82. Testretest reliability met criteria both for overall score (0.95) and domains: physical domain (0.94), psychosocial domain (0.95), and communication domain (0.95). The mean total score was significantly lower for participants with aphasia compared to participants without aphasia (3.73 vs. 4.20; p < 05). Conclusions: The Icelandic SAQOL-39g demonstrated good psychometric properties. Preliminary evidence suggests that the HRQOL of people with aphasia is significantly worse than of people without aphasia after stroke.

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Section: Discussionsupporting

confidence: 89%

“…Up to 62-70% of persons with aphasia following stroke experience symptoms of depression (17). Furthermore, multiple studies indicate that the HRQOL of persons with aphasia is significantly worse than the HRQOL of stroke survivors without aphasia (7,(18)(19)(20)(21).…”

Section: Introductionmentioning

confidence: 99%

Translation, adaptation and psychometric properties of the Icelandic stroke and aphasia quality of life scale‐39g

Kristinsson

Halldorsdottir

2020

Scandinavian Caring Sciences

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“…One of the possible consequences of a stroke, along with motor disabilities, is aphasia. Aphasia is a language impairment that leads to problems with the production and comprehension of language, which seriously affects a person's quality of life (Lucot et al, 2013). To reduce the negative effects of impairment and to predict recovery, it is important to identify speech/language disorders as early as possible.…”

Section: Introductionmentioning

confidence: 99%

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2020

RJCS

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Аннотация. Под восприятием ансамблей обычно понимают способность наблюдателя за короткое время с высокой степенью точности оценивать обобщенные статистические свойства множества объектов (среднее, дисперсия, количество). В обзоре описывается феноменология восприятия ансамблей и методы его исследования. Описываются конкурирующие концепции механизмов отбора и обработки информации для расчета статистик ансамбля, одна из которых предполагает грубую обработку всех объектов сразу, а другая -детальную обработку лишь нескольких отобранных объектов с последующим обобщением оцененных свойств на остальные объекты. Рассматривается развитие взглядов на сущность внутренних репрезентаций, через которые становятся доступны статистики ансамбля: от идеи репрезентации единственной величины (например, для среднего значения признака) до относительно новой идеи «богатой» репрезентации, приблизительно воспроизводящей все распределение признаков предъявленных объектов. Рассматривается роль репрезентации ансамблей в организации восприятия и решении ряда перцептивных задач. Наконец, в обзоре рассматриваются потенциальные нейрофизиологические корреляты восприятия ансамблей и перспективные теоретические модели его нейронных механизмов.

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“…Emotional responses such as sadness and grief have been widely recognized following the onset of aphasia and other impairments after stroke (Parr, et al, 1997;Code & Hermann, 2003). Studies have shown that emotional distress is associated with poorer quality of life (Cruice, Worrall & Hickson, 2000;Hilari & Byng, 2009;Lucot, et al, 2013). People with aphasia compared to those without, experience increased severity and more persistent distress after stroke (Thomas & Lincoln, 2008;Hilari, 2011).…”

Section: Introductionmentioning

confidence: 99%

Translating stepped psychological care to aphasia rehabilitation

Baker¹

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Stroke rehabilitation needs more psychological services to address mood changes and depression after aphasia. An evidence-practice gap exists that can be minimised through implementation of stepped psychological care-an evidence-based framework offering multidisciplinary intervention after stroke. However, stepped psychological care has not been adapted for the communication disability associated with aphasia. Further, there is a lack of research exploring the perspectives of key stakeholders in managing depression after post-stroke aphasia. The overarching aim of this research was to describe the evidence-practice gap in managing mood changes and depression after post-stroke aphasia. Chapter one of this thesis comprises: an introduction, including a review of the literature, the aims of the thesis, and an overview of the methodology and the thesis structure. The thesis then reports on three research studies investigating the management of mood changes and depression after poststroke aphasia: 1) a systematic review of rehabilitation interventions to prevent and treat depression after post-stroke aphasia; 2) a description, from the perspective of stroke health professionals, of: a) current practice; and b) the identification of barriers and facilitators to implementing stepped psychological care to clinical practice; and 3) a description, from the perspective of people with aphasia, of: a) experiences of mood changes, depression and current practice; and b) preferences within a stepped psychological care approach. Study 1 systematically reviewed the research evidence for rehabilitation interventions to prevent and treat depression after post-stroke aphasia. It followed the Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) guidelines. A total of 45 studies were eligible for inclusion. It is not clear which interventions may prevent depression. A range of interventions that may enhance mood or treat mild depression after post-stroke aphasia were identified and described within the stepped psychological care framework. Study 2 described, from the perspectives of stroke health professionals: a) current practice for the management of depression after post-stroke aphasia; and b) the barriers and facilitators to implementing stepped psychological care for depression after post-stroke aphasia. Thirty-nine stroke health professionals participated in qualitative focus groups. Five focus groups within acute, rehabilitation and community settings were divided into two parts: 1) a discussion about current practice; and 2) information provision about the stepped psychological care framework, followed by a discussion of the barriers and facilitators to implementing this framework to clinical practice. Four core components of current practice were derived from an interpretive description analysis: 1)

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Quality of life in stroke patients with aphasia

Cited by 5 publications

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Translation, adaptation and psychometric properties of the Icelandic stroke and aphasia quality of life scale‐39g

Translation, adaptation and psychometric properties of the Icelandic stroke and aphasia quality of life scale‐39g

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Translating stepped psychological care to aphasia rehabilitation

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