Quality of life in children and adolescents surviving cancer

Eilertsen, Mary˗Elizabeth Bradley; Jozefiak, Thomas; Rannestad, Toril; Indredavik, Marit S.; Vik, Torstein

doi:10.1016/j.ejon.2011.08.001

Cited by 46 publications

(46 citation statements)

References 61 publications

(87 reference statements)

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“…Survivors of childhood cancer of the studied population showed better QoL than the survivors of adolescence cancer. Several scientific studies suggest that cancer survivors in childhood demonstrate a satisfying QoL and a positive perception of their state of health in relation to adolescent patients and their peers who are healthy (Bradley Eilertsen et al., ; Koopman et al., ; Langeveld et al., ; Ribi et al., ; Shankar et al., ). On the contrary, there are other studies whose results differ from the previous ones, where survivors appear to have an unsatisfactory QoL (Koopman et al., ; Langeveld et al., ; Ribi et al., ; Shankar et al., ).…”

Section: Discussionmentioning

confidence: 99%

Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer

Vlachioti

Perdikaris

Megapanou

et al. 2016

Specialist Pediatric Nursing

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Section: Discussionmentioning

confidence: 99%

Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer

Vlachioti

Perdikaris

Megapanou

et al. 2016

Specialist Pediatric Nursing

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“…A possible limitation of the study is that we used the KINDL-R with adolescents older than the 16 years, for which it was originally validated. The instrument has, however, been used for older adolescents in two earlier Norwegian studies for up to 17 year [7] and up to 20 year olds [43], yielding meaningful results unbiased by age, thereby supporting validity for youths older than 16 years. Convergent validity for the KINDL-R with another QoL instrument designed for adolescents up to 18 years, the Inventory of Life Quality in Children and Adolescents, was also satisfactory [10].…”

Section: Strengths and Limitations Of The Studymentioning

confidence: 99%

“…The Kinder Lebensqualität Fragebogen (KINDL-R; questionnaire for measuring health-related quality of life in children and adolescents, revised version) [39] is a wellestablished instrument used to measure QoL for children aged 8-16 years in numerous clinical and epidemiological studies, including several in Norway [7,9,[40][41][42][43][44]. It consists of 24 items constituting six subscales, each measured with four items: Physical Well-being, Emotional Well-being, Self-esteem, and Family, Friends, and School.…”

Section: Quality Of Lifementioning

confidence: 99%

Quality of life among adolescents living in residential youth care: do domain-specific self-esteem and psychopathology contribute?

et al. 2017

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Purpose Many adolescents living in residential youth care (RYC) institutions perceive their quality of life (QoL) to be low. Enhancing QoL is thus important, but little is known about the potential contributors to their QoL. Early interpersonal trauma and subsequent removal from home and repeated relocations to new placements are expected to affect mental health and self-esteem. We therefore investigated if domain-specific self-esteem contributed to QoL among adolescents living in RYC institutions over and beyond their levels of psychopathology. Methods All youth in Norwegian RYC institutions between the ages 12-23 years were invited to participate. Of a total of 98 RYC institutions, 86 participated, and 400 of 601 eligible youths were examined. The participants' primary contact completed the Child Behavior Checklist to assess psychopathology. The adolescents completed a revised version of the Self-Perception Profile for Adolescents and the questionnaire for measuring health-related quality of life in children and adolescents (KINDL-R). Results After adjusting for psychopathology, age, and gender, self-esteem domains uniquely explained 42% of the variance in Qol, where social acceptance (b = 0.57) and physical appearance (b = 0.25) domains significantly predicted concurrent QoL. Conclusions The self-esteem domains, social acceptance and physical appearance, add substantially to the explained variance in QoL among adolescents living in RYC institutions, over and beyond the levels of psychopathology. These self-esteem domains may be targets of intervention to improve QoL, in addition to treating their psychopathology.

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“…While there are well documented associations between the contributions of specific sociodemographic factors, cancer diagnoses, presence of chronic disease, and poor quality of life in physical domains among survivors of childhood cancer [23, 24, 25, 26, 27, 28, 29], knowledge of how the specific frailty phenotype impacts quality of life among young adult survivors of childhood cancer has not been documented. Nevertheless, there is evidence that physical function/fitness, both perceived and measured with objective performance testing, is associated with participation and quality of life in this population.…”

Section: Associations Between Fitness and Quality Of Life In Childhoomentioning

confidence: 99%

Frailty and quality of life in adult survivors of childhood cancer

Ness

Howell

Bjornard

2017

Expert Review of Quality of Life in Cancer Care

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Introduction Adult survivors of childhood cancer are at risk for frailty, a state of diminished physiologic reserve, typically seen in older adults, associated with morbidity and mortality. They are also at risk for poor quality of life. This review explores potential associations between frailty and quality of life and proposes potential interventions that may prevent or remediate frail health. Areas covered and literature search A literature search using MEDLINE and EMBASE was undertaken using key words: childhood cancer survivors and each of the following: frailty, physical performance, emotional health, and quality of life. 796 abstracts were reviewed for relevance. Reference lists for retrieved articles were consulted for pertinent manuscripts (N=40). Recent literature (from January 2013 to November 2016) was obtained using the key words: aging and frailty and quality of life. The final reference list includes 44 documents. Expert opinion Childhood cancer survivors are at risk for frailty and less than optimal quality of life. Poor emotional health may contribute to this association. Further research is needed to better explain these associations and to provide a foundation for the development of interventions designed to prevent and remediate frail health and suboptimal quality of life in this population.

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Quality of life in children and adolescents surviving cancer

Cited by 46 publications

References 61 publications

Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer

Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer

Quality of life among adolescents living in residential youth care: do domain-specific self-esteem and psychopathology contribute?

Frailty and quality of life in adult survivors of childhood cancer

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