Quality of health care in inflammatory bowel disease: development of a reliable questionnaire (QUOTE-IBD) and first results

Eijk, Ingrid van der

doi:10.1016/s0002-9270(01)03896-5

Cited by 53 publications

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“…In an effort to integrate ‘patient values’, a recently published study carried out by the European Collaborative Study Group on IBD (EC-IBD) reported the development of a questionnaire to measure ‘quality of care through the patient’s eyes for IBD patients’ (QUOTE-IBD) in national and international surveys [6]. It consists of 23 questions, 10 generic and 13 disease-specific.…”

Section: Introductionmentioning

confidence: 99%

Validation of a Reliable Instrument (QUOTE-IBD) for Assessing the Quality of Health Care in Greek Patients with Inflammatory Bowel Disease

Pallis

Vlachonikolis²,

Mouzas³

2003

Digestion

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Given the early onset, the chronic and recurrent nature of their disease and their normal life expectancy, patients with inflammatory bowel disease (IBD) may need considerable health care. The purpose of this study is to validate the Greek translation of the QUOTE-IBD questionnaire (GR-QUOTE-IBD). For that purpose we assessed its construct validity, and reliability. Fifty patients (33 ulcerative colitis, 17 Crohn’s disease) completed the GR-QUOTE-IBD and visual-analogue scales (VAS) for the patients’ evaluation of the quality of separate care dimensions, and of the total care. A subgroup of 33 patients (64%) completed the GR-QUOTE-IBD for a second time. Quality of life was assessed by the short version of the IBDQ. Clinical activity was assessed by Harvey-Bradshaw index and Colitis Activity Index. Correlations among all care dimensions and VAS were positive and highly significant (p < 0.001). The total care and all eight dimensional care scores (quality impact and importance) had no significant differences between the baseline and the follow-up visit. Similarly, the correlation coefficients between the scores of the two occasions were all positive (close to one) and highly significant (p < 0.001). The GR-QUOTE-IBD proved to be a valid and reliable instrument, applicable in international clinical studies.

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Section: Introductionmentioning

confidence: 99%

Validation of a Reliable Instrument (QUOTE-IBD) for Assessing the Quality of Health Care in Greek Patients with Inflammatory Bowel Disease

Pallis

Vlachonikolis²,

Mouzas³

2003

Digestion

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“…The QUOTE instrument for persons with IBD, the QUOTE-IBD, includes 10 generic questions and 13 disease specific questions. The questionnaire comprises three categories: Importance, the weight that the patient gives to various care aspects; Performance, experiences regarding the function of medical practices and healthcare professionals for each aspect of care; and Quality Impact, the combined effect of importance and performance (85).…”

Section: Assessing Quality Of Carementioning

confidence: 99%

“…Some studies have been performed on the aspect of quality of care among patients with IBD showing that patients gave relatively poor marks to parts, such as being provided with information and the psychological as well as physical approach (85)(86)(87). The existing knowledge about IBD and quality of care is based on studies measuring quality of care with predefined questions (86,88).…”

Section: Assessing Quality Of Carementioning

confidence: 99%

“…QOUTE-IBD contains questions in eight dimensions; competence, courtesy, accessibility, information, continuity of care, accommodation, autonomy and costs (85). The instrument comprises three response categories: Importance, the weight that the patient gives to various care aspects; Performance, their experiences regarding the function of medical practices and HC professionals for each aspect of care; and Quality Impact, the combined effect of importance and performance (85).…”

Section: Qoute-ibdmentioning

confidence: 99%

“…Persons with IBD took part in both the development and evaluation phase in study III. Including persons with IBD in the development of a questionnaire is regarded as a relatively new but important approach (85,122). The dimension of quality of care measured in study III were; trust and respect, decision-making, information, continuity of care, access to care and satisfaction with HC as a whole (Figure 1).…”

Section: Important Aspects Of Quality Of Carementioning

confidence: 99%

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Life situation among persons living with inflammatory bowel disease.

Lesnovska¹

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to describe the knowledge need, life situation and perception of HC among persons living with IBD, in order to develop a questionnaire to evaluate the quality of HC. This thesis is based on three studies that are presented in four papers. Qualitative methods were used to describe aspects of life situation in relation to the disease, whereas quantitative method was used to develop a questionnaire measuring quality of care. Study I and II have an inductive qualitative design. In study I, qualitative interviews with 30 people were performed to describe the knowledge need and experience of critical incidents in daily life while living with IBD. The interviews in study I were analyzed using content analysis (results presented in Paper I) and critical incident technique (results presented in Paper II). In study II, the perceptions of HC among persons living with IBD was explored in five focus group interviews and two individual interviews, in total n=26. Study III aimed to develop and evaluate a questionnaire, measuring quality of care among persons with IBD, including 318 persons with IBD and 8 professionals. The knowledge need among persons with IBD focused on managing symptoms and course of the disease and learning to assimilate the information in order to manage everyday life. Losing bowel control was of great concern for most of the informants in the study. Many of the informants said that “the bowel ruled their life” and that it influenced them to a great extent in their daily lives. The perception of HC among persons with IBD meant being met with respect and mutual trust, receiving information at the right time, shared decision-making, competence and communication, access to care, accommodation, continuity of care and the pros and cons of specialized care. The quality of care questionnaire QoC-IBD was constructed in five dimensions, building on the results from Study I and II. The dimensions were trust and respect, decision-making, information, continuity of care and access to care consisting of 21 questions in total. QoC-IBD is a short, self-administrated questionnaire that measures experiences of healthcare among persons with IBD with promising validity and reliability. To improve quality of care, HC is recommended to consider individual care needs and take the person’s daily life and social context into account. The QoC-IBD questionnaire measures the subjective experience of quality of care. Further testing in clinical practice...

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Validation of the Spanish version of a questionnaire to measure quality of care through the eyes of patients with inflammatory bowel disease (QUOTE-IBD)

Masachs

Casellas

Borruel

et al. 2010

Inflammatory Bowel Diseases

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Quality of health care in inflammatory bowel disease: development of a reliable questionnaire (QUOTE-IBD) and first results

Abstract: A short, valid, reliable questionnaire was developed to measure the opinions of patients with inflammatory bowel disease on quality of health care. The QUOTE-IBD can be used for identification of areas for improvement, with the aim of optimizing health care in inflammatory bowel disease.

Cited by 53 publications

References 0 publications

Validation of a Reliable Instrument (QUOTE-IBD) for Assessing the Quality of Health Care in Greek Patients with Inflammatory Bowel Disease

Validation of a Reliable Instrument (QUOTE-IBD) for Assessing the Quality of Health Care in Greek Patients with Inflammatory Bowel Disease

Life situation among persons living with inflammatory bowel disease.

Validation of the Spanish version of a questionnaire to measure quality of care through the eyes of patients with inflammatory bowel disease (QUOTE-IBD)

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