Validation of the Spanish version of a questionnaire to measure quality of care through the eyes of patients with inflammatory bowel disease (QUOTE-IBD)

Masachs, Miquel; Casellas, Francesc; Borruel, Natalia; Torrejón, Antonio; Castells, Isabel; Malagelada, Juan R.

doi:10.1002/ibd.21156

Cited by 15 publications

(19 citation statements)

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“…This is in agreement with previous results (Masachs et al . ) showing that information was the most important aspect of high‐quality care in terms of informing about examinations and possible physical problems unrelated to IBD in clear and understandable language (Masachs et al . ).…”

Section: Discussionmentioning

confidence: 99%

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Health care as perceived by persons with inflammatory bowel disease – a focus group study

Lesnovska

Frisman

Hjortswang

et al. 2017

Journal of Clinical Nursing

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Aims and objectives The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease. Background The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high‐quality care, greater focus must be placed on the individual's own perspective of living with the condition. Design A qualitative exploratory study was conducted based on focus groups. Methods Five focus groups were conducted with adult persons living with inflammatory bowel disease, 14 men and 12 women aged 19–76 years. The interviews were performed between January–June 2014. Results The perceptions of health care from the perspective of persons living with inflammatory bowel disease were summarised in two categories: ‘professional attitudes of healthcare staff’ and ‘structure of the healthcare organisation’. Persons with inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision‐making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organisation comprise access to care, accommodation, continuity of care, as well as the pros and cons of specialised care. Conclusion The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs – but there is room for improvement in terms of quality of care. Relevance to clinical practice A person‐centred approach, which places the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high‐quality healthcare organisation for patients with Inflammatory bowel disease.

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Section: Discussionmentioning

confidence: 99%

“…, Masachs et al . ) revealed that persons with IBD reported suboptimal care in areas such as accommodation, accessibility and information, as well as psychological and physical well‐being. Also surgery, younger age and longer disease duration play an important role in the experience of the quality of care (van der Eijk et al .…”

Section: Introductionmentioning

confidence: 99%

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Lesnovska

Frisman

Hjortswang

et al. 2017

Journal of Clinical Nursing

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“…In response to the application of visual analog scales specifically designed to assess user satisfaction with the UACC, the patients expressed a high degree of satisfaction (score 9/10) in reference to areas such as healthcare continuity, convenience, accessibility, courtesy and professional competence (8). The availability of a specialized continued and IBD patient-centered healthcare tool such as the UACC model improves patient care and satisfaction, though it remains to be established whether it is also accompanied by an excessive burden in terms of hospital resource utilization.…”

Section: Introductionmentioning

confidence: 99%

Effect upon hospital activity of the application of a continued care model centered on patients with inflammatory bowel disease

Casellas

Borruel

Torrejón-Herrera

et al. 2012

Rev. esp. enferm. dig.

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Background: since 1999, the Crohn-Colitis Care Unit (UACC) has been dedicated to the integral management of patients with Crohn's disease (CD) and ulcerative colitis (UC). The working methodology of the UACC is based on personalized, continued, nonphysical presence, open access and patient-centered care. From its creation, the UACC has experienced an increase in the number of its users and outpatient services. However, the impact of the activity of the UACC upon patient hospitalization is not known.Objectives: to determine the hospital activity related to CD and UC, and correlate it to the activity of the UACC.Methods: a retrospective evaluation was made of the physical presence and non-presence activities of the UACC from January 1999 to December 2008, and of the hospital admissions and mean durations of stay due to CD and UC during that same time period.Results: the number of attended patients and of presence and non-presence activities of the UACC has gradually increased. This increase contrasts with the number of annual hospital admissions, which has remained stable during the study period, with 200-300 admissions/year. Consequently, the hospitalized patients / UACC registered patients ratio has decreased from 0.36 at the start of the study period to 0.14 at the end. The median hospital stay has also decreased, from 11 days at the start of the study period to 8 days at the end.Conclusions: the UACC allows effective management of IBD patient care, since it is able to attend the needs of more patients without increasing the number of admissions, and shortening the duration of hospital stay.

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“…The existing knowledge about IBD and quality of care is based on studies measuring quality of care with predefined questions (86,88). Results from the QUOTE-IBD studies showed that the lowest importance scores were observed for autonomy, costs and accessibility.…”

Section: Assessing Quality Of Carementioning

confidence: 99%

“…Results from the QUOTE-IBD studies showed that the lowest importance scores were observed for autonomy, costs and accessibility. The three most important aspects of quality of care for IBD patients were competence, accommodation and courtesy (86,88). In the Portuguese version of the QUOTE-IBD, it was concluded that there is no golden standard for the assessment of quality of care from the perspective of those living with IBD.…”

Section: Assessing Quality Of Carementioning

confidence: 99%

Life situation among persons living with inflammatory bowel disease.

Lesnovska¹

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to describe the knowledge need, life situation and perception of HC among persons living with IBD, in order to develop a questionnaire to evaluate the quality of HC. This thesis is based on three studies that are presented in four papers. Qualitative methods were used to describe aspects of life situation in relation to the disease, whereas quantitative method was used to develop a questionnaire measuring quality of care. Study I and II have an inductive qualitative design. In study I, qualitative interviews with 30 people were performed to describe the knowledge need and experience of critical incidents in daily life while living with IBD. The interviews in study I were analyzed using content analysis (results presented in Paper I) and critical incident technique (results presented in Paper II). In study II, the perceptions of HC among persons living with IBD was explored in five focus group interviews and two individual interviews, in total n=26. Study III aimed to develop and evaluate a questionnaire, measuring quality of care among persons with IBD, including 318 persons with IBD and 8 professionals. The knowledge need among persons with IBD focused on managing symptoms and course of the disease and learning to assimilate the information in order to manage everyday life. Losing bowel control was of great concern for most of the informants in the study. Many of the informants said that “the bowel ruled their life” and that it influenced them to a great extent in their daily lives. The perception of HC among persons with IBD meant being met with respect and mutual trust, receiving information at the right time, shared decision-making, competence and communication, access to care, accommodation, continuity of care and the pros and cons of specialized care. The quality of care questionnaire QoC-IBD was constructed in five dimensions, building on the results from Study I and II. The dimensions were trust and respect, decision-making, information, continuity of care and access to care consisting of 21 questions in total. QoC-IBD is a short, self-administrated questionnaire that measures experiences of healthcare among persons with IBD with promising validity and reliability. To improve quality of care, HC is recommended to consider individual care needs and take the person’s daily life and social context into account. The QoC-IBD questionnaire measures the subjective experience of quality of care. Further testing in clinical practice...

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Validation of the Spanish version of a questionnaire to measure quality of care through the eyes of patients with inflammatory bowel disease (QUOTE-IBD)

Abstract: The Spanish QUOTE-IBD has proved to be a valid instrument to measure the quality of health care for patients with CD and UC.

Cited by 15 publications

References 14 publications

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Effect upon hospital activity of the application of a continued care model centered on patients with inflammatory bowel disease

Life situation among persons living with inflammatory bowel disease.

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