Qualidade de vida e desempenho ocupacional de pacientes submetidos à cirurgia de epilepsia

Zanni, Karina Piccin; Bianchin, Maysa Alahmar; Marques, Lúcia Helena Neves

doi:10.1590/s1676-26492009000300004

Cited by 10 publications

(13 citation statements)

References 12 publications

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“…Difficulties in domestic, self-care, educational and formal work activities, as well socialization problems, have been described as the most frequent, demonstrating that seizure control alone does not seem to be sufficient for the patient with epilepsy to have a good quality of life 3,4 . This information confirms the multidimensional impact of epilepsy on people's lives, culminating with functional and social problems 5 .…”

supporting

confidence: 69%

Translation of social and occupational functioning scale for epilepsy into Portuguese – Brazil

Fernandes

Meiga

Peres

et al. 2017

Arq. Neuro-Psiquiatr.

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Epilepsy has important consequences on functionality and social activities. There are few evaluation tools for this purpose. This study aimed to translate the Social and Occupational Functioning Scale for Epilepsy. It is a translation study, for which Beaton et al's. guidelines were used. Sixty patients over 18 years of age, with a confirmed diagnosis of epilepsy, were evaluated. The analysis of internal consistency (Cronbach's alpha) showed values between 0.55 and 0.72 associated with the original dimensions of the instrument, while the five dimensions identified by the results of an exploratory factor analysis showed values between 0.60 and 0.68, with different grouping of the structures of the original scale. Respondents had no difficulty answering the translated version of the Social and Occupational Functioning Scale for Epilepsy, but the statistics show the need for cultural adaptation to the Brazilian population.Keywords: epilepsy; activities of daily living; translating. RESUMOA epilepsia traz importantes consequências na funcionalidade e nas atividades sociais. São escassos os instrumentos de avaliação para esta finalidade. Este estudo tem por objetivo realizar a tradução da Escala de Funcionamento Social e Ocupacional para Epilepsia -SOFSE. É um estudo de tradução, para o qual foram utilizadas as diretrizes de Beaton et al. (2000). Foram avaliados 60 sujeitos, acima de 18 anos com diagnóstico confirmado de epilepsia. A análise da consistência interna (alpha de Cronbach) apresentou valores entre 0,55 e 0,72 associados às dimensões originais do instrumento, enquanto as cinco dimensões identificadas pelos resultados de uma análise fatorial exploratória apresentaram valores entre 0,60 e 0,68, com agrupamento diferente da estrutura da escala original. Os entrevistados não apresentaram dificuldade para responder a versão traduzida da SOFSE, mas os resultados estatísticos mostram a necessidade de uma adaptação cultural para a população brasileira.Palavras-chave: epilepsia; atividades cotidianas; tradução.Epilepsy is a medical condition that has several consequences for the lives of individuals. Social and daily life difficulties are frequently experienced A study conducted with patients with epilepsy from a university fourth level epilepsy center described the main difficulties encountered by people with difficult-to-control epilepsy in performing daily activities and socialization. Difficulties in domestic, self-care, educational and formal work activities, as well socialization problems, have been described as the most frequent, demonstrating that seizure control alone does not seem to be sufficient for the patient with epilepsy to have a good quality of life 3,4 . This information confirms the multidimensional impact of epilepsy on people's lives, culminating with functional and social problems 5 .It is important to note that this impact may vary depending on the level of the country's socioeconomic development

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supporting

confidence: 69%

Translation of social and occupational functioning scale for epilepsy into Portuguese – Brazil

Fernandes

Meiga

Peres

et al. 2017

Arq. Neuro-Psiquiatr.

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“…, Andressa Pereira Lima 4 , Lauren Machado Pinto 4 In spite of the many efforts of the last decades that have tried to control seizures and reduce the adverse effects of antiepileptic drugs (AEDs), epilepsy still remains a disabling disease, affecting a great number of individuals worldwide, with a rather taxing impact on any given subject's activities of daily living and, ultimately, his own quality of life (QOL) 1 . According to the literature, about 70% of individuals with epilepsy have their seizures controlled by the adequate use of AEDs.…”

mentioning

confidence: 99%

“…Thus, the concept of health-related quality of life (HQOL) has been developed to assess the perceptions of family members, social issues, limitations due to having a chronic disease and health-provider/health-assistant issues 4 . The aim of this study was to evaluate the limitations of occupational performance and how they influence on the perception of the quality of life of epileptic patients, particularly those who remain with their seizures without control despite the use of AEDs.…”

mentioning

confidence: 99%

Quality of life issues and occupational performance of persons with epilepsy

Nickel

Silvado

Germiniani

et al. 2012

Arq. Neuro-Psiquiatr.

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Epilepsy causes restrictions in the performance of various daily activities. The aiming of this study was to investigate whether these restrictions affect the perceived quality of life. The assessments Quality of Life in Epilepsy-31 (QOLIE-31) and Canadian Occupational Performance Measure (COPM) were applied in a sample that consisted of a single group of 34 subjects with at least two years of uncontrolled seizures. The results indicated that the most affected domains of QOLIE-31 were seizure worry, 29.77 (±21.72), and effects of drugs, 49.75 (±28.58), and for the COPM, the average of performance and satisfaction were respectively 3.10 (±3.07) and 4.45 (±3.29), and performance limitations most frequently cited were maintain employment (18), left home alone (15) and courses (15). The application of the Spearman correlation coefficient showed that the three main performance limitations posed by the COPM, especially regarding the level of satisfaction, influence the perception of quality of life. Thus, occupational performance proves to be an important area of intervention with subjects with epilepsy.

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“…Entende-se que embora possa haver divergências entre o que é percebido pelo terapeuta e o que é exposto pelo cliente, a abordagem é realizada baseada na perspectiva do que é significativo para o sujeito. Nesta revisão, observaram-se equívocos com relação ao método de aplicação do COPM em estudo realizado com 30 sujeitos epilépticos (ZANNI et al, 2009), utilizando valores incorretos nas escalas de desempenho e de satisfação, além de ter sido constatada nesta mesma sessão, referências não correspondentes ao estudo desse instrumento.…”

Section: Resultsunclassified

“…Desempenho Ocupacional, de acordo com a Occupacional Therapy Guidelines for Client-centred Pratice da Associação Canadense de Terapia Ocupacional, define-se como a habilidade de realizar rotinas e desempenhar papéis e tarefas, com o objetivo de autocuidado, produtividade e lazer em resposta às demandas do meio externo e interno ao indivíduo (CHAPPARO; RANKA, 1997;ZANNI et al, 2009).…”

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O uso da Medida Canadense de Desempenho Ocupacional em estudos brasileiros: uma revisão sistemática

Caldas

Facundes

Silva

2011

Rev. Ter. Ocup. Univ. São Paulo (Online)

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(1997 -2010), MEDLINE OLD (1966 -1996, LILACS e SciELO. Resultados: Foram encontrados 740 artigos a partir da busca de descritores e termo livre, sendo 278 da PUBMED, 340 da MEDLINE, 56 da MEDLINE OLD, 51 da LILACS, 15 da SciELO Brasil. Considerando os critérios de inclusão e de exclusão foram selecionados 06 artigos para esta revisão. Conclusões: No Brasil há escassez de estudos com a utilização deste método avaliativo, embora internacionalmente seja um importante guia da prática clínica de terapeutas ocupacionais. DESCRITORES:

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Qualidade de vida e desempenho ocupacional de pacientes submetidos à cirurgia de epilepsia

Cited by 10 publications

References 12 publications

Translation of social and occupational functioning scale for epilepsy into Portuguese – Brazil

Translation of social and occupational functioning scale for epilepsy into Portuguese – Brazil

Quality of life issues and occupational performance of persons with epilepsy

O uso da Medida Canadense de Desempenho Ocupacional em estudos brasileiros: uma revisão sistemática

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