Predictors of choosing life-long screening or prophylactic surgery in women at high and moderate risk for breast and ovarian cancer

Leeuw, J.R.J. de; Vliet, M.J. van; Ausems, Margreet G. E. M.

doi:10.1007/s10689-008-9189-5

Cited by 19 publications

(4 citation statements)

References 60 publications

(173 reference statements)

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“…Among women with hereditary risk, BPM is more often chosen by those who experience high anxiety and/or exaggerated perceptions of their risk [116]. BRCA mutation carriers with poorer self-perceived health may be more likely to choose prophylactic surgery [110].…”

Section: Women’s Prevention Choicesmentioning

confidence: 99%

Decision making for breast cancer prevention among women at elevated risk

et al. 2017

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Several medical management approaches have been shown to be effective in preventing breast cancer and detecting it early among women at elevated risk: 1) prophylactic mastectomy; 2) prophylactic oophorectomy; 3) chemoprevention; and 4) enhanced screening routines. To varying extents, however, these approaches are substantially underused relative to clinical practice recommendations. This article reviews the existing research on the uptake of these prevention approaches, the characteristics of women who are likely to use various methods, and the decision-making processes that underlie the differing choices of women. It also highlights important areas for future research, detailing the types of studies that are particularly needed in four key areas: documenting women’s perspectives on their own perceptions of risk and prevention decisions; explicit comparisons of available prevention pathways and their likely health effects; the psychological, interpersonal, and social processes of prevention decision making; and the dynamics of subgroup variation. Ultimately, this research could support the development of interventions that more fully empower women to make informed and values-consistent decisions, and to move towards favorable health outcomes.

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Section: Women’s Prevention Choicesmentioning

confidence: 99%

Decision making for breast cancer prevention among women at elevated risk

et al. 2017

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“…The percentage of women who opt for surgery varies considerably across studies 14,15,16,17 (Table 2) and reflects the heterogeneity of samples across studies with respect to the influence of specific demographic, medical, and psychosocial variables on the decision-making process regarding RRSO. These factors are discussed in detail in the next section.…”

Section: Introductionmentioning

confidence: 99%

New Strategies in Ovarian Cancer: Uptake and Experience of Women at High Risk of Ovarian Cancer Who Are Considering Risk-Reducing Salpingo-Oophorectomy

Miller

Roussi

Daly

et al. 2010

Clinical Cancer Research

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This paper reviews factors associated with uptake of risk-reducing salpingo-oophorectomy by women at increased hereditary risk for ovarian cancer, as well as quality of life issues following surgery. Forty one research studies identified through PubMed and PsychInfo met inclusion criteria. Older age, having had children, a family history of ovarian cancer, a personal history of breast cancer, prophylactic mastectomy, and BRCA1/2 mutation carrier status increase the likelihood of undergoing surgery. Psychosocial variables predictive of surgery uptake include greater perceived risk of ovarian cancer and cancer-related anxiety. Most women report satisfaction with their decision to undergo surgery and both lower perceived ovarian cancer risk and less cancer-related anxiety as benefits. Hormonal deprivation is the main disadvantage reported, particularly by premenopausal women who are not on hormonal replacement therapy (HRT). The evidence is mixed regarding satisfaction with the level of information provided prior to surgery, although generally women report receiving insufficient information regarding the pros and cons of HRT. These findings indicate that when designing decision aids, demographic, medical history, and psychosocial variables need to be addressed in order to facilitate quality decision making.

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“…Αν και η σχετική βιβλιογραφία είναι σύνθετη, θα σχολιάσουμε δύο σημεία που υπογραμμίζουν το ρόλο που παίζει το κοινωνικοπολιτισμικό πλαίσιο στην εμπειρία και στις αποφάσεις των γυναικών σχετικά με τη μαστεκτομή. Το ποσοστό των γυναικών που επιλέγει την αφαίρεση των μαστών είναι σχετικώς μικρό και σημαντικά μικρότερο από το αντίστοιχο ποσοστό αυτών που επιλέγουν την αφαίρεση των ωοθηκών (DeLeeuw, van Vliet, & Ausems, 2008. Miller, Roussi, Daly, & Scarpato, 2010.…”

Section: οι ψυχοκοινωνικές συνέπειες της μαστεκτομήςunclassified

H Εμπειρία Της Μαστεκτομής: Στίγμα Και Μεταβολές Στην Ενσώματη Ταυτότητα

Αυδή¹,

Ζηλιασκοπούλου²,

Ρούσση³

2020

Psychology

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Breast cancer and its treatment have significant effects on a bodily, psychological and social level. Although there are many studies of breast cancer and its effects on women’s lives, the research literature that examines the experience of mastectomy and the meaning that women themselves attribute to it is relatively limited. This paper exploresthe experience of mastectomy in relation to social representations regarding femininity and health, which provide the context for and affect the personal meaning attributed to the experience, as well as women’sdecisions regarding treatment. The findings of a phenomenological study, based on interviews with eight women that had undergone mastectomy for breast cancer, are presented. The analysis focuses on aphenomenological description of the experience of mastectomy, whilst taking into account the fact that the female breast has particularly strong connotations of femininity, sexuality and motherhood, that is,important aspects of women’s identity. It seems that a central aspect of women’s experience of mastectomy is a sense that they are somehow ‘different’ and this sense is associated with a stigmatised identity. The ways in which women seem to manage the double stigma, associated with the identity of a cancer patient and with that of a ‘deficient’ woman, are further discussed in the paper.

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Predictors of choosing life-long screening or prophylactic surgery in women at high and moderate risk for breast and ovarian cancer

Cited by 19 publications

References 60 publications

Decision making for breast cancer prevention among women at elevated risk

Decision making for breast cancer prevention among women at elevated risk

New Strategies in Ovarian Cancer: Uptake and Experience of Women at High Risk of Ovarian Cancer Who Are Considering Risk-Reducing Salpingo-Oophorectomy

H Εμπειρία Της Μαστεκτομής: Στίγμα Και Μεταβολές Στην Ενσώματη Ταυτότητα

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