Positive impact of Ménière's disorder on significant others as well as on patients: Our experience from eighty‐eight respondents

Living with Ménière's Disease: Understanding Patient Experiences of Mental Health and Well-Being in Everyday Life

“…While some studies have considered the adverse impact of Ménière's on quality of life, along with patients' perspectives regarding triggers and symptoms of the disease [4], there is very limited information about how patients experience and manage the disease (or not), including its triggers and symptoms in everyday life. In addition, we are currently unaware of the role that other people may play in this process [5][6][7] or how these issues impact on the sense of mental health and well-being amongst people with Ménière's.…”

Impact of Ménière’s Disease on Significant Others’ Health and Lives

“…In traumatic brain injuries, Dawson et al (2006) reported that SOs increased their emotional coping significantly after the incident; therefore, they concluded that addressing pain, depression, and coping in rehabilitation programs may have a positive impact on various outcomes of the patients. Despite this, there has been only limited number of studies focusing solely on impact of MD on the SOs (Stephens et al, 2012;Manchaiah et al, 2013;Pyykk} o et al, 2015b).…”

“…Of the psychosocial problems, the most commonly reported was ''frustration'' together with ''feeling sorry for the patient'' (Pyykk} o et al, 2015b). Interestingly, SOs of patients with MD have also reported positive experiences as a result of their partners' condition (Manchaiah et al, 2013). The predominant positive experiences concerned improved relationships, acceptance and positive attitude, perspectives on MD, treatment-related benefits, and information and support received.…”

“…It is important to note that all the three previous studies used open-ended questions to explore the limitations, restrictions, and positive experiences of SOs of individuals with MD as a result of their partner's condition (Stephens et al, 2012;Manchaiah et al, 2013;Pyykk} o et al, 2015b). Our studies indicate that only a limited number (i.e., 40-45%) of people with the disease and their SOs respond to open-ended questionnaires (Stephens et al, 2004), whereas a significantly higher percentage (i.e., more than 90%) of individuals respond to structured questionnaires (Stephens and Kerr, 2003).…”