Impact of Ménière’s Disease on Significant Others’ Health and Lives

Manchaiah, Vinaya; Pyykkö, Ilmari; Levo, Hilla; Kentala, Erna

doi:10.3766/jaaa.16166

Cited by 3 publications

(5 citation statements)

References 26 publications

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“…The majority (85%) of significant others reported that tinnitus impacted them, indicating that SOs may experience third-party disability. This supports the finding regarding third-party disability for other disabilities such as aphasia [ 6 ], hearing loss [ 7 ], and vestibular difficulties [ 15 ]. The impact surrounded sound adjustments, activity limitations, additional demands, emotional toll, and helplessness.…”

Section: Discussionsupporting

confidence: 88%

“…They furthermore need to assist individuals with hearing loss to manage everyday life activities such as group conversations [ 11 ]. Vestibular disorders may also have significant negative effects on SOs [ 15 ], and many SOs describe their experiences from coping to victimization [ 10 ]. As individuals with tinnitus experience various psychological and social consequences, it is reasonable to assume that their SOs may feel some of these effects on themselves.…”

Section: Introductionmentioning

confidence: 99%

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The Effects of Tinnitus on Significant Others

Beukes

Ulep

Andersson

et al. 2022

JCM

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Although chronic conditions could cause third-party disability for significant others (SOs), little is known regarding the impact of tinnitus on SO. This study aimed to identify the effects of tinnitus on SOs. SOs of individuals with tinnitus were invited to participate in this study. SOs completed three open-ended questions focusing on the effects of tinnitus. Individuals with tinnitus completed the Tinnitus Functional Index as a self-reported measure of tinnitus severity. A mixed-methods analysis approach was undertaken. Of the 156 SOs responding, 127 (85%) reported that tinnitus impacted them. The impact surrounded sound adjustments, activity limitations, additional demands, emotional toll, and helplessness. Tinnitus negatively affected the relationship for 92 (58%) due to communication frustrations and growing apart. When asked if tinnitus had any positive effects, 64 (47%) SOs reported positive lifestyle adaptions, personal development, health awareness, and a changed outlook. There was no association between the level of tinnitus severity and SOs reporting that tinnitus had an impact on them individually, their relationships, or those reporting positive experiences. The study highlighted the third-party disability many SOs of individuals with tinnitus experience. The results indicate that SOs may benefit from a shared intervention to help mitigate the negative effects through a better understanding of tinnitus.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

The Effects of Tinnitus on Significant Others

Beukes

Ulep

Andersson

et al. 2022

JCM

Self Cite

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“…The majority of scores were between 30 and 60 out of 100, although the score range varied widely between 2 and 89. These findings are comparable to the third-party disability noticed by SOs of individuals with hearing loss and vestibular problems [ 9 , 10 , 11 , 12 ]. This sample only included those with bothersome tinnitus who were seeking online psychological interventions [ 20 , 21 , 22 ].…”

Section: Discussionsupporting

confidence: 79%

“…Depression (PHQ-9) (range 0-27) 7 (5) [0-26] Insomnia (ISI) (range 0-28) 11 (6) [0-27] Health-related quality of life (EQ-5D-5L) (range 0-15) 8 (2) [5][6][7][8][9][10][11][12][13][14][15][16][17][18] Health-related quality of life VAS (EQ-5D-5L VAS) (range 0-100) 76 ( 15…”

Section: Impact Of Tinnitus On the Significant Othersmentioning

confidence: 99%

“…SOs are often spouses or partners, but could also be family members or other individuals who have a close relationship to the individual with the disability. Due to most traditional rehabilitation efforts focusing solely on the person with the overt disability, many SOs may be “hidden victims”, including those with communication disorders [ 8 , 9 , 10 , 11 , 12 ].…”

Section: Introductionmentioning

confidence: 99%

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Third-Party Disability for Significant Others of Individuals with Tinnitus: A Cross-Sectional Survey Design

2023

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There is currently increasing awareness of third-party disability, defined as the disability and functioning of a significant other (SO) due to a health condition of one of their family members. The effects of third-party disability on the SOs of individuals with tinnitus has received little attention. To address this knowledge gap, this study investigated third-party disability in the significant others (SOs) of individuals with tinnitus. A cross-sectional survey design included 194 pairs of individuals from the USA with tinnitus and their significant others. The SO sample completed the Consequences of Tinnitus on Significant Others Questionnaire (CTSOQ). Individuals with tinnitus completed standardized self-reported outcome measures for tinnitus severity, anxiety, depression, insomnia, hearing-related quality of life, tinnitus cognitions, hearing disability, and hyperacusis. The CTSOQ showed that 34 (18%) of the SOs were mildly impacted, 59 (30%) were significantly impacted, and 101 (52%) were severely impact. The clinical variables of tinnitus severity, anxiety, and hyperacusis in individuals with tinnitus were the best predictors of the impact of tinnitus on SOs. These results show that the SOs of individuals with tinnitus may experience third-party disability. The effect of the individual’s tinnitus on their SO may be greater when the individual with tinnitus has a higher level of tinnitus severity, anxiety, and hyperacusis.

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