Internet-Based Self-Help for Ménière's Disease: Details and Outcome of a Single-Group Open Trial

Pyykkö, Ilmari; Manchaiah, Vinaya; Kentala, Erna; Levo, Hilla; Juhola, Martti

doi:10.1044/2017_aja-16-0068

Cited by 9 publications

(8 citation statements)

References 44 publications

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“…Permission was obtained from the Finnish Ménière Federation (FMF; Suomen Meniere-liitto) to allow access to the FMF registry data anonymously (i.e., without the personally identifiable information of subjects). The registry data contained detailed data on disease that the FMF had collected from their members when establishing the computer based diagnostic and peer support program during the years 2005-2016 [30][31][32][33][34][35]. Under Finnish law, this kind of study conducted in association with patient association does not require ethical approval.…”

Section: Study Design and Participantsmentioning

confidence: 99%

Association between Ménière’s disease and vestibular migraine

Pyykkö

Manchaiah

Färkkilä³

et al. 2019

Auris Nasus Larynx

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Section: Study Design and Participantsmentioning

confidence: 99%

Association between Ménière’s disease and vestibular migraine

Pyykkö

Manchaiah

Färkkilä³

et al. 2019

Auris Nasus Larynx

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“…The outcome varies between different support efforts, but improvements in quality of life, social attendance, and daily coping have been reported. 14 , 18 – 20 However, most of these programs were laborious for users and required intentional efforts to make them easily accessible.…”

Section: Discussionmentioning

confidence: 99%

“… 8 Such examples of Internet-based self-help and guided therapies are also shown to be effective in the management of hearing loss, tinnitus, and balance disorders. 10 – 14 The self-help programs often have demanding recommendations (eg, medication regimen, instructions to change attitude and expectations, careful self-monitoring, and diet and exercise programs). Hence, the success of many of these self-help programs for chronic disease depends largely on the willpower and ability of persons to follow the instructions.…”

Section: Introductionmentioning

confidence: 99%

“…The iPS program includes computer-based disease assessment, an online self-help program to facilitate coping, and comparison of patients’ condition and progress with similar referent cases. 12 – 14 These two types of assistance are aimed to provide information, change the attitude, and improve to cope well with the condition. The information is supplementary to the routine medical care and aims to promote self-management of MD among the affected individuals and their significant others.…”

Section: Introductionmentioning

confidence: 99%

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Patient-reported benefits from patient organization magazines and Internet-based peer support in Ménière’s disease

Manchaiah¹,

Pyykkö²,

Zou³

et al. 2017

PPA

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ObjectivesTo facilitate self-help, the Finnish Ménière’s Federation (FMF) provides various kinds of support to persons with Ménière’s disease (MD), which includes patient magazines (PM) and Internet-based peer support (iPS). The current study aimed to evaluate the benefits reported by MD patients in terms of PM and iPS.MethodThe study used a cross-sectional survey design with a mixture of structured and open-ended questions administered online. A sample of 185 patients from the FMF membership database provided complete data.ResultsNinety-two percent of the respondents rated PM as useful, or very useful. The main benefits of PM included: information on the disease and complaints, information about elements of peer support program, patient’s experience with useful positive case studies, relevant news on MD, and information of activity of the FMF. Of the 185 persons, 68 reported that they did not have a need for peer support as their disease was either in silent phase or did not cause any annoyance. The main reasons for nonuse were: mild disease, personal reasons, and problems in using. Regarding the benefits of iPS, 75% of recent and 64% of chronic MD patients said that they would benefit from such a program. The main benefits of iPS included: reliable information on the disease and its management, peer support useful for coping with the disease, information about managing MD symptoms, information about managing attitude, and information about therapy. Moreover, the study identified different groups of individuals, which included: nonusers of support from patient organizations, those who used the support but did not feel they benefited, and those who used and also benefited from such programs.ConclusionThe current study results provide some information about the preferences of MD patients regarding different forms of support and could certainly prove helpful while developing wider support strategies.

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“…Compared with group-based CBT (Jasper et al, 2014;Nyenhuis et al, 2013) Compared with specialized individualized tinnitus care Cost-effectiveness/cost-benefit analysis not done Improved quality of life IBIs hearing loss (Molander et al, 2018), Ménière's disease (Pyykkö et al, 2017), and tinnitus Hesser et al, 2012) Cost-utility analysis not done…”

Section: Patient Benefit or Intervention Feature Example Referencesmentioning

confidence: 99%

Internet-Based Audiological Interventions: An Update for Clinicians

Beukes

Manchaiah

2019

Perspect ASHA SIGs

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Purpose Advancements in digital and computing technologies have created opportunities for innovations in the provision of health care remotely. The aim of this article is to provide audiological professionals with a summary of literature regarding existing audiological Internet-based interventions (IBIs). The specific objectives are to (a) provide an overview of the range of audiological IBIs for adults with hearing loss, balance disorders, and tinnitus; (b) identify the features included in these IBIs and possible benefits; and (c) identify difficulties and challenges regarding the implementation and use of audiological IBIs. Method Relevant articles were identified through literature review conducted in the PubMed database and gray literature. The relevant information from these sources, such as the type of intervention and main outcomes, were summarized. Results A range of IBIs were identified, with the majority addressing tinnitus distress. Those for hearing loss have been applied at different stages of the patient journey. Unguided IBIs for vestibular difficulties included self-help for Ménière's disease and vestibular rehabilitation. Most tinnitus IBIs provided cognitive behavioral therapy. Overall, IBIs showed benefits in terms of outcome and accessibility. Barriers include uncertainties surrounding cost-effectiveness, optimal level of support, and improving intervention compliance. Conclusions Telehealth applications are expanding in audiology, and IBIs have been developed to provide auditory rehabilitation, vestibular rehabilitation, and tinnitus interventions. IBIs have the potential to offer accessible and affordable services. More work is required to further develop these interventions and optimize outcomes.

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Internet-Based Self-Help for Ménière's Disease: Details and Outcome of a Single-Group Open Trial

Abstract: The Internet-based self-help program can be helpful in the rehabilitation of patients with MD to supplement medical therapy.

Cited by 9 publications

References 44 publications

Association between Ménière’s disease and vestibular migraine

Association between Ménière’s disease and vestibular migraine

Patient-reported benefits from patient organization magazines and Internet-based peer support in Ménière’s disease

Internet-Based Audiological Interventions: An Update for Clinicians

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Internet-Based Self-Help for Ménière's Disease: Details and Outcome of a Single-Group Open Trial

Abstract: The Internet-based self-help program can be helpful in the rehabilitation of patients with MD to supplement medical therapy.

Cited by 9 publications

References 44 publications

Association between Ménière’s disease and vestibular migraine

Association between Ménière’s disease and vestibular migraine

Patient-reported benefits from patient organization magazines and Internet-based peer support in M&eacute;ni&egrave;re&rsquo;s disease

Internet-Based Audiological Interventions: An Update for Clinicians

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Product

Resources

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Patient-reported benefits from patient organization magazines and Internet-based peer support in Ménière’s disease