Penile hygiene: puberty, paraphimosis and personal care for men and boys with an intellectual disability

Wilson, Nathan J.; Cumella, Stuart; Parmenter, Trevor R.; Stancliffe, Roger J.; Shuttleworth, Russell

doi:10.1111/j.1365-2788.2008.01133.x

Cited by 17 publications

(13 citation statements)

References 13 publications

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“…While a small number of past and present nurse academics have conducted some exploratory research about the care and support of people with IDD, these studies are not specifically about the field of IDD nursing and are more often published in disability-specific rather than nursing journals (e.g., Wilson, Cumella, Parmenter, Stancliffe, & Shuttleworth, 2009). While a small number of past and present nurse academics have conducted some exploratory research about the care and support of people with IDD, these studies are not specifically about the field of IDD nursing and are more often published in disability-specific rather than nursing journals (e.g., Wilson, Cumella, Parmenter, Stancliffe, & Shuttleworth, 2009).…”

Section: The Australian Idd Nursing Contextmentioning

confidence: 99%

“…A recent 30-year review of the literature about the field of IDD nursing revealed little Australian research and scholarship about IDD nursing . While a small number of past and present nurse academics have conducted some exploratory research about the care and support of people with IDD, these studies are not specifically about the field of IDD nursing and are more often published in disability-specific rather than nursing journals (e.g., Wilson, Cumella, Parmenter, Stancliffe, & Shuttleworth, 2009). The available Australian literature has tended to focus on generalist registered nurses' experiences caring for and communicating with a person with IDD while they are hospitalized (Lewis, Gaffney, & Wilson, 2017).…”

Section: The Australian Idd Nursing Contextmentioning

confidence: 99%

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Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study

Wilson

Wiese

Lewis

et al. 2019

Journal of Advanced Nursing

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Aims To explore the perceptions of Australian nurses working in disability‐specific settings and/or roles, about: (a) nursing people with intellectual and developmental disability living in Sydney; and (b) the utility and applicability of professional practice standards designed specifically for intellectual and developmental disability nursing. Design A qualitative research design was used to guide the study and our analysis utilized the constant comparative approach to thematic data analyses. Methods Individual in‐person interviews were conducted with 18 nurses working in intellectual and developmental disability‐specific settings and/or roles across the state of New South Wales between July – December, 2017. Participants described what it is that sets intellectual and developmental disability nursing apart from other nursing specialties, and the rewards and challenges of their role. Questions were also asked about professional practice standards in general and more specifically intellectual and developmental disability professional practice standards. Data were analysed thematically. Findings Three themes reflected intellectual and developmental disability nurses’ perceptions: (a) a unique investment in the nurse/patient dyad; (b) a bridge between disparate systems; and (c) an ambiguous future. Nurses reported variable understanding of professional practice standards designed for intellectual and developmental disability nursing, but also a belief in their importance. Conclusion The intellectual and developmental disability nurses’ experience of care accounts for the specific needs of patients with intellectual and developmental disability and suggests the importance of professional practice standards which acknowledge the changing landscape of care in Australia prompted by the implementation of the National Disability Insurance Scheme.

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Section: The Australian Idd Nursing Contextmentioning

confidence: 99%

Section: The Australian Idd Nursing Contextmentioning

confidence: 99%

Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study

Wilson

Wiese

Lewis

et al. 2019

Journal of Advanced Nursing

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“…The ethical dilemmas that staff encounter are illuminated very clearly for example, by the findings on access, touch, hugs, and masturbation. This is perhaps best illustrated by the example of how staff have no policy guidance on how to react to a male clients' erection during the delivery of intimate personal care [39].…”

Section: Discussionmentioning

confidence: 99%

“…Disability support staff felt that these kind of self-pleasuring behaviours were not sexually motivated as there was never any obvious and consistent sexual trigger; if this teenage boy wanted to masturbate he would just go ahead and do it. The matter of non-sexual stimulation during the delivery of intimate personal care, such as penile hygiene, was also raised and we have discussed this issue at length in a companion paper [39]. Here, disability support staff framed the usually-sexual response (an erection), as non-sexual stimulation as this afforded them a degree of security that they were staying within professional boundaries.…”

Section: Self-discoverymentioning

confidence: 99%

Conditionally Sexual: Men and Teenage Boys with Moderate to Profound Intellectual Disability

et al. 2011

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This article presents qualitative research data about the sexuality of men and teenage boys with moderate to profound intellectual disability. Research findings pointed to a conditional construct of sexuality based within a biopsychosocial framework. The notion Conditionally Sexual represents the perceived limitations, within a rights-based discourse, of these men and teenage boys' sexuality. The limitations to person-centred service delivery from a policy vacuum in the area of sexuality and intellectual disability represents a major challenge for paid staff. We suggest that a move toward better understanding how to support such a conditional sexual construct will assist the development of a healthy masculine sexuality for men and boys with intellectual disability.

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“…Thus, there are few studies on genital hygiene in the literature. In the study by Wilson, Cumella, Parmenter, Stancliffe, and Shuttleworth (2009), it was determined that the genital hygiene practices of teenagers with ID remained insufficient due to the lack of knowledge, training, guidance, and care.…”

Section: Adopting Genital Hygiene Habitsmentioning

confidence: 99%

Evaluating the Effects of a Personal Hygiene Program on the Knowledge, Skills, and Attitudes of Intellectual Disabilities Teenagers and their Parents

Şener

Aydın

Cangür

2019

Policy Practice Intel Disabi

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To determine the effects of personal hygiene training on the knowledge, skills, attitudes and behavior of teenagers with mild intellectual disabilities (ID), this study employed a randomized controlled type, social cognitive theory design. A 10‐week, 10‐session program was given to the teenagers (17.38 ± 1.61 years) and their parent. Included in the program were activities covering the washing of hands/face/hair/body, oral hygiene/brushing teeth, clothing hygiene, and menstrual and genital hygiene. At the end of the program and again 3 months later, the personal hygiene habits of the teenagers were significantly improved compared to before the training program. Significantly positive changes were observed in hygiene habits compared to pretraining (p < .001). Compared to pretraining, a significant increase occurred in the skill behavior demonstrated by the teenagers (p < .001). Consequently, it is recommended that the program be implemented by healthcare professionals for all teenagers with mild ID and their parents.

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Penile hygiene: puberty, paraphimosis and personal care for men and boys with an intellectual disability

Abstract: The penile health needs of men and boys with an ID are being compromised by a lack of guidance, training, knowledge and limited gender-sensitive care.

Cited by 17 publications

References 13 publications

Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study

Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study

Conditionally Sexual: Men and Teenage Boys with Moderate to Profound Intellectual Disability

Evaluating the Effects of a Personal Hygiene Program on the Knowledge, Skills, and Attitudes of Intellectual Disabilities Teenagers and their Parents

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