Pênfigo: uma cartografia sobre as articulações das políticas em saúde

Abstract

Pemphigus is a group of autoimmune blistering diseases that affect the skin and mucous membranes, the global incidence of which is 0.75 to 5 / 1.000.000 cases a year. The approach taken derives from the relations of power/truth and subjectivity that produce modes of experience from the perspective of hospitals and public policies. It involves cartographic qualitative research, supported from a Deleuzian standpoint. The objective was to discuss pemphigus as a chronic disease and discuss health policies and their impact on care practices. This cartography was conducted in a philanthropical hospital, which is a national reference for the treatment of pemphigus. The research was conducted from September 2012 to February 2013. The analysis of materials included: medical records, field diary reports of all healthcare activities, such as medical consultations, technical procedures performed by nursing staff and medical staff and reports of patients, families, physicians, and nursing staff. The analyses were created from a Foucauldian historical and genealogical perspective. The conclusion reached is that health policies for chronic patients with pemphigus are not presented as a condition to be avoided / prevented, but as abnormal groups and bio identities that have no effect on the whole population.

Gaze vaselinada para prevenção de lesões por pressão em pessoas com dermatoses imunobolhosas

“…Destaca-se que, por se tratar de doença rara, as pesquisas existentes normalmente limitam-se a análises epidemiológicas e técnicas de manejo farmacológico, sem privilegiar outros aspectos que envolvem o atendimento a esta clientela específica, em especial, no campo das políticas públicas de saúde 3 . Diante da precariedade de referenciais teóricos relacionados ao cuidado de enfermagem aos clientes com DI 4 , inclusive com níveis de evidência significativos em relação aos curativos 5 , foi proposto um protocolo de curativo com gaze vaselinada, na tentativa de melhorar a mobilidade, promover o conforto e minimizar complicações, incluindo as LP.…”