Pediatric palliative care

Iglesias, Simone; Zöllner, Ana Cristina Ribeiro; Constantino, Clóvis

doi:10.25060/residpediatr-2016.v6s1-10

Cited by 19 publications

(17 citation statements)

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“…Pediatric Palliative Care presents some particularities, such as: fewer patients under this care; possibility of survival until adulthood; parents and family members who experience loss and grieving in advance; the family becomes involved with the care of the patient, and healthy siblings are excluded from this process, which can lead to an emotional vulnerability; difficulties in expressing the feelings of the child and relatives; difficulties in the family's willingness to care for themselves and to remain in the hospital for a long period of time; diseases that occur in the stage of physical, emotional and cognitive development, being essential to guarantee the continuity of the educational process. 10 It is revealed that, like the entire multidisciplinary team, Nursing professionals play an extremely important role in Palliative Care, since they provide the necessary care and meet the needs of patients on a daily basis. It is necessary that these remain calm and emotionally balanced, to face the tensions that involve the process of death and dying, recognizing that there is always something to do for patients, even in the process of finitude.…”

Section: :6mentioning

confidence: 99%

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Profissionais de enfermagem: compreensão sobre cuidados paliativos pediátricos

Verri

Bitencourt

Oliveira

et al. 2019

Rev enferm UFPE on line.

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Objective: to investigate the understanding and practice ofpediatric palliative care. Method: it is a qualitative, exploratory and descriptive study, in a Maternal-Infant School Hospital with 30 Nursing professionals. A sociodemographic questionnaire and semi-structured interview were used to collect data. The data was submitted to the Content Analysis technique. Results: professionals presented difficulties related to the understanding of the philosophy and objectives of palliative care and difficulties in working with pediatric patients under this care, highlighting the feelings of failure and sadness in dealing with the situation. As a coping strategy, the affective detachment of the patient and his family, the spirituality and the offer to the patient of a differentiated and humanized care are used as coping strategies. Conclusion: it is necessary to include palliative care in the academic training of professionals, favoring the knowledge of the subject and preparing the professional to deal with death and dying, as well as the need for a space in the health institutions that provide shelter for the difficulties of professionals working in this context. Descritores: Palliative Care; Pediatrics; Pediatric Nursing; Death; Adaptation, Psychological; Humanization of Assistance. RESUMOObjetivo: investigar a compreensão e a prática dos profissionais de enfermagem sobre os cuidados paliativos pediátricos. Método: trata-se de estudo qualitativo, exploratório e descritivo, em um Hospital Escola Materno-Infantil com 30 profissionais de Enfermagem. Utilizaram-se, para a coleta de dados, questionário sociodemográfico e entrevista semiestruturada. Submeteram-se os dados à técnica de Análise de Conteúdo. Resultados: apresentaram-se, pelos profissionais, dificuldades relacionadas à compreensão da filosofia e aos objetivos dos cuidados paliativos e dificuldade em atuar com pacientes pediátricos que estão sob esse cuidado, destacando-se os sentimentos de fracasso e de tristeza ao lidarem com a situação. Empregam-se, com isso, como estratégias de enfrentamento, o distanciamento afetivo do paciente e de sua família, a espiritualidade e o oferecimento, ao paciente, de um atendimento diferenciado e humanizado. Conclusão: salienta-se a necessidade da inclusão de cuidados paliativos na formação acadêmica dos profissionais, favorecendo o conhecimento do tema e preparando o profissional para lidar com a morte e o morrer, assim como a necessidade de um espaço nas instituições de saúde que proporcione acolhimento frente às dificuldades dos profissionais que atuam nesse contexto. Descritores: Cuidados Paliativos; Pediatria; Enfermagem Pediátrica; Morte; Adaptação Psicológica; Humanização da Assistência. RESUMEN Objetivo: investigar la comprensión y la práctica de los profesionales de enfermería sobre los cuidados paliativos pediátricos. Método: se trata de un estudio cualitativo, exploratorio y descriptivo, en un Hospital Escuela Materno-Infantil con 30 profesionales de Enfermería. Se utilizaron, para la recolección de datos, cuestionario sociodemográfico y entrevista semiestructurada. Se sometieron los datos a la técnica de Análisis de Contenido. Resultados: se presentaron, por los profesionales, dificultades relacionadas a la comprensión de la filosofía y a los objetivos de los cuidados paliativos y dificultad en actuar con pacientes pediátricos que están bajo ese cuidado, destacándose los sentimientos de fracaso y de tristeza al lidiar con la situación. Se emplean, con ello, como estrategias de enfrentamiento, el distanciamiento afectivo del paciente y de su familia, la espiritualidad y el ofrecimiento, al paciente, de una atención diferenciada y humanizada. Conclusión: se destaca la necesidad de la inclusión de cuidados paliativos en la formación académica de los profesionales, favoreciendo el conocimiento del tema y preparando al profesional para lidiar con la muerte y el morir, así como la necesidad de un espacio en las instituciones de salud que proporcione acogida frente a las dificultades de los profesionales que actúan en ese contexto. Descritores: Cuidados paliativos; Pediatría; Enfermería Pediátrica; Muerte; Adaptación Psicológica; Humanización de la Atención.

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Section: :6mentioning

confidence: 99%

“…This bond is increased when the patients are children, making the lived experiences meaningful and affectionate both for the professionals, as for the children and relatives 10. [...]it is difficult, even more so, with a child[...] the mother was with her on her lap and said: Let my daughter rest, for God's sake.…”

mentioning

confidence: 99%

Profissionais de enfermagem: compreensão sobre cuidados paliativos pediátricos

Verri

Bitencourt

Oliveira

et al. 2019

Rev enferm UFPE on line.

View full text Add to dashboard Cite

show abstract

“…This clinical condition leads to medicalization, hospitalization, and invasive procedures such as ventriculoperitoneal shunt (VPS) and gastrostomy. The innumerable associated morbidities and limited quality of life emphasize the need to discuss palliative care in this group [ 4 – 6 ].…”

Section: Introductionmentioning

confidence: 99%

Palliative Care in Congenital Syndrome of the Zika Virus Associated with Hospitalization and Emergency Consultation: Palliative Care and Congenital Syndrome of Zika

Rocha

Mello

Torres

et al. 2018

Journal of Tropical Medicine

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Background Congenital syndrome of Zika virus (CSZV) is associated with neuromotor and cognitive developmental disorders, limiting the independence and autonomy of affected children and high susceptibility to complications, so palliative care needs to be discussed and applied. Aim To identify factors associated with emergency visits and hospitalizations of patients with CSZV and clinical interventions performed from the perspective of palliative care. Design This is a cross-sectional study with bidirectional longitudinal component. Data were collected between May and October 2017 through the review of medical records and interviews with relatives of patients hospitalized. Setting/Participants The study was developed in a tertiary care hospital involving patients with confirmed CSZV born as of August 2015 and followed up until October 2017. Patients under investigation were excluded. Results 145 patients were followed up at the specialized outpatient clinic, 92 (63.5%) were consulted at least once in the emergency room, and 49% had already been hospitalized, with the main reason being neurological causes, while 24.1% had never required any emergency visit or hospitalization. No risk factors were associated with the occurrence of consultations or hospitalizations. Such events happened at an early age and were accompanied by a high number of invasive procedures and interventions. An approach in palliative care was only identified in two hospitalized patients. Conclusions For the patient with known severe malformations caused by congenital infection by the Zika virus with indication of palliative care, this approach could be used in order to allow life without suffering and disproportionate invasive method.

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“…This clinical condition leads to medicalization, hospitalization and invasive procedures such as ventriculo-peritoneal shunt (VPS) and gastrostomy. The innumerable associated morbidities and limited quality of life emphasize the need to discuss palliative care in this group (Teixeira et al, 2016;Iglesias et al, 2016Chambers, 2003).…”

Section: Introductionmentioning

confidence: 99%