Patient perspectives on information needs for amputation secondary to vascular surgery: What, when, why, and how much?

Pedlow, Halli; Cormier, Ashli; Provost, Megan; Bailey, Stephanie; Balboul, Gill; Coucill, Adrienne; Coleman, Jaimie; Fox, Patricia; Moloney, Tony; Nixon, Stephanie

doi:10.1016/j.jvn.2014.01.002

Cited by 20 publications

(18 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Although varied sources of knowledge was communicated and utilised, face-to-face meetings with health care professionals were preferable, and the lack thereof was experienced as a shortcoming in the exchange of knowledge. Lack of time, deficits in verbal information and the fact that written information is less helpful than face-to-face information has also been stressed in other studies [ 34 – 36 ]. According to the Comprehensive Model of Information Seeking, an individual often uses both interpersonal and mediated channels to obtain information.…”

Section: Discussionmentioning

confidence: 93%

How do patients with peripheral arterial disease communicate their knowledge about their illness and treatments? A qualitative descriptive study

Wann-Hansson

Wennick

2016

BMC Nurs

View full text Add to dashboard Cite

BackgroundPeripheral arterial disease is a chronic illness, and patients with peripheral arterial disease should receive advice about lifestyle changes and medical therapies to reduce further atherosclerotic complications. Previous research has indicated that patients with peripheral arterial disease lack information about their disease and secondary prevention measures. The aim was to elucidate how patients with peripheral arterial disease communicate their knowledge about their illness and treatments.MethodsDuring 2009, seven focus group interviews were conducted with twenty-one patients (50–81 years old) with peripheral arterial disease and were analysed using content analysis.ResultsWhen respondents with PAD communicate their knowledge about the illness and its treatments they “Navigate through uncertainty, believes and facts about PAD, displaying an active or passive information-seeking behaviour”. After discharge, they felt a feeling of relief at first, which was later exchanged into uncertainty from their restricted knowledge about the illness and how to behave following revascularisation. For example, during the discussions about risk factors, smoking was noted as a major risk factor, that triggered feelings of guilt. Thus, the respondents needed to consult other sources of information to manage their everyday lives.ConclusionsFollowing endovascular treatment, the short amount of time spent with peripheral arterial disease patients requires innovative guidance in clinical practice to meet individuals’ needs regardless of whether the patient actively or passively understands and manages their peripheral arterial disease.

show abstract

Section: Discussionmentioning

confidence: 93%

How do patients with peripheral arterial disease communicate their knowledge about their illness and treatments? A qualitative descriptive study

Wann-Hansson

Wennick

2016

BMC Nurs

View full text Add to dashboard Cite

show abstract

“…To use the latter as an illustrative example, we turned to the peer-reviewed literature describing the experience of limb loss, outcomes after PFA and TTA surgeries, and the education needs described by patients to define the topic areas included in the SDM resources. 8,[24][25][26][27][28][29][30] Through this exploration, it was noted that those who have lived the experience of limb loss wished they were better informed about what surgery involved, potential complications, healing times and wound management, experience of pain, depression, anxiety, and what mobility would be like, as illustrative examples. 8,[24][25][26][27][28][29][30] While these needs corresponded well with data describing that the experiences of depression and anxiety were common and rates of complications and reamputation were high, it was notable that mortality was rarely discussed despite poor survival rates.…”

Section: Scoping Steering and Building Of The Design Briefmentioning

confidence: 99%

“…8,[24][25][26][27][28][29][30] Through this exploration, it was noted that those who have lived the experience of limb loss wished they were better informed about what surgery involved, potential complications, healing times and wound management, experience of pain, depression, anxiety, and what mobility would be like, as illustrative examples. 8,[24][25][26][27][28][29][30] While these needs corresponded well with data describing that the experiences of depression and anxiety were common and rates of complications and reamputation were high, it was notable that mortality was rarely discussed despite poor survival rates. [31][32][33][34][35] While there were many more education needs identified in these studies 8,[24][25][26][27][28][29][30] (e.g.…”

Section: Scoping Steering and Building Of The Design Briefmentioning

confidence: 99%

“…7 Like other groups facing amputation surgery, people facing PFA may be uncertain about their treatment options, feel uninformed about the likely outcomes and potential risks, disempowered, and not adequately involved in the decision-making process. 8 With an SDM consult designed to address these barriers to informed decision making, we contend that many people facing the prospect of PFA may deliberately choose a more invasive transtibial amputation (TTA) to reduce the risk of complications and reamputation, particularly given an understanding of the similarity in the mobility and qualityof-life outcomes between PFA and TTA and the high rates of mortality in the years after amputation surgery. 7 As understanding of SDM has grown and resources such as decision aids have become more widely available, we have seen examples of SDM being used as a basis for informed consent and healthcare reimbursement.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Development of shared decision-making resources to help inform difficult healthcare decisions

Quigley

Dillon

Fatone

2018

Prosthetics &Amp; Orthotics International

View full text Add to dashboard Cite

Lessons learnt through the process, such as using the International Patient Decision Aid Standards checklist and development guidelines, may help inform others wanting to develop similar shared decision-making resources given the applicability of shared decision making to many areas of prosthetic-/orthotic-related practice. Clinical relevance Shared decision making is a process designed to guide conversations that help patients make an informed decision about their healthcare. Raising awareness of shared decision making and the international standards for development of high-quality decision aids and discussion guides is important as the approach is introduced in prosthetic-/orthotic-related practice.

show abstract

“…Nos casos de cirurgias eletivas, o apoio psicológico prévio à pessoa auxilia-a a lidar com o processo operatório, a aceitar o processo de reabilitação e de protetização (BRASIL, 2012b Um estudo também de caráter qualitativo realizado por Pedlow et al (2014) com pessoas submetidas a uma amputação de membros inferiores secundária de uma doença vascular teve como objetivo explorar as perspectivas das pessoas que foram submetidas à cirurgia de amputação. Em relação às informações fornecidas durante o processo de internação pelos profissionais de saúde, as pessoas relataram que não havia informações suficientes em uma variedade de tópicos, incluindo o processo de recuperação, as expectativas para a reabilitação e a prótese.…”

Section: Minha Avó Teve Que Amputar a Pernaunclassified

Promovendo a Saúde Da Pessoa Amputada: Uma Ação Educativa Chamada Conversa No Leito

Branco

Santos

Luz

2017

Cad. Bras. Ter. Ocup.

View full text Add to dashboard Cite

Resumo: Objetivo: O objetivo foi relatar a ação educativa intitulada "Conversa no Leito" a partir de cinco temas geradores: Reabilitação; Empoderamento; Amputação; Incertezas e Orientação. Essa pesquisa foi realizada no projeto de extensão Reabilitação Multidisciplinar em Amputados da Universidade do Estado de Santa Catarina. As ações do projeto em nível hospitalar incorporam: coleta das notificações; conversa no leito; entrega de um kit com folders informativos e faixa elástica para o enfaixamento do coto; agendamento para a avaliação fisioterapêutica no projeto de extensão pós-alta. Método: Este estudo de caso qualitativo foi realizado com uma pessoa recém-amputada de membro inferior num hospital público do município de São José/Santa Catarina. Resultados: Esta ação mostrou-se eficiente principalmente no empoderamento do paciente para o início precoce da reabilitação. Conclusão: Salienta-se atenção para capacitação da equipe multidisciplinar hospitalar envolvida quanto a orientações sobre protetização, retorno ao trabalho e esclarecimento de dúvidas gerais com atenção aos anseios do paciente e suporte familiar. conversation with bedridden patients; delivery of a kit with informative brochures and an elastic band for the bandaging of the stump; schedule for physical therapy assessment after hospital discharge in the outreach project. Palavras-chave:Method: This qualitative case study was performed with a person who had recently undergone a lower limb amputation in a public hospital in the city of São José/Santa Catarina. Results: This project proved to be efficient mainly to empower the patient for early onset of rehabilitation. Conclusion: We call attention to the importance of training hospital multidisciplinary teams involved in providing guidelines on fitting, return to work and clarification of general doubts taking into account the patient's wishes and family support.

show abstract

Patient perspectives on information needs for amputation secondary to vascular surgery: What, when, why, and how much?

Cited by 20 publications

References 21 publications

How do patients with peripheral arterial disease communicate their knowledge about their illness and treatments? A qualitative descriptive study

How do patients with peripheral arterial disease communicate their knowledge about their illness and treatments? A qualitative descriptive study

Development of shared decision-making resources to help inform difficult healthcare decisions

Promovendo a Saúde Da Pessoa Amputada: Uma Ação Educativa Chamada Conversa No Leito

Contact Info

Product

Resources

About