Patient perspectives on a personally controlled electronic health record used in regional Australia

Hanna, Lisa; Gill, Stephen D.; Newstead, L; Hawkins, Melanie; Osborne, Richard H.

doi:10.1177/1833358316661063

Cited by 39 publications

(32 citation statements)

References 25 publications

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“…Mairoana et al [19] found that patients are mostly willing to assign access rights to primary care providers and other clinicians. This corresponds with findings by Hanna et al [13] revealing that health data in EHRs might be most useful when new physicians have access to these information. However, on-going experience reduces concerns about data privacy by more than half [5].…”

Section: Introductionsupporting

confidence: 90%

“…Nohl-Deryk et al [14] identify patients as driving force for the use of eHealth applications, which can be supported by studies revealing patients’ overall high acceptance towards and positive experiences with the use of EHRs [6, 7, 13, 15]. Patients report beneficial effects, such as that EHRs improve the understanding of both health problems and treatment decision, serve as memory aids, empower the patient, and make their consultation more efficient [6, 7, 13]. Additionally, improvements in the interaction between patients and physicians can be detected such as enhanced patient-physician-communication and enriched collaborative treatment processes [7, 16, 17].…”

Section: Introductionmentioning

confidence: 99%

“…Patients’ confidence in utilization of an EHR increases over times when frequently using this application [6]. Utilization could be facilitated by easy accessibility, compatibility for different devices, and availability of support systems [13]. Nevertheless, patients’ preferences regarding the design and technical realization of an EHR differ with regard to patient characteristics [8].…”

Section: Introductionmentioning

confidence: 99%

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How should electronic health records be designed? A cross-sectional study in patients with psoriasis

Klein

Augustin

Otten

2019

BMC Med Inform Decis Mak

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BackgroundElectronic health records (EHRs) are promising tools for routine care. These applications might not only enhance the interaction between patient and physician but also support therapy management. This is crucial in complex and chronic conditions like psoriasis. However, EHRs can only unfold their full potential when being accepted by the users. Therefore, this study aims to analyse how EHRs should be designed for patients with psoriasis and to identify differences between patient subgroups.MethodsWe developed a questionnaire on the acceptability of EHRs based on literature research and results from focus groups. Participants completed a paper-based or electronic version of the questionnaire. We recruited participants at an outpatient clinic as well as online via patient associations and a social media platform. We analysed data using descriptive statistics and bivariate analyses applying Chi-square and Fisher’s exact test.ResultsThe sample encompassed 187 patients with psoriasis. Data reveals that 84.4% of the participants can think of entering data into an EHR. Participants prefer entering data at home (72.2%) instead of entering data in the waiting room (44.9%) and using an own internet-ready device (laptop/computer: 62.6%; smartphone/tablet: 61.5%) instead of a provided device (46.0%). Altogether, 55.6% of participants would accept entering data on a monthly basis when this lasts between one and 10 minutes and further 27.8% would accept even longer lasting data entry. Data privacy is of great concern (e.g. patient should decide who has access to data: 96.7%). Subgroup analyses reveal differences with regard to age, educational level, burden due to psoriasis, number of internet activities, use of electronic questionnaires and mode of administration.ConclusionThe high acceptance of entering data is favourable for the implementation of EHRs. The results suggest technical and structural recommendations: Differences between subgroups support the development of flexible EHRs encompassing a basic module, which is expandable with further add-ons, and compatible to different devices. Furthermore, involving patients by entering data into an EHR requires that physicians communicate open-mindedly with the patient and consider data throughout decision-making. Patients should remain owner of their own health data and decide about its processing.

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Section: Introductionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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How should electronic health records be designed? A cross-sectional study in patients with psoriasis

Klein

Augustin

Otten

2019

BMC Med Inform Decis Mak

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“…However, ICT and eHealth interventions in healthcare represent a phenomenon that has come to stay. For example, personally controlled electronic health records have been found to be helpful in keeping patients informed and updated, and promote self-management (Hanna et al, 2017); symptom monitoring systems can help improve symptom relief (Oldenmenger et al, 2016). Therefore, it is important that the staff should be familiar with them.…”

Section: Discussionmentioning

confidence: 99%

Digital health support – a good thing, but not for me: experiences of family caregivers and healthcare staff

Henoch

Strang

Larnebratt

et al. 2020

British Journal of Guidance & Counselling

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There is an increased belief in the benefits of information and communication technologies (ICT) in healthcare, but the perceived benefits of ICT in family caregiver support need to be explored. This qualitative interview study aimed to describe how family caregivers and healthcare staff in COPD care experience ICT. The results showed that both family caregivers and staff had limited interest in ICT and stated that it might be better for a new generation but not for themselves. Both groups preferred face-to-face meetings instead of contact via ICT. Meeting the needs of an ageing population will require that health services adopt new technologies. Still, the importance of eye contact must not be underestimated, particularly when encountering fragile patients and their spouses.

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“…Information is one of the most important resources in hospitals, guiding clinical care and quality improvement, along with directing population health management (Hanna et al, 2017;Vieira et al, 2017;Wyatta, 1995). Clinicians must navigate a large quantity of information and knowledge to provide the best evidence-based care available (Flynn & McGuinness, 2010;Gibson et al, 2015;Williams et al, 2004).…”

Section: Information and Knowledge Management In Australian Hospitalsmentioning

confidence: 99%

Consequences of ineffective information and knowledge management (IKM) in hospitals: junior doctors’ perspectives

Evans

Miklošík

2020

Knowledge Management Research & Practice

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Information and knowledge represent important organisational assets. In healthcare environments, patient wellbeing depends on effective management of these assets. This paper describes junior doctors' perspectives of adverse consequences of ineffective information and knowledge management (IKM) practices. The research for this phenomenological study consisted of semi-structured interviews with ten junior doctors in public hospitals in Adelaide, South Australia. The reasons for ineffective IKM include limited access to information, inadequate clinical handover, inappropriate use of information systems, and incomplete documentation. Adverse medical events resulting from ineffective IKM practices include medication errors, delays in patient care or discharge, poor post-discharge care, confidentiality breaches, acting against patient wishes, disability or even death. Junior doctors regard health information systems and access to electronic patient medical records as important for improving IKM. Behaviour of staff often results in ineffective IKM and the paper suggests that an IKM-focused culture should be driven by hospital management.

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Patient perspectives on a personally controlled electronic health record used in regional Australia

Abstract: PCEHRs can produce tangible benefits for patients. However, maximum benefits will be realised when PCEHRs contain a complete collection of relevant health information and are carefully designed for easy use.

Cited by 39 publications

References 25 publications

How should electronic health records be designed? A cross-sectional study in patients with psoriasis

How should electronic health records be designed? A cross-sectional study in patients with psoriasis

Digital health support – a good thing, but not for me: experiences of family caregivers and healthcare staff

Consequences of ineffective information and knowledge management (IKM) in hospitals: junior doctors’ perspectives

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