Parental involvement in treatment decisions regarding their critically ill child: A comparative study of France and Quebec*

Carnevale, Franco A.; Canouï, Pierre; Cremer, R.; Farrell, Catherine; Doussau, Amélie; Seguin, Marie-Josée; Hubert, Philippe; Leclerc, F.; Lacroix, Jacques

doi:10.1097/01.pcc.0000269399.47060.6d

Cited by 72 publications

(126 citation statements)

References 6 publications

Supporting

Mentioning

118

Contrasting

Unclassified

Order By: Relevance

“…10,12,[21][22][23]26,27,31,[36][37][38] Our findings indicate that in actual conversations parents act in line with this preference. Most parents in our study made an effort to actively participate in the decision-making process, especially when their initial preferences regarding the course of treatment did not correspond with those of the medical team.…”

Section: Discussionsupporting

confidence: 68%

Talking With Parents About End-of-Life Decisions for Their Children

et al. 2015

View full text Add to dashboard Cite

show abstract

Section: Discussionsupporting

confidence: 68%

Talking With Parents About End-of-Life Decisions for Their Children

et al. 2015

View full text Add to dashboard Cite

show abstract

“…The complexity and impressive volume of information which is a prerequisite for parental involvement make parents feel dependant rather than autonomous [23] . This highlights the importance of the sociocultural context in understanding the practice of treatment decisions for critically ill children.…”

Section: Discussionmentioning

confidence: 99%

Family participation in childhood cancer care

Kästel

Enskär

2013

JNEP

View full text Add to dashboard Cite

Background: Child cancer care is becoming increasingly successful, the treatment brought more success through intensified therapy, but this development has not been easy to achieve due to the pain and anxiety that the treatment often causes. It is not possible to eliminate the chaos the family experiences, but it can be reduced through a deepened understanding of the situation. Purpose:The aim of the study is to highlight families views on participation in childhood cancer care. Method:A qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child´s illness. Findings:The families constitute a cornerstone in paediatric oncology care today, but the results indicate that all the various tasks and commitments for the families, sometimes entail too heavy a burden. They are in need of better support and clearer instructions to be able to cope with the situation including rules and measures concerning the child. Therefore, it is urgent to clarify who has the formal responsibility for medical consequences that might occur in connection with delegated responsibility. The study shows that there is a lack of pedagogical thought and a need to create a pedagogical model. Conclusion:There is a need for guiding principles and education for the parents, which would contribute to their increased confidence.

show abstract

“…34 Cultural context may influence the preferred type of involvement, varying from physicians largely making the decisions as in Latin America, 30 to decisions made mostly by parents as in Quebec, Canada. 35 Because of the retrospective nature of this study, it was difficult to measure accurately the relationship between the type of care given and the cultural and religious background of the families. However, because .85% of our Jewish population is religious and all our Arab families are Muslim and religious, we can assume that most neonates who died were born to religious families.…”

Section: Figurementioning

confidence: 99%

Neonatal End-of-Life Care: A Single-Center NICU Experience in Israel Over a Decade

2013

View full text Add to dashboard Cite

WHAT'S KNOWN ON THIS SUBJECT: Neonatal mortality rate and causes of death have been relatively stable in recent years. Decision-making practices preceding death of sick neonates affect the circumstances of death. These practices vary worldwide according to the team approach and local population background.WHAT THIS STUDY ADDS: Although our population is mostly religious, we observed a decline in maximal intensive care along with increasing redirection of care over a decade. Changes in the team approach and increasing level of parental involvement influence type and duration of treatment.abstract OBJECTIVES: To follow changes in the causes of neonatal deaths in the NICU at Hadassah Medical Center, Jerusalem, Israel, over a decade; to examine trends regarding types of end-of-life-care provided (primary nonintervention, maximal intensive, and redirection of intensive care, including limitation of care and withdrawal of life-sustaining treatment); and to assess the parental role in the decision-making process given that the majority of the population is religious. METHODS:All neonates who died between 2000 and 2009 were identified. The causes and circumstances of death were abstracted from the medical records. Trends in end-of-life decisions were compared between 2 time periods:

show abstract

Parental involvement in treatment decisions regarding their critically ill child: A comparative study of France and Quebec*

Cited by 72 publications

References 6 publications

Talking With Parents About End-of-Life Decisions for Their Children

Talking With Parents About End-of-Life Decisions for Their Children

Family participation in childhood cancer care

Neonatal End-of-Life Care: A Single-Center NICU Experience in Israel Over a Decade

Contact Info

Product

Resources

About