2013
DOI: 10.5430/jnep.v4n3p112
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Family participation in childhood cancer care

Abstract: Background: Child cancer care is becoming increasingly successful, the treatment brought more success through intensified therapy, but this development has not been easy to achieve due to the pain and anxiety that the treatment often causes. It is not possible to eliminate the chaos the family experiences, but it can be reduced through a deepened understanding of the situation. Purpose:The aim of the study is to highlight families views on participation in childhood cancer care. Method:A qualitative design, ap… Show more

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Cited by 7 publications
(4 citation statements)
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“…Physical needs that should be fulfiled by parents include nutrition, self-care, and being involved in nursing actions such as taking temperature and monitoring the child when receiving intravenous fluids and psychosocial needs by reading storybooks, playing with children, and activities that show the closeness of children and mothers. The results of this study are almost the same as the research conducted by Kastel and Enskar (2013) which showed that family participation in caring for children with cancer was related to fulfiling basic needs such as feeding and assisting with oral care in children except feeding with a tube and administering medication by injection.…”
Section: Discussionsupporting
confidence: 79%
“…Physical needs that should be fulfiled by parents include nutrition, self-care, and being involved in nursing actions such as taking temperature and monitoring the child when receiving intravenous fluids and psychosocial needs by reading storybooks, playing with children, and activities that show the closeness of children and mothers. The results of this study are almost the same as the research conducted by Kastel and Enskar (2013) which showed that family participation in caring for children with cancer was related to fulfiling basic needs such as feeding and assisting with oral care in children except feeding with a tube and administering medication by injection.…”
Section: Discussionsupporting
confidence: 79%
“…Children and parents need to feel involved and engaged in planning procedural care (Darcy, Knutsson, et al, 2014). Parents have reported that later on in the cancer trajectory, they consider themselves to be the experts on their own children’s needs and wishes and are willing to give advice to nurses on how to carry out procedures in the most efficient and painless way (Kästel & Enskär, 2013).…”
Section: Discussionmentioning
confidence: 99%
“…A literatura evidencia que a participação ativa das mães é de fundamental importância durante e após o tratamento, o que se estende para o período de recuperação do filho submetido ao TMO (Beattie & Lebel, 2011;Kastel & Enskar, 2014;Mazza et al, 2016). Nessa perspectiva, é essencial facilitar-lhes o acesso a recursos que as auxiliem a compreender o que está se passando com seus filhos e consigo mesmas.…”
Section: O Cuidado De Crianças E Adolescentes Após O Transplante De M...unclassified
“…Corroborando esses achados, no presente estudo a comunicação médico-paciente-cuidador foi descrita pelas participantes como deficitária. A literatura mostra que essa comunicação, do ponto de vista das mães cuidadoras, é fundamental para a aceitação e enfrentamento da doença de seus filhos, já que elas comumente encontram dificuldades desde o momento em que recebem o diagnóstico, prevalecendo o sentimento de culpa e tristeza (Kastel & Enskar, 2014).…”
Section: Foi Difícil Porque Eu Não Sabia O Que Era E O Pediatra Me In...unclassified