Obstacles to Transcultural Caring Relationships: Experiences of Health Care Staff in Pediatric Oncology

Pergert, Pernilla; Ekblad, Solvig; Enskär, Karin; Björk, Olle

doi:10.1177/1043454207308066

Cited by 52 publications

(89 citation statements)

References 42 publications

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“…Considering cultural identity, education, attention and empathy is necessary to be able to meet expectations from parents, even at times of organizational limitations in the time schedule [33] .…”

Section: Discussionmentioning

confidence: 99%

Family participation in childhood cancer care

Kästel

Enskär

2013

JNEP

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Background: Child cancer care is becoming increasingly successful, the treatment brought more success through intensified therapy, but this development has not been easy to achieve due to the pain and anxiety that the treatment often causes. It is not possible to eliminate the chaos the family experiences, but it can be reduced through a deepened understanding of the situation. Purpose:The aim of the study is to highlight families views on participation in childhood cancer care. Method:A qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child´s illness. Findings:The families constitute a cornerstone in paediatric oncology care today, but the results indicate that all the various tasks and commitments for the families, sometimes entail too heavy a burden. They are in need of better support and clearer instructions to be able to cope with the situation including rules and measures concerning the child. Therefore, it is urgent to clarify who has the formal responsibility for medical consequences that might occur in connection with delegated responsibility. The study shows that there is a lack of pedagogical thought and a need to create a pedagogical model. Conclusion:There is a need for guiding principles and education for the parents, which would contribute to their increased confidence.

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Section: Discussionmentioning

confidence: 99%

Family participation in childhood cancer care

Kästel

Enskär

2013

JNEP

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“…Their experience of pediatric oncological care ranged from 3 to 27 years, with an average of 10 years. These interviews were used to further explore nurses' experiences of overwhelming emotional expressions of grief and to verify the category of "differences in emotional expressions" that had emerged from focus group interviews in a previous study (Pergert et al, 2007). Another four nurses-three women and one man-had experience of caring for families in triage within the pediatric emergency setting.…”

Section: Data Sourcesmentioning

confidence: 99%

“…In the first part of the project (Pergert, Ekblad, Enskär, & Björk, 2007), the subcategory "differences in emotional expressions" emerged as an obstacle to transcultural caring relationships. Obstacles are conditions that hinder the social interaction between staff and families, and are usually caused by differences between them.…”

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confidence: 99%

“…Differences in emotional expressions include overwhelming emotional expressions of grief and anger, which have been found to be potential obstacles to transcultural caring relationships and a major concern for Swedish health care staff (Pergert et al, 2007). This study was conducted to further explore and elaborate on what is happening in transcultural care situations involving overwhelming emotional expressions.…”

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confidence: 99%

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Protecting Professional Composure in Transcultural Pediatric Nursing

et al. 2008

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In this qualitative study, we used grounded theory to explore the category of "overwhelming emotional expressions" that emerged in a previous study. Using theoretical sampling, 12 individual interviews were conducted with nurses in Swedish pediatric care. Overwhelming emotional expressions have been found to override nurses' professional preparedness; they continuously resolve this by protecting professional composure. Various strategies are used to protect professional composure, including rationalizing, controlled expression, power display, escape/avoidance, distancing, sharing, and management of space. Some of these strategies are similar to coping strategies. However, they differ in that they are about managing the situation and also include protecting the professional composure of the individual as well as the whole care situation. Nurses need to gain preparedness to meet overwhelming emotional expressions in transcultural care and to be aware of strategies for protecting professional composure so as to use them consciously and positively.

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“…Routines for involving parents in care have been found to be better in paediatric oncology units in Sweden compared to other units at children's hospitals [10] but there are barriers to this involvement that need to be overcome if parents are to be successfully involved in care. Linguistic, cultural, and religious differences as well as organizational obstacles hinder the development of rapport and caring relationships [11] and thus also parental involvement in care. In instances where providers and recipients of health care do not speak the same language, developing an effective caring relationship can be impeded [11] and an increase of the risk of serious medical events in paediatric care has also been found [12].…”

Section: Introductionmentioning

confidence: 99%

Protecting Family Interests: An Interview Study with Foreign-Born Parents Struggling On in Childhood Cancer Care

Pergert

Ekblad

Björk

et al. 2012

International Journal of Pediatrics

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Sweden's population is gradually changing to become more multiethnic and diverse and that applies also for recipients of health care, including childhood cancer care. A holistic view on the sick child in the context of its family has always been a cornerstone in childhood cancer care in Sweden. The purpose of this study was to gain knowledge about the experiences and main concern of foreign-born parents in the context of paediatric cancer care. Interviews were performed with eleven foreign-born parents and data were analysed using a classic grounded theory approach. Foreign-born parents often feel in a position of powerless dependence, but family interests are protected in their approaches to interaction with healthcare staff, through cooperation, contesting, and reluctant resigning. Healthcare staff need to listen to foreign-born parents and deal with their concerns seriously to prevent powerless-dependence and work for trustful cooperation in the common fight against childhood cancer.

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Obstacles to Transcultural Caring Relationships: Experiences of Health Care Staff in Pediatric Oncology

Cited by 52 publications

References 42 publications

Family participation in childhood cancer care

Family participation in childhood cancer care

Protecting Professional Composure in Transcultural Pediatric Nursing

Protecting Family Interests: An Interview Study with Foreign-Born Parents Struggling On in Childhood Cancer Care

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