Mother's awareness and attitudes towards prenatal screening for Down syndrome in Muslim Moroccans

Belahcen, Amina; Taloubi, M.; Chala, Sanaa; Izgua, Amal Thimou; Alaoui, A. Mdaghri

doi:10.1002/pd.4373

Cited by 11 publications

(12 citation statements)

References 16 publications

(16 reference statements)

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“…9.1% women gave positive answer of possibility of pre-natal screening test. This is similar to a study conducted by Belachen et al where Women who have a child with DS have low awareness of existing screening tests for the condition 23 .…”

Section: Resultssupporting

confidence: 90%

Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Fajar¹,

Yasir²,

Sukaina³

et al. 2022

PJMHS

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Background: Down syndrome or trisomy 21, is mostly associated with characteristic facial features, delayed physical growth and mild to moderate intellectual disability with co-morbidities. Not many people are well aware of facts related to down syndromes. Aim: To identify the level of awareness and knowledge among parents of school going down syndrome. Methodology: A descriptive cross-sectional survey conducted at special children’s schools in Islamabad and Rawalpindi, from February 2021 to March 2021. Sample size was 44. We adopted convenience non-probability sampling technique. Parents that fulfill the inclusion criteria i.e. school going down syndromes, 5 to 32 years of age and residents of Islamabad and Rawalpindi, in an interactive counselling session, keeping the questionnaire anonymous. After data collection it was entered in SPSS v25 for statistical analysis. Results: Analysis of the questionnaire regarding the Knowledge of physical features of a child with Down syndrome showed that most 97% of the people were aware about facial profile and nose. 65.9% people responded positively regarding their knowledge about small head, ears and nose. 88.6% had knowledge about wide, short hands and short fingers. 65.9 knew about single deep crease across palm. 88.6 told that Down’s children had long tongue. 45.5% knew they have squint. 88.6% have knowledge about loss of muscle tone. Regarding memory 45.5% knew they have poor memory while 93.2% knew they are slow learners. Conclusion: Our selected candidates are mostly well aware of this condition but there is still the need for spreading further awareness to overcome the problems faced by the child and for their better management. Keywords: Awareness, Down Syndrome, Communication

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Section: Resultssupporting

confidence: 90%

Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Fajar¹,

Yasir²,

Sukaina³

et al. 2022

PJMHS

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“…This is comparable to other studies which showed positive attitudes, in spite of poor knowledge about prenatal screening. 13,14 We found that the patients educational status did not guarantee good awareness about Down syndrome and the screening test. This is in contrast to another study which showed that higher education positively affected the knowledge of DS.…”

mentioning

confidence: 99%

Downs syndrome and its screening: how aware are we?

Nambiar

Roopa

Nisha

et al. 2018

Int J Reprod Contracept Obstet Gynecol

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Background: Down syndrome (DS) is the most common chromosomal abnormality found in live-born babies. The objectives of this study were to assess the knowledge, attitude and practices of pregnant women regarding Down syndrome and its screening. Methods: This was a prospective study done in the Department of Obstetrics and Gynecology, in a tertiary care hospital. All pregnant ladies who attended the antenatal clinic and consented for the study were included. A prevalidated questionnaire was given to these women and data was collected. Responses to pregnant women's knowledge, attitudes and practices were evaluated in a three-point scale of yes/no/ don't know. All correct answers or all but one correct answer was scored good and the percentage was calculated. Results: A total of 267 pregnant women were included in the study. Of the 267 women only 156 (58.4%) had heard about Down syndrome. Eighty five percent of the women unanimously agreed that Down syndrome babies had mental impairment. But only 21.1% patients had good knowledge score on Down syndrome. Eleven percent had good knowledge regarding Down syndrome screening tests. Almost sixty five percent of the women had the right attitude towards screening tests and 46.1% patients had followed good practice. Conclusions: Informed decision making rather than imposed decision making must be practiced. Compulsory and effective education regarding Down syndrome and its screening must be provided to all patients at the earliest antenatal visit. The gap between women's knowledge, theirs attitudes and practice has to be addressed to. Noninvasive prenatal testing might be the future and is quickly bring about a shift in the paradigm in prenatal screening.

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“…This finding is similar to other findings which showed positive attitudes. Most responders agreed to undergo first trimester (84%) or second trimester (80%) screening in a future pregnancy in study done by Amina et al 17 Most pregnant women (77.6%) had a positive attitude to Down syndrome screening in study done by Pruksanusak et al 18 78.9% and 64.7% had a positive attitude for screening tests in study done by Melania et al, and Nambiar et al, respectively. 9,11 Although 42.85% of the women were interested in DS screening and 23.04% were having good knowledge, only 14.75% had gone for screening tests.…”

Section: Discussionmentioning

confidence: 93%

Knowledge, attitude and practice of down syndrome screening among pregnant women attending clinic in Sharjah, United Arab Emirates

Salvi¹

2020

Int J Reprod Contracept Obstet Gynecol

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Background: Down syndrome (DS) is the most common chromosomal abnormality found in live-born babies. It is associated with mental retardation, physical disabilities and growth problems. Prenatal screening to identify genetic disorders gaining importance now a days. The aim of this study was to assess the knowledge, attitude and practice among pregnant women about prenatal screening of Down syndrome.Methods: This was a prospective study done in the department of obstetrics and gynecology in Prime Medical Centre, Sharjah. All pregnant women who attended antenatal clinic and gave the consent for the study were included. The study was conducted from April 2019 to September 2019. A self-structured questionnaire was given to these women and data was collected. Responses to pregnant women’s knowledge, attitude and practice were evaluated.Results: A total of 217 pregnant women were included in the study. Of the 217 women 64.97% had good knowledge about Down syndrome but only 23.04% women had good Knowledge regarding Down syndrome screening. Although 42.85% had right attitude towards screening but only 14.74% patients had followed good practice. Expensive test 43.65% and religious beliefs 25.39% were stated as major reasons for denial for screening tests.Conclusions: Pregnant women have good knowledge of Down syndrome but low awareness of screening tests. Although they had positive attitude towards screening test but less patients followed good practice.

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Mother's awareness and attitudes towards prenatal screening for Down syndrome in Muslim Moroccans

Abstract: Women who have a child with DS have low awareness of existing screening tests for the condition but have a positive attitude towards them.

Cited by 11 publications

References 16 publications

Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Knowledge and Awareness Regarding Trisomy 21 among Parents of School Going Down Syndromes in Islamabad and Rawalpindi: a Descriptive Cross-Sectional Study

Downs syndrome and its screening: how aware are we?

Knowledge, attitude and practice of down syndrome screening among pregnant women attending clinic in Sharjah, United Arab Emirates

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