Measurement of leisure time satisfaction in family caregivers

Stevens, Alan; Coon, David W.; Wisniewski, Stephen R.; Vance, David E.; Argüelles, Soledad; Belle, Steven H.; Mendelsohn, Aaron B.; Ory, Marcia G.; Haley, William E.

doi:10.1080/13607860410001709737

Cited by 79 publications

(65 citation statements)

References 27 publications

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“…Although the differences between raw values of time dedicated to obligatory activities were significant, the studies analyzed showed that time spent on care is longer for informal caregivers than for formal caregivers (24,33) , for spouses than for those who are not spouses of elderly receiving care (28,30,(32)(33) , for those living with individuals who receive care (12) , for lowincome caregivers (12) , for those who have health problems (26,33) , for those who rely on more than one caregiver (26) and for those who have less information about how to care, have little access to specialized medical care and reduced experience concerning the management of psychiatric and behavioral disorders associated with dementia (28,(30)(31) . There was an inverse relationship between time dedicated to care and the level of behavioral competence of those receiving care (12,19,(21)(22)34) . The time dedicated to obligatory activities is spent on support for IADLs and BADLs and on supervision when dealing with behavioral problems associated with dementia (20,22,28,30,32,34) .…”

Section: Resultsmentioning

confidence: 99%

“…There was an inverse relationship between time dedicated to care and the level of behavioral competence of those receiving care (12,19,(21)(22)34) . The time dedicated to obligatory activities is spent on support for IADLs and BADLs and on supervision when dealing with behavioral problems associated with dementia (20,22,28,30,32,34) . The increase in the number of hours dedicated to care, especially time for supervision, is also associated with the development of dementia (21)(22)(25)(26)(32)(33)(34) and advance in age of those receiving care (32) .…”

Section: Resultsmentioning

confidence: 99%

“…When released from obligatory activities, they tend to allocate the time that used to be spent on obligatory activities for discretionary activities, especially social ones performed outdoors (12) . Restriction to participation in leisure activities is a source of dissatisfaction, depressive symptoms and assessment of lack of social support (22) . The higher the number of hours spent on care, the higher the number of missed hours of paid work out of home (30) .…”

Section: Resultsmentioning

confidence: 99%

“…After one year, 37.4% still provided care at home; after two years, 22.2%. Of all 17 articles selected (12,(19)(20)(21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34) , five are of a psychometric nature and aim to derive indicators of validity of self-reported measures, compared to objective measures of time use (20)(21)(22)24,27) ; one (19) is a randomized double-blind clinical study in which the independent variable was a drug versus placebo administered to elderly with dementia and the dependent variable was time use by caregivers. Two are of a methodological nature (12,26) and, although not being psychometric studies, they contribute to the construction and improvement of instruments for time use measures.…”

Section: Resultsmentioning

confidence: 99%

“…The time dedicated to obligatory activities is spent on support for IADLs and BADLs and on supervision when dealing with behavioral problems associated with dementia (20,22,28,30,32,34) . The increase in the number of hours dedicated to care, especially time for supervision, is also associated with the development of dementia (21)(22)(25)(26)(32)(33)(34) and advance in age of those receiving care (32) . Obligatory activities of care are the ones that consume the most waking time of caregivers (12,19,24,27,32,34) , who tend to show dissatisfaction with the insufficient time spent on social activities and the insufficient time they have for themselves (23) .…”

Section: Resultsmentioning

confidence: 99%

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Time use by family caregivers of elderly with dementia: an integrative review

Carvalho

Néri

2018

Rev. Bras. Enferm.

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Objective: To describe the development of measures used between 1993 and 2016 to evaluate time use by family caregivers of elderly with dementia and to fi nd out the patterns of time use identifi ed in the literature. Method: An integrative review of articles was performed, indexed by the following terms: time use management, family caregiver and elderly. Results: A total of 17 articles were found, of which seven were methodological. Among these seven articles, fi ve were psychometric. The most frequently used measures were self-reporting (matrices, questionnaires and inventories), validated through objective measures of occurrence and duration. Longitudinal, prospective, clinical and correlational studies showed that care time covaries with the receptors' dependence and that the caregivers' subjective well-being is more affected by the time restriction to free choice activities than the burden resulting from obligatory activities. Final considerations: Valid self-reporting measures are widely used nowadays and they are considered to be effective to assess the objective and subjective costs of health care for dementia. Descriptors: Time; Dependence; Routine Activities; Long-lasting Care; Alzheimer's Disease. RESUMO Objetivo: Descrever a evolução das medidas utilizadas para a avaliação do uso do tempo por cuidadores familiares de idosos com demências, entre 1993 e 2016, e conhecer os padrões de uso do tempo identifi cados por essa literatura. Método: Revisão integrativa de artigos indexados pelos termos time use measurement, family caregiver e elderly. Resultados: Dezessete artigos, dentre os quais sete metodológicos. Dentre estes, cinco eram psicométricos. As medidas mais usadas foram de autorrelato (matrizes, questionários e inventários), validadas por medidas objetivas de ocorrência e duração. Estudos longitudinais, prospectivos, clínicos e correlacionais mostram que o tempo de cuidado covaria com a dependência do receptor e que o bemestar subjetivo do cuidador é mais afetado pela restrição do tempo para atividades de livre escolha do que pela sobrecarga decorrente das obrigatórias. Considerações fi nais: Medidas válidas de autorrelato são hoje amplamente usadas, consideradas como efi cazes para avaliar custos objetivos e subjetivos do cuidado nas demências. Descritores: Tempo; Dependência; Atividades Cotidianas; Assistência de Longa Duração; Doença de Alzheimer. RESUMEN Objetivo: Describir la evolución de las medidas utilizadas para la evaluación del uso del tiempo por cuidadores familiares de ancianos con demencias entre 1993 y 2016 y conocer los patrones de uso del tiempo identifi cados por esa literatura. Método: revisión integrativa de artículos indexados por los siguientes términos: time use measurement, family caregiver y elderly. Resultados: 17 artículos, entre los cuales siete metodológicos; de entre ellos, cinco eran psicométricos. Las medidas más usadas fueron de autoinforme (matrices, cuestionarios e inventarios), validadas por medidas objetivas de ocurrencia y duración. Los estudios longi...

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Time use by family caregivers of elderly with dementia: an integrative review

Carvalho

Néri

2018

Rev. Bras. Enferm.

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Long-term Care Placement of Dementia Patients and Caregiver Health and Well-being

Schulz

Belle

Czaja

et al. 2004

JAMA

321

272

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Context Placing a relative with dementia into a long-term care facility is common among caregivers. Placement transition and factors that affect caregiver health and well-being after placement of the patient are not well described. Objective To assess the impact of placing a relative with dementia in a long-term care facility on caregivers' health and well-being. Design, Setting, and Participants Prospective study from 1996 to 2000 of the placement transition in a sample of 1222 caregiver-patient dyads recruited from 6 US sites. A total of 180 patients were placed in a long-term care facility during the 18month follow-up period. Data collected before and after placement were analyzed to identify factors associated with placement, the nature of contact between caregivers and their institutionalized relatives after placement, and the relation of both of these factors to health outcomes among dementia caregivers. Main Outcome Measures Caregiver depression (symptoms on the Center for Epidemiological Studies-Depression [CES-D] scale; range, 0-60) and anxiety (State Trait Inventory; range, 10-40) and use of prescription medications for depression and anxiety. Results Caregivers who institutionalized their relative reported depressive symptoms and anxiety to be as high as they were while in-home caregivers. Overall CES-D scores for depression did not change from before to after placement (median [IQR], 15.0 [8-24.5] and 15.0 [7.7-28]; P=.64). Overall anxiety scores on the State Trait Inventory also did not change significantly (median [IQR], 22.0 [19-27] before vs 21.1 [18-27] after; P=.21). These effects were most pronounced among caregivers who were married to the patient (P=.02 for depression), visited more frequently (P=.01 for depression and PϽ.001 for anxiety), and were less satisfied with the help they received from others (P=.003 for depression and PϽ.001 for anxiety). The use of antidepressants did not change significantly before (21.1%) to after (17.9%) placement (P=.16). The use of anxiolytics before to after placement increased from 14.6% to 19% (P=.02), and nearly half of caregivers (48.3%) were at risk for clinical depression following placement of their relative. Conclusions The transition to institutional care is particularly difficult for spouses, almost half of whom visit the patient daily and continue to provide help with physical care during their visits. Clinical interventions that better prepare the caregiver for a placement transition and treat their depression and anxiety following placement may be of great benefit to these individuals.

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Cognitive reframing for carers of people with dementia

Vernooij‐Dassen

Drašković

McCleery

et al. 2011

Cochrane Database of Systematic Reviews

118

115

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Background The balance of evidence about whether psychosocial interventions for caregivers of people with dementia could reduce carers' psychological morbidity and delay their relatives' institutionalisation is now widely regarded as moderately positive (Brodaty 2003; Spijker 2008). Multi-component, tailor-made psychosocial interventions are considered to be particularly promising (Brodaty 2003; Spijker 2008). These interventions involve multiple mechanisms of action. In this review we focused solely on the effectiveness of one element within psychosocial interventions, cognitive reframing. Cognitive reframing is a component of cognitive behavioral therapy (CBT). In dementia care, cognitive reframing interventions focus on family carers' maladaptive, self-defeating or distressing cognitions about their relatives' behaviors and about their own performance in the caring role. Objectives The objective of this review was to evaluate the effectiveness of cognitive reframing interventions for family carers of people with dementia on their psychological morbidity and stress. Search strategy The trials were identified by searching (5 April 2009) the Cochrane Dementia and Cognitive Improvement Group Specialized Register, which contains records from major healthcare databases: The Cochrane Library, MEDLINE, EMBASE, PsycINFO, CINAHL and LILACS, ongoing trial databases and grey literature sources. For more detailed information on what the Group's specialized register contains and to view the search strategies see the Cochrane Dementia and Cognitive Improvement Group methods used in reviews. The Cochrane Library, MEDLINE, EMBASE, PsycINFO, CINAHL, LILACS and a number of trial registers and grey literature sources were also searched separately on 5 April 2009. Selection criteria Randomised controlled trials of cognitive reframing interventions for family carers of people with dementia. Data collection and analysis Three assessors (MVD, ID, JmC) independently judged whether the intervention being studied was documented in a trial; two assessors assessed trial quality.

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Measurement of leisure time satisfaction in family caregivers

Cited by 79 publications

References 27 publications

Time use by family caregivers of elderly with dementia: an integrative review

Time use by family caregivers of elderly with dementia: an integrative review

Long-term Care Placement of Dementia Patients and Caregiver Health and Well-being

Cognitive reframing for carers of people with dementia

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