Mary’s Little Worlds

Steenwinkel, Iris Van; Audenhove, Chantal Van; Heylighen, Ann

doi:10.1177/1049732314542808

Cited by 18 publications

(11 citation statements)

References 8 publications

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“…Coping strategies are mentioned in all 26 studies, including trying to ignore or hide difficulties, using humour, using creative expressions, avoiding stress, maintaining daily structure, staying active, focusing on what they can still do, finding meaningful ways to (re)engage and seeking social and religious support. In several of these studies, a shift in attitude to what was important for them in life is described, for example by paying more attention to ‘little things’ and living in the ‘now’ [ 67 , 73 , 83 , 86 , 88 , 89 , 95 , 101 , 102 , 105 , 110 , 116 , 122 ]. One of the participants voiced this concern as followed: “Take it as it is and live today” [ 100 ] (p. 276).…”

Section: Resultsmentioning

confidence: 99%

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Huizenga

Scheffelaar

Fruijtier

et al. 2022

IJERPH

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Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

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Section: Resultsmentioning

confidence: 99%

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Huizenga

Scheffelaar

Fruijtier

et al. 2022

IJERPH

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“…Such concerns within dementia studies have led to growing interest in a “person-in-environment” approach, driven by a more fluid and dynamic understanding of the person–place relationship (e.g. Blackman, 2006 ; McGovern, 2012 ; Van Steenwinkel et al ., 2014 ). For instance, in relation to the experience of outdoor and public spaces for people with dementia, Brorsson and colleagues ( 2011 ) draw on the work of the philosopher John Dewey to develop a transactional perspective, arguing that: The environment is not just a physical place; it also embraces social, cultural and political aspects and includes spatial and temporal dimensions.…”

Section: The Importance Of “Lived Place”mentioning

confidence: 99%

The lived neighborhood: understanding how people with dementia engage with their local environment

Ward

Clark

Campbell

et al. 2017

Int. Psychogeriatr.

100

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Background:In this paper, we report progress on “Neighborhoods: our people, our places” an international study about how people living with dementia interact with their neighborhoods. The ideas of social health and citizenship are drawn upon to contextualize the data and make a case for recognizing and understanding the strengths and agency of people with dementia. In particular, we address the lived experience of the environment as a route to better understanding the capabilities, capacities, and competencies of people living with dementia. In doing this, our aim is to demonstrate the contribution of social engagement and environmental support to social health.Methods:The study aims to “map” local spaces and networks across three field sites (Manchester, Central Scotland and Linkoping, Sweden). It employs a mix of qualitative and participatory approaches that include mobile and visual methods intended to create knowledge that will inform the design and piloting of a neighborhood-based intervention.Results:Our research shows that the neighborhood plays an active role in the lives of people with dementia, setting limits, and constraints but also offering significant opportunities, encompassing forms of help and support as yet rarely discussed in the field of dementia studies. The paper presents new and distinctive insights into the relationship between neighborhoods and everyday life for people with dementia that have important implications for the debate on social health and policy concerning dementia friendly communities.Conclusion:We end by reflecting on the messages for policy and practice that are beginning to emerge from this on-going study.

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“…For instance, Van Steenwinkel et al [ 10 ] conducted a study focusing on how the built environment contributes to a sense of home of older people living in different contexts in Belgium. Van Steenwinkel et al [ 11 ] investigated the sense of home among permanent and temporary residents of nursing homes in The Netherlands. Both studies concluded that a sense of home is a multifactorial phenomenon which is highly influenced not only by the (built) environment, but also by social and personal characteristics.…”

Section: Introductionmentioning

confidence: 99%

The Factors Influencing the Sense of Home in Nursing Homes: A Systematic Review from the Perspective of Residents

Rijnaard

Hoof

Janssen

et al. 2016

Journal of Aging Research

120

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Purpose. To provide an overview of factors influencing the sense of home of older adults residing in the nursing home. Methods. A systematic review was conducted. Inclusion criteria were (1) original and peer-reviewed research, (2) qualitative, quantitative, or mixed methods research, (3) research about nursing home residents (or similar type of housing), and (4) research on the sense of home, meaning of home, at-homeness, or homelikeness. Results. Seventeen mainly qualitative articles were included. The sense of home of nursing home residents is influenced by 15 factors, divided into three themes: (1) psychological factors (sense of acknowledgement, preservation of one's habits and values, autonomy and control, and coping); (2) social factors (interaction and relationship with staff, residents, family and friends, and pets) and activities; and (3) the built environment (private space and (quasi-)public space, personal belongings, technology, look and feel, and the outdoors and location). Conclusions. The sense of home is influenced by numerous factors related to the psychology of the residents and the social and built environmental contexts. Further research is needed to determine if and how the identified factors are interrelated, if perspectives of various stakeholders involved differ, and how the factors can be improved in practice.

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Mary’s Little Worlds

Cited by 18 publications

References 8 publications

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

The lived neighborhood: understanding how people with dementia engage with their local environment

The Factors Influencing the Sense of Home in Nursing Homes: A Systematic Review from the Perspective of Residents

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