Loneliness and social support of mothers of chronically ill children

Florián, Víctor; Krulik, Tamar

doi:10.1016/0277-9536(91)90045-e

Cited by 45 publications

(32 citation statements)

References 11 publications

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“…Esse achado confirma parcialmente a segunda hipótese apresentada no presente estudo e apóia considerações apresentadas na literatura, onde se observa que mães / familiares de crianças com doenças /deficiências crônicas possuem uma rede social menor do que as amostras de comparação (MATSUKURA, 2001;MIKULINCER;BUCHOLTZ, 1995). E diverge de outros que não encontraram diferenças no suporte social (DYSON, 1997;KRULIK, 1991).…”

Section: Discussionunclassified

Estresse e suporte social em mães de crianças com necessidades especiais

Matsukura

Marturano²,

Oishi³

et al. 2007

Rev. bras. educ. espec.

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RESUMO: o objetivo do presente estudo foi avaliar a associação entre estresse e suporte social em mães de crianças com necessidades especiais e mães de crianças com desenvolvimento típico, em famílias de baixa renda. Trata-se de estudo quantitativo com 75 mães de crianças com idade entre quatro e 8 anos, com renda familiar de até quatro salários mínimos, alocadas em dois grupos: mães de crianças com desenvolvimento típico e mães de crianças com necessidades especiais. As participantes responderam ao Inventário de Sintoma de Stress e ao Questionário de Suporte Social. Os resultados indicaram, em ambos os grupos, elevada porcentagem de mães estressadas. Mães de crianças com necessidades especiais contam com um menor número de pessoas suportivas. Observou-se associação negativa entre stress e satisfação com o suporte social. Discutese que o presente estudo confirma achados de pesquisas anteriores e identifica o papel do suporte social nos processos de adaptação familiar. A associação encontrada entre a satisfação com o suporte social e o estresse aponta para adequação de proposições e implantação de programas de intervenções em saúde para famílias de crianças com necessidades especiais.PALAVRAS CHAVE: mães; crianças com necessidades especiais; estresse; suporte social, famílias.ABSTRACT: the aim of this article is to assess the relationship between stress and social support in mothers of children with special needs, as contrasted with mothers of children with typical development, from low income families. In this quantitative study, participants included 75 mothers with children aged four to eight years, with income up to four minimum wages, divided in two groups: mothers of children with typical development and mothers of children with special needs. The mothers answered the Inventory of Stress Symptom and the Social Support Questionnaire. The results showed that mothers of both groups suffered stress. The mothers of children with special needs have a smaller number of people to support them. A negative relationship between stress and satisfaction with social support was observed. This study agrees with earlier research findings and confirms the importance of the role of social support in family adaptation processes. The association found between satisfaction with social support and the stress signals the importance of health intervention programs for families of children with special needs.

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Section: Discussionunclassified

Estresse e suporte social em mães de crianças com necessidades especiais

Matsukura

Marturano²,

Oishi³

et al. 2007

Rev. bras. educ. espec.

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“…1988; Grant & Whittell 2000). Informal support has been shown to be important for parents of children with disabilities (Bristol 1987; Beckman 1991; Trivette & Dunst 1992) while formal support from authorities has been shown to have less significance in terms of stress reduction (Waisbren 1980; Bristol 1987; Florian & Krulik 1991). In the present study, negative coping strategies had a significant role in the prediction of parental stress.…”

Section: Discussionmentioning

confidence: 99%

Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a Double ABCX Model

Saloviita

Itälinna

Leinonen

2003

J intellect Disabil Res

248

174

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The variables used in the present study were highly successful in accounting for parental stress. The results confirm the importance of intervening factors in explaining the stress. The single most important predictor of parental stress was the negative definition of the situation. In mothers, the negative definition was associated with the behavioural problems of the child while, in fathers it was connected with the experienced social acceptance of the child.

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“…Studies of adults with various problems suggest that social support from professionals can supplement or replace support from the informal social network (Auslander & Litwin, 1987). With regard to parents of infants and chronically ill children, the issue has been addressed from the opposite direction (i.e., the deleterious effects of lack of support or even nonsupportive behavior on the part of professionals; Florian & Krulik, 1991; Williams, 1993).…”

Section: Discussionmentioning

confidence: 99%

“…The networks of families with sick children tend to be smaller, the main difference being in the size of friendship networks (Kazak & Marvin, 1984). Parents of children who are ill or disabled report feeling lonely and isolated (Florian & Krulik, 1991; Fox & Feiring, 1985), and some report that their relationships with friends and family were affected adversely by the birth of a child with a disability (Kazak & Marvin). Network members, such as siblings and grandparents, may need support themselves (Prudhoe & Peters, 1995).…”

Section: Literature Reviewmentioning

confidence: 99%

Parental Anxiety Following Discharge From Hospital of Their Very Low Birth Weight Infants^*

Auslander¹,

Netzer²,

Arad³

2003

Family Relations

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The uncertainty regarding the future well-being of very low birth weight infants is a source of considerable anxiety for parents, even after discharge from the hospital. We identify factors related to postdischarge anxiety levels of parents of 65 infants. Infant's weight relative to gestational age; the presence of central nervous system complications; informational support; and a warm, caring attitude by hospital staff explained 35% of the variance in mothers' anxiety levels. Father's age, infant's gender, perception of the infant as problematic, and the availability of child care support explained 33% of the variance in fathers' anxiety levels. Practice implications, including both identification of high-risk groups and interventions aimed at bringing about change in specific factors, are discussed.

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Loneliness and social support of mothers of chronically ill children

Cited by 45 publications

References 11 publications

Estresse e suporte social em mães de crianças com necessidades especiais

Estresse e suporte social em mães de crianças com necessidades especiais

Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a Double ABCX Model

Parental Anxiety Following Discharge From Hospital of Their Very Low Birth Weight Infants^*

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Loneliness and social support of mothers of chronically ill children

Cited by 45 publications

References 11 publications

Estresse e suporte social em mães de crianças com necessidades especiais

Estresse e suporte social em mães de crianças com necessidades especiais

Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a Double ABCX Model

Parental Anxiety Following Discharge From Hospital of Their Very Low Birth Weight Infants*

Contact Info

Product

Resources

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Parental Anxiety Following Discharge From Hospital of Their Very Low Birth Weight Infants^*