“…Cross‐sectional survey Nordic Society of Pediatric Hematology and Oncology registry | n = 398 Nordic CCS (>1 year‐old at diagnosis, currently >13 years‐old) | - Current older age (>18 years) associated with higher fatigue compared to patients ages 13–18 years (14% vs. 6% with chronic fatigue, respectively, p < 0.05)
- Patients >18 years with chronic fatigue reported poorer physical health (p < 0.05) but better mental health (=0.001) than population controls
| moderate sample size, no controls data collection appropriate, reporting comprehensive, missing data described | 6 | x | x | | | Jones, 2011, Adolescent cancer survivors: identity paradox and the need to belong | Qualitative | N = 12 adolescent cancer survivors between the age of 12 and 21 at time of interview, post‐treatment | - Adolescent cancer survivors experienced both risk and protective factors after cancer treatment.
- Adolescents struggled to form an identity that included both their cancer and their survivor experience
- Adolescents attempted to find a way to belong and receive social support that promoted their health.
- Participants reported finding meaning and positive benefits from facing their disease.
| Research question clearly stated; qualitative approach clearly justified; study context clearly described; method of data collection clearly described; analysis appropriate for research question | 6 | x | | | |
Kim, 2013 Psychological distress in AYA survivors of childhood cancer in Korea Cross‐sectional survey‐based study | N = 223 Korean childhood cancer survivors, between 15–39 years of age. | - 20% of participants were classified as psychologically distressed
- Significant levels of psychological distress were associated with age, economic status, and time since diagnosis.
| Moderate sample size, no comparison population, data collection appropriate, Appropriate analysis, reporting clearly described | 4 | | x | | | |
Kim, 2014 Life after cancer Cross‐sectional survey‐based. | Korean adolescent survivors of childhood cancer (n = 223, diagnosed prior to age 19 years, current age 15–29 years), recruited from websites and advocacy groups | - Childhood cancer survivors perceive public stigma
- Increased perceptions of stigma associated with increased patient‐reported shame and self‐blame, and decreased patient‐reported social support and disclosure of cancer‐history.
- Patient reported shame, self‐blame, and poor social support associated with psychological distress.
| Moderate sample size, no control sample, data collection and analyses appropriate, reporting clearly described. | 6 | x | x | | | |
Kirchhoff, 2011, Physical, mental, and neurocognitive status and employmen... |
…”