Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Lown, E. Anne; Phillips, Farya; Schwartz, Lisa A.; Rosenberg, Abby R.; Jones, Barbara

doi:10.1002/pbc.25783

Cited by 109 publications

(129 citation statements)

References 185 publications

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“…With regard to clinical implications, regular screening for anxiety and related symptoms should be implemented in survivorship clinics in accordance with the standards of psychosocial care for children with cancer and their families(41, 42). Screening is particularly important in this population, as one study(36) found that adolescents did not volunteer information regarding concerns about sensitive topics, such as fertility, unless directly asked.…”

Section: Discussionmentioning

confidence: 99%

Anxiety Among Adolescent Survivors of Pediatric Cancer

McDonnell

Salley

Barnett

et al. 2017

Journal of Adolescent Health

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Purpose The purpose of this review was to synthesize current knowledge about anxiety among adolescent survivors of pediatric cancer and highlight areas for future research. Methods Systematic literature searches were conducted in five databases for articles published anytime before December 28, 2015. Manuscripts were reviewed by a team of six coders. Included manuscripts reported outcomes relevant to anxiety, worry, and posttraumatic stress in survivors of pediatric cancer (age at time of study: 10–22 years) who were off-treatment. Results Twenty-five articles met inclusion criteria. Included results were categorized into the following domains: posttraumatic stress, anxiety, cancer-related worry, and interventions. With the exception of posttraumatic stress, there was little research about anxiety in this population; however, studies generally indicated that adolescent survivors of pediatric cancer are at elevated risk for anxiety, posttraumatic stress symptoms, and cancer-related worry. Conclusions This review provides preliminary evidence that anxiety is a relevant, but understudied, psychosocial outcome for adolescent survivors of pediatric cancer. More research is needed to better understand the presentation of anxiety in this population, its effect on survivors’ quality of life, and possible areas for intervention.

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Section: Discussionmentioning

confidence: 99%

Anxiety Among Adolescent Survivors of Pediatric Cancer

McDonnell

Salley

Barnett

et al. 2017

Journal of Adolescent Health

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“…2,10 Some, particularly those treated with cranial radiation, experience social isolation and struggle in school and the workplace. 5,6,[11][12][13] Thus the practice of LTF care has grown at pediatric oncology centers in recent decades.…”

mentioning

confidence: 99%

Care Transitions in Childhood Cancer Survivorship: Providers' Perspectives

Mouw

Wertman²,

Barrington³

et al. 2017

Journal of Adolescent and Young Adult Oncology

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Purpose: Most adolescent and young adult (AYA)-aged childhood cancer survivors develop physical and/or psychosocial sequelae; however, many do not receive long-term follow-up (LTF) critical for screening, prevention, and treatment of late effects. To develop a health services research agenda to optimize care models, we conducted qualitative research with LTF providers examining existing models, and successes and challenges in maintaining survivors' connections to care across their transition to adulthood. Methods: We interviewed 20 LTF experts (MDs, RNs, social workers, education specialists, psychologists) from 10 Children's Oncology Group-affiliated institutions, and analyzed data using grounded theory and content analysis techniques. Results: Participants described the complexity of survivors' healthcare transitions. Survivors had pressing educational needs in multiple domains, and imparting the need for prevention was challenging. Multidisciplinary LTF teams focused on prevention and self-management. Care and decisions about transfer were individualized based on survivors' health risks, developmental issues, and family contexts. An interplay of provider and institutional factors, some of which were potentially modifiable, also influenced how transitions were managed. Interviewees rarely collaborated with community primary care providers to comanage patients. Communication systems and collective norms about sharing care limited comanagement capacity. Interviewees described staffing practices, policies, and informal initiatives they found reduced attrition. Conclusions: Results suggest that survivors will benefit from care models that better connect patients, survivorship experts, and community providers for uninterrupted LTF across transitions. We propose research priorities, framing attrition from LTF as a public health concern, transition as the central challenge in LTF, and transition readiness as a multilevel concept.

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“…screening for pediatric cancer survivors on an annual basis 39 , and that psychosocial follow-up in pediatric cancer survivors is one of 15 standards of care in pediatric psychosocial oncology 1 , both child and parent reports of child hrql should be obtained during routine screenings. Our findings indicate that particular attention should be paid to the hrql of survivors who are experiencing psychosocial family risks, female survivors, and for survivors who have experienced higher levels of treatment intensity, as these children are at the highest risk of poor hrql.…”

Section: Discussionmentioning

confidence: 99%

“…Survival rates for childhood cancer have improved dramatically in recent years as a result of rapid advancements in treatments 1,2 . Given this growing population of survivors, attention has been increasingly placed on adjustment and health-related quality of life (hrql) as children move from treatment into survivorship.…”

Section: Introductionmentioning

confidence: 99%

“…Although many survivors adapt quite well following cancer diagnosis and treatment 1 , there is evidence that the hrql of childhood cancer survivors suffers relative to that of other chronic disease groups and healthy controls 4,5 . Specifically, childhood cancer survivors are at risk of persistent physical, neurocognitive, and psychosocial late effects [6][7][8] .…”

Section: Introductionmentioning

confidence: 99%

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