Legal Support for Palliative Care Patients

Ezer, Tamar; Burke-Shyne, Naomi; Hepford, Kiera

doi:10.1016/j.jpainsymman.2017.03.025

Cited by 4 publications

(3 citation statements)

References 2 publications

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“…In Macedonia, Romania and Serbia, clients of paralegals reported increased awareness of their rights, as well as an increased willingness to challenge rights violations. In turn, clients described a decrease in the denial of care, harassment and other abuses by healthcare providers [ 20 ]. In Kenya, an assessment of a property rights programme for women, which included paralegal support, reported decreased HIV vulnerability [ 21 ].…”

Section: Discussionmentioning

confidence: 99%

Ensuring access to justice: the need for community paralegals to end AIDS by 2030

Hinman,

Sun,

Amon

2023

J Int AIDS Soc.

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IntroductionThe HIV response has long recognized that certain “key populations” such as individuals in detention, adolescent girls and young women, sex workers, people who use drugs, LGBTQ individuals, migrants and others face higher barriers to access to, uptake of, and retention in HIV prevention and treatment services. One approach to addressing these barriers is the training of community paralegals to advocate for the rights of individuals and to address discrimination in health settings.DiscussionCommunity paralegal programmes have been able to successfully address rights violations that impact access to health services and underlying determinants of health across a range of countries and populations, focusing upon issues such as discrimination and the denial of health services; unlawful detention of outreach workers, sex workers, persons who use drugs and men who have sex with men; and harmful traditional practices and gender‐based violence. In addition to resolving specific cases, evaluations of paralegal programmes have found that these programmes increased legal literacy among key populations at risk of HIV and increased understanding of human rights among healthcare providers, resulting in improved access to HIV services. Some evaluations have noted challenges related to the sustainability of paralegal programmes similar to those raised with community health worker programmes more broadly.ConclusionsTo achieve global HIV goals, funding for legal literacy and paralegal programmes should be increased and interventions should be rigorously evaluated. Efforts should target discrimination in access to HIV prevention and treatment and criminalization of key populations, two key barriers to ensuring access to HIV prevention and treatment services.

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Section: Discussionmentioning

confidence: 99%

Ensuring access to justice: the need for community paralegals to end AIDS by 2030

Hinman,

Sun,

Amon

2023

J Int AIDS Soc.

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“…13 A recent English study exploring unmet social welfare and advance planning legal needs for terminally-ill patients and their informal careers noted a lack of awareness of legal issues as a route to resolution. While there is extensive literature on human rights and palliative care, where legal rights and needs are addressed, the focus is generally on social security, discrimination, advanced planning, and family law 15 rather than participation in medical treatment decisions. An understanding of what enhances or obstructs the operationalization of legal rights from the perspective of patients, family members, and/or substitute decision-makers who have experience making medical treatment decisions at end of life is needed.…”

Section: Introductionmentioning

confidence: 99%

Operationalizing legal rights in end-of- life decision-making: A qualitative study

et al. 2021

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Background: For a patient’s legal right to make end-of-life treatment decisions to be respected, health care practitioners, patients and their substitute decision-makers must know what rights exist and how to assert them (or support others to assert them). Yet very little is known about what enhances or obstructs the operationalization of legal rights from the perspective of patients, family members and substitute decision-makers. Aim: To explore barriers and facilitators to the operationalization of rights in end-of-life decision-making from the perspectives of terminally-ill patients and family members and substitute decision-makers of terminally ill patients in Australia. Design: Semi-structured interviews (face to face and telephone) with patients, family or substitute decision-makers experienced in end-of-life decision-making completed between November 2016 and October 2017. A thematic content analysis of interview transcripts. Setting/participants: Purposive sampling across three Australian states provided 16 terminally-ill patients and 33 family and/or substitute decision-makers. Results: Barriers and facilitators emerged across three overlapping domains: systemic factors; individual factors, influenced by personal characteristics and decision-making approach; and communication and information. Health care practitioners play a key role in either supporting or excluding patients, family and substitute decision-makers in decision-making. Conclusion: In addition to enhancing legal literacy of community members and health practitioners about end-of-life decision-making, support such as open communication, advocacy and help with engaging with advanced care planning is needed to facilitate people operationalizing their legal rights, powers and duties. Palliative care and other support services should be more widely available to people both within and outside health systems.

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“…También capacitar al personal no sólo en temas éticos y de calidez de atención sino en el correcto diagnóstico, tamizaje, seguimiento de casos y gestión de servicios de personas con ET [12,13] . Finalmente, afianzar conocimientos bioéticos y promover la creación o adecuación de normas legales [14,15] que faciliten la labor del personal de salud respecto al trato digno del paciente terminal y si familia.…”

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Las personas con enfermedad terminal y la necesidad de cuidados paliativos: una deuda pendiente de los servicios de salud

et al. 2019

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On top of all competences that a healthcare professional should have achieved during his/her training, palliative care is a growing need for patients from different age groups affected with cancer, cardiovascular diseases, degenerative conditions, and the like. Palliative care is a huge challenge for healthcare services, because this requires adequate teamwork, human resources and adequately functioning systems. Management, public health, service integration, ethical dilemmas, and ethical issues are the main barriers that physicians taking care of terminally ill patients must deal with. One of our main strategies for tackling this situation is to consolidate educational programs, so healthcare professionals may become empowered with knowledge; so, they may disclose the need for humanizing healthcare of terminally ill subjects.

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Legal Support for Palliative Care Patients

Cited by 4 publications

References 2 publications

Ensuring access to justice: the need for community paralegals to end AIDS by 2030

Ensuring access to justice: the need for community paralegals to end AIDS by 2030

Operationalizing legal rights in end-of- life decision-making: A qualitative study

Las personas con enfermedad terminal y la necesidad de cuidados paliativos: una deuda pendiente de los servicios de salud

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