L’émergence du patient-acteur dans la sécurité des soins en France : une revue narrative de la littérature entre sciences sociales et santé publique

Mougeot, Frédéric; Robelet, Magali; Rambaud, Claude; Occelli, Pauline; Buchet-Poyau, Karine; Touzet, Sandrine; Michel, Philippe

doi:10.3917/spub.181.0073

Cited by 34 publications

(13 citation statements)

References 43 publications

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“…A Associação Francesa dos Hemofílicos desempenhou papel fundamental neste processo pois modificou sua postura tradicional de apoio aos médicos e instituições de saúde e assumiu a defesa dos pacientes, entrando com um processo coletivo para punir os culpados. Possibilitou também condições para que seus membros adquirissem expertise científica, aumentando o poder de participação nas políticas públicas (Géraldine;Fillion, 2009;Mougeot et al, 2018).…”

Section: O Histórico Da Participação No Sistema De Saúde Francêsunclassified

“…Ao mesmo tempo constata-se o desenvolvimento de expertises no campo dos direitos individuais e coletivos, na cultura de compartilhamento de experiências e saberes adquiridos com a vivência cotidiana das doenças e nos modos de ação com relação às políticas e sistemas de saúde. Consolidase a figura do paciente-ator ancorada no saber experiencial e na capacidade de diálogo com outros saberes (Flora, 2013;Mougeot et al, 2018).…”

Section: O Paciente-atorunclassified

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Democracia sanitária: avanços e resistências no processo de participação dos pacientes/usuários no sistema de saúde francês

Gama

Figueiredo²

2021

Saude soc.

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Resumo A discussão a respeito dos avanços dos cuidados em saúde passa pela questão da participação dos pacientes/usuários nas decisões a respeito de seu tratamento, dos seus direitos e de sua influência nas políticas públicas de saúde. O objetivo do presente artigo é fazer um breve histórico sobre a participação dos pacientes/usuários no sistema de saúde francês e apontar as principais conquistas e dificuldades presentes na atualidade. O artigo utiliza dados de arquivos oficiais, documentos produzidos por associações de pacientes e artigos de revistas especializadas. Na França, a participação dos pacientes faz parte de um cenário complexo que pode ser reconhecido no termo “Democracia Sanitária”, que surge a partir da aproximação do campo da saúde e da política, propondo o questionamento das relações de poder estruturadas entre os atores e da possibilidade de um debate entre ciência e democracia. A epidemia da aids na década de 80 acompanhada de vários escândalos sanitários propiciou uma ruptura no modelo tradicional de estruturação das relações no campo da saúde produzindo uma mudança do status do paciente, de seu papel e de sua própria identidade através do fortalecimento do movimento associativo.

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Section: O Histórico Da Participação No Sistema De Saúde Francêsunclassified

Section: O Paciente-atorunclassified

Democracia sanitária: avanços e resistências no processo de participação dos pacientes/usuários no sistema de saúde francês

Gama

Figueiredo²

2021

Saude soc.

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“…Les crises sanitaires ont transformé le parcours du patient par l'émergence du patient-acteur, qui contribue à la sécurité des soins et à révolutionner le système de santé (Mougeot et al 2018). Outre le rôle joué par le patient, la littérature présente la crise selon quatre caractéristiques récurrentes : la rupture de la continuité des activités usuelles, la contrainte temporelle de gestion, l'ambiguïté et l'incertitude quant à la situation et la gravité de la situation (Cros, Lombardot, et Vraie 2019).…”

Section: Les Crises Sanitaires : De La Veille à La Traçabilité Conveunclassified

L’adoption d’un système d’information à l’hôpital dans le contexte de la crise sanitaire du coronavirus

Garidi

2020

Logistique & Management

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Les établissements hospitaliers en France traversent une crise sans précédent, la forte progression de la pandémie de la COVID-19 bouscule les processus de management et plus particulièrement la gestion des flux des patients. Peu de travaux ont étudié l'adoption des TIC dans un contexte de crise marqué par une forte affluence des patients. C'est là que réside l'intérêt de notre contribution scientifique, dont la finalité est d'apporter une compréhension des leviers et freins à l'adoption d'un système d'information par les établissements hospitaliers dans le cadre de la crise sanitaire du coronavirus. Ensuite notre objectif sera d'apporter un éclairage aux hôpitaux sur les déterminants actionnables pour une meilleure gestion et traçabilité des flux tendus des patients atteints. Notre étude adopte une approche qualitative basée sur 22 entretiens semi-directifs réalisés avec les utilisateurs du système d'information pour le suivi des victimes de situations sanitaires exceptionnelles (SI-VIC) SI-VIC. hospital adoption of information systems adoption in the context of the coronavirus health crisis context ABSTRACT France's hospitals are going through an unprecedented crisis the strong progression of the COVID-19 pandemic is challenging management processes and more, particularly patient flow management. Few studies have studied examined the ICT adoption in a crisis context marked by a high influx of patients. This is where the interest of our scientific contribution lies, whose purpose is to provide an understanding of the levers for and obstacles to the information system adoption by hospitals in the context of the Coronavirus health crisis context. our objective will be to shed light on the determinants that can be used by hospitals to better manage and trace the just-in-time affected patients' flows. Our study adopts a qualitative approach based on 22 semi-directed interviews carried out with users of the information system for monitoring victims of exceptional health situations (SI-VIC).

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“…This finding mirrors the results of Mougeot et al which illustrate that, most often, patient participation does not extend beyond the information and consultation stage. [27] However, according to Ninacs, empowerment requires a combination of the following capacities: participation, know-how, self-esteem and critical thinking. [28] The notion of empowerment as synonymous with adherence, as perceived by the caregivers interviewed, associated with the idea of the patient as actor, runs counter to this definition of support for empowerment.…”

Section: Domaine 5: Beliefs About Consequencesmentioning

confidence: 99%

French Health professionals’ attitudes about patient empowerment in the cancer care pathway

Verot

Regnier

Feld

et al. 2019

CNS

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Objective: France is experiencing a shift in health policy. The purpose of this article is to describe how cancer care health professionals define patient empowerment, describe modalities of care of the cancer patient treated by intravenous means and identify avenues for reflection on the specific challenges facing patient-centered care, from the perspective of changes in practices in the cancer care pathway.Methods: 19 individual, semi-structured interviews with health professionals working in cancer care facilities were analyzed in a qualitative study, using the Theoretical Domain Framework linked to the COM-B model.Results: The organization of care is governed by three factors. First of all, the cancer care system focuses on the strictly curative aspect of this disease. All devices lead to management centered on the pathology, and not on the patient as a whole. Secondly, the fact that the patient suffers from cancer modifies the attitudes and representations of caregivers towards the patient. Cancer introduces a relational bias in each of the stakeholders. Thirdly, the current organization of nursing care maintains paternalistic and prescriptive care in the cancer care pathway. Only new nursing jobs (coordinating nurses or pivot nurses) suggest the possibility of switching to patient-centered care. The analysis from TDF linked to the COM-B model shows that the strategy of implementing a new tool to measure the level of patient engagement, in routine nursing care, must focus on the reflective opportunity and motivation of the stakeholders.Conclusions: Caregivers should be acculturated to patient empowerment. TDF linked to the COM-B model can make it possible to think about how to prepare and adapt this change in practice at several sites of cancer treatment. Training adapted to the context to familiarize current caregivers with this new form of care is currently being implemented. To succeed, acculturating current health care providers to this new form of care, while offering them a tool to objectively assess the level of patient empowerment would undoubtedly foster their involvement in supporting patient empowerment, while allowing them to evaluate the time required to integrate this type of care.

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L’émergence du patient-acteur dans la sécurité des soins en France : une revue narrative de la littérature entre sciences sociales et santé publique

Cited by 34 publications

References 43 publications

Democracia sanitária: avanços e resistências no processo de participação dos pacientes/usuários no sistema de saúde francês

Democracia sanitária: avanços e resistências no processo de participação dos pacientes/usuários no sistema de saúde francês

L’adoption d’un système d’information à l’hôpital dans le contexte de la crise sanitaire du coronavirus

French Health professionals’ attitudes about patient empowerment in the cancer care pathway

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