Innovative education for people with chronic kidney disease: an evaluation study

Abstract

SUMMARY Background An innovative Community Kidney Service has been running since 2016 in four health regions in East London, United Kingdom. This paper focuses on the patient education (self‐management) programme within the service. Objective To understand the experiences of people with stage 1–3b chronic kidney disease invited to individual or group education sessions. To assess the usefulness of the programme's educational resources to primary care nurses. Design A mixed‐method project. A steering group involving patients shaped both survey and interview questions. Participants Paper surveys (n = 266) were sent to patients 7–19 months after they had attended. Semi‐structured interviews were undertaken with patients who returned the survey and indicated they were willing to be interviewed (n = 9). Survey links were sent electronically to primary care nurses. Results Fifty‐four surveys were returned from patients. The education session increased self‐reported knowledge about kidney disease and two‐thirds of patients reported making lifestyle changes. Analysis of interview data identified recognition of kidney disease, motivation to change and reliance on “experts” as key themes. Surveys were returned from 21 nurses. Most were aware of the community kidney service but only one‐third had used the education resources with their patients. Conclusion Secondary care nursing involvement in primary care‐based education for people with kidney disease is rare in the United Kingdom and internationally. This educational intervention, developed with patients, supports people to make changes that have the potential to reduce progression of kidney disease and our findings have significance for other teams working in chronic kidney disease management.

Intervening on health literacy by knowledge translation processes in kidney transplantation: A feasibility study

“…Innovative educational interventions to improve self‐management in patients suffering from chronic diseases have been highlighted in recent years (NHS England, 2019). This also applies to patients suffering from chronic kidney disease, and several studies have concluded the importance to support the patients to effectively manage their health challenges (Lopez‐Vargas et al, 2016; Rainey et al, 2020).…”

Self‐management program for adolescents with chronic kidney disease: A randomized controlled trial

“…Such changes, however, created a significant difference of only 52% in the self‐management domain, specifically in the knowledge level, which suggests that the administered self‐management training is effective in terms of raising knowledge levels. Literature has reported an increased level of disease knowledge in adolescents with chronic diseases who undergo training (Joboshi & Oka, 2017; Lin et al, 2012; Rainey et al, 2020; Welch et al, 2014). The analysis of the behavioural changes of the adolescents based on the self‐management assessment revealed changes in such domains as blood pressure monitoring, planning health‐improvement activities, the ability to make future‐oriented planning, and the ability to request information on the tests administered at follow‐up visits.…”

“…The analysis of the behavioural changes of the adolescents based on the self‐management assessment revealed changes in such domains as blood pressure monitoring, planning health‐improvement activities, the ability to make future‐oriented planning, and the ability to request information on the tests administered at follow‐up visits. A recent paper by Rainey et al (2020) concluded that patients should be trained and given continuous support if they are to develop self‐management skills. The present study provided adolescents with supportive information on self‐monitoring, effective coping mechanisms, and what to do in stressful circumstances related to their kidney disease as part of the self‐management training, which contributed to the positive change.…”

“…It is recommended that patients should be empowered by providing planned and repeated trainings in self‐management interventions (Novak et al, 2013; Rainey et al, 2020). A previous systematic review suggested long‐term follow‐up and clinical outcome monitoring to support the development of self‐management behaviours (Campbell et al, 2016).…”