Intervening on health literacy by knowledge translation processes in kidney transplantation: A feasibility study

Abstract

Background: Patients awaiting kidney transplantation need to be prepared ahead of the upcoming transplantation by developing targeted pre-and post-transplant knowledge. On this background, we designed a new health literacy intervention, including a film and a counselling session, based on motivational interviewing for dialysis patients provided by dialysis nurses.Aim: To explore patients' and nurses' experiences of the feasibility and acceptability of the intervention, focusing on the patient as a prepared knowledge actor.Design: An explorative qualitative study.Participants and Methods: Data included in-depth interviews with nine patients and three nurses who participated in the intervention. The interviews were audiotaped and analysed following Kvale and Brinkmann's method for thematic data analysis.Findings: Three main themes were identified: a different kind of health intervention stimulating new insight; a challenging kind of health conversation and changed relationships and increased security.

Systematic review on the involvement and engagement of patients as advisers for the organisation of organ transplantation services

“…Eighty-six articles were further excluded after abstract screening. Of the remaining 37 articles, 11 could finally be identified as suitable for the systematic review based on full-text screening45–55 (figure 2).…”

“…These articles originated from various countries, with most of them coming from the USA (n=5)45 47 48 53 54 and Norway (n=2) 51 52. Among these, patient involvement and engagement in the organisation of organ transplant services was analysed in context with the support of clinical experts (n=5),46 48–50 55 nurses (n=2)51 52 and other healthcare providers (n=2) 46 53. Medical students were also involved as professionals in one study54 (table 1).…”

“…The methods used to involve and engage patients included the codevelopment of a peer education programme (n=6)45–47 50 52 53 or a communication tool (n=1),51 the participation in representative or advisory groups or user panels in patient or steering committees (n=5)45 48 50 54 55 and a mix of different methods (n=1)49 (table 1). Only two articles described several methods to involve and engage patients 45 48…”

“…Some systematically reviewed articles investigated aspects that have not been described in the conceptual publications on patient involvement and engagement in other, different healthcare services 1 13–40. Examples of such aspects include dynamic changes in patients’ conditions and perspectives,53 emotional sensitivities in regard to discussions on deceased organ donation,50 inadequate or inconsistent information for patients,45 46 52 lack of digital system interoperability49 and financial barriers for institutions to implement patient involvement and engagement in the organisation of transplantation services,49 while financial barriers for patients were not identified as an important barrier to such an implementation according to the conceptual publications (online supplemental appendix 5).…”

Co-Creation of a Multi-Component Health Literacy Intervention Targeting Both Patients with Mild to Severe Chronic Kidney Disease and Health Care Professionals

“…The long-term effect of existing HL interventions, targeting self-management behaviors of CKD patients with LHL, often with digital strategies, is unknown [17]. These interventions do not aim to increase competences of HCPs and target groups often were not consulted during development [18][19][20][21][22][23][24][25].…”