Informational Needs of Breast Cancer Patients Related to Lymphedema

White, Jane A.; Matthews, Eric; Wallace, Lisa; Poormon, Lisa

doi:10.1097/01893697-201533010-00010

Cited by 4 publications

(9 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…These patients, regardless of cancer progression (metastatic or nonmetastatic), treatment stage (initiation or end of treatment), type of treatment (whether radiotherapy or chemotherapy or surgery) or occupation (whether they are employed or housewives), information about diagnosis and treatment is their most important information need, indicating the importance of this area and its subcategories among these patients. Previous studies have also addressed this issue [10,19,[26][27][28][29][30][31][32][33][34][35][36][37][38][39][40].…”

Section: Discussionmentioning

confidence: 99%

Information Needs of Women with Breast Cancer: A Review of the Literature

Sheikhtaheri

Nahvijou

Mashoof

2020

Front Health Inform

View full text Add to dashboard Cite

Introduction: Breast cancer is one of the most common cancers and a serious concern for women's health. Providing sufficient information to these patients increases the level of their participation and improves the quality of their care. Therefore, given the high survival rate of this cancer, it is necessary to understand their information needs. The purpose of this study was to evaluate the information needs of women with breast cancer.Material and Methods: The study is a systematic review of the literature. A search of the databases of PubMed, Scopus, Science Direct and ProQuest has been conducted on studies published in English over the period 2010-2017. 2881 articles were retrieved and evaluated for title, abstract and full text and after eliminating duplicate and unrelated cases, 18 articles related to the purpose of the study were selected. The articles were then analyzed using content analysis.Results: Of the 2881 retrieved articles, 18 studies on the information needs of patients with breast cancer were finally reviewed. According to these studies, most information needs were in the areas of diagnosis and treatment (first rank), daily activities (second rank), disease acceptance and self-image (third rank), personal and family life (fourth rank) and sexual health (fifth rank). The most important information needs in the field of diagnosis and treatment was outcomes and side effects of treatment, in the area of daily activities on the impact of disease on social activity, in the area of disease acceptance and self-image was breast reconstruction, body appearance and need for consultation, in the area of personal life, cancer risk for the family and in the area of sexual health was the effect of cancer on sexual attraction were the most cited needs.Conclusion:Providing information to patients is one of the most important factors in supporting cancer care and understanding the information needs is the first step in seeking information. Patients with breast cancer are interested in receiving information that will help them understand cancer, make decisions about it, and manage their treatment.

show abstract

Section: Discussionmentioning

confidence: 99%

Information Needs of Women with Breast Cancer: A Review of the Literature

Sheikhtaheri

Nahvijou

Mashoof

2020

Front Health Inform

View full text Add to dashboard Cite

show abstract

“…Decision-making and Patient Education Armer et al [49] offer a review of best practice guidelines for decision-making in assessment and patient education in risk reduction, management, and surveillance for BCRL. Several studies report patient education needs among those with BCRL [50][51][52][53]. African American breast cancer survivors (N = 15) report perceptions of lacking knowledge about BCRL [50].…”

Section: Psychological Health Factorsmentioning

confidence: 99%

“…African American breast cancer survivors (N = 15) report perceptions of lacking knowledge about BCRL [50]. Breast cancer survivors receiving BCRL education (N = 35) express a preference for highly detailed information [51]. Another report identified that breast cancer survivors (N = 15) view BCRL education at the time of lymphedema development to be ill-timed and prefer to receive information about BCRL precautions at the time of breast cancer diagnosis [52].…”

Section: Psychological Health Factorsmentioning

confidence: 99%

“…Because BCRL symptoms affect physical and mental well-being [ 54 ], education can be a psychosocial intervention for breast cancer survivors by reducing anxiety, improving perceptions of controlling lymphedema symptoms, and improving QOL [ 55 , 56 ]. Private teaching sessions are the preferred delivery method; however, the preferred timing for receiving the information is variable [ 51 ]. Researchers report that breast cancer survivors receiving a Web-based Multimedia Intervention (WBMI) ( n = 80) perceived higher quality self-care information than breast cancer survivors receiving pamphlet education ( n = 80).…”

Section: Psychosocial Issues In Bcrlmentioning

confidence: 99%

See 1 more Smart Citation

Psychosocial Issues Associated with Breast Cancer-Related Lymphedema: a Literature Review

Eaton

Narkthong

Hulett

2020

Curr Breast Cancer Rep

View full text Add to dashboard Cite

Purpose of Review Breast cancer-related lymphedema (BCRL) is a chronic disease affecting breast cancer survivors. The purpose of this article is to update the scientific literature regarding psychosocial issues associated with BCRL. Recent Findings Reports describe economic burdens, social support, sexuality, BCRL patient-education needs, and interventions to reduce BCRL symptoms and improve QOL among women with breast cancer. The psychosocial impact of BCRL may differ between younger and older women which has implications for age-related interventions to reduce the adverse psychosocial experiences of women with BCRL. We did not locate studies reporting the psychosocial impact of BCRL on male breast cancer survivors. Summary More psychosocial-based interventions are needed that target the concerns of those with BCRL, including age-related needs, sexual concerns, body image, and social support. Future research is indicated to study the psychosocial impact of BCRL among men. Researchers may consider how pandemic-driven health care policies affect the psychosocial needs of those with BCRL.

show abstract

“…16 The early patient education program can decrease the risk of lymphedema occurrence after BC surgery. 17 On the other side, patients with BC believed that they did not receive sufficient information about secondary lymphedema, 18,19 how to detect signs and symptoms, where to look for treatment and find lymphedema professionals, or how to do some preventive behaviors. 20,21 Many of these patients do not receive any education about lymphedema 14 and lose the opportunity to receive correct training at the right time.…”

Section: Introductionmentioning

confidence: 99%

Informational Needs in Patients With Breast Cancer With Lymphedema: Is It Important?

Dorri

Olfatbakhsh

2020

Breast Cancer�(Auckl)

View full text Add to dashboard Cite

Introduction: Lymphedema is one of the complications of breast cancer treatment. It has no cure yet and can affect the quality of life. This study aimed to identify and investigate informational needs, preferred delivery methods, and time of receiving information about lymphedema for these patients. Methods: One hundred participants were recruited through Lymphedema Clinic in Motamed Cancer Institute in Tehran, Iran, through convenience sampling and were asked to complete a self-administered survey. Data collection took place on all opening days between October 2018 and mid-March 2019. Results: Most of the participants were above 40 years, have a diploma, homemaker, and the average income of most of the participants (57.2%) was low. The importance of having lymphedema information was very high for them. Most of them wanted detailed information at diagnosis of breast cancer. The preferred information of delivery methods were private sessions and social networks. Conclusions: Patients with breast cancer who have lymphedema have high needs as regards concise lymphedema information. Private sessions with physicians and social networks can provide detailed information for them.

show abstract

Informational Needs of Breast Cancer Patients Related to Lymphedema

Cited by 4 publications

References 21 publications

Information Needs of Women with Breast Cancer: A Review of the Literature

Information Needs of Women with Breast Cancer: A Review of the Literature

Psychosocial Issues Associated with Breast Cancer-Related Lymphedema: a Literature Review

Informational Needs in Patients With Breast Cancer With Lymphedema: Is It Important?

Contact Info

Product

Resources

About