Information needs of patients with incurable cancer

Voogt, Elsbeth; Leeuwen, Anna F. van; Visser, Adriaan; Heide, Agnes van der; Maas, P.J. van der

doi:10.1007/s00520-005-0823-6

Cited by 60 publications

(64 citation statements)

References 16 publications

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“…This implies explaining individual, prognostic factors [256,257], which, in the case of melanoma, include depth of penetration and other prognostic parameters of the primary tumor as well as possible lymph node involvement or presence of metastatic disease [17].…”

Section: Stage and Prognosismentioning

confidence: 99%

Malignant Melanoma S3‐Guideline “Diagnosis, Therapy and Follow‐up of Melanoma”

Pflugfelder

Kochs

Blum

et al. 2013

J Deutsche Derma Gesell

180

148

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Section: Stage and Prognosismentioning

confidence: 99%

Malignant Melanoma S3‐Guideline “Diagnosis, Therapy and Follow‐up of Melanoma”

Pflugfelder

Kochs

Blum

et al. 2013

J Deutsche Derma Gesell

180

148

View full text Add to dashboard Cite

“…In this self-assessment, 16% marked a grade less than or equal to 5 points and 84% marked a grade greater than 5, it is noteworthy that 32% opted by the grade 10. In what concerns the communication about the disease, according to 89% of the patients the physician was careful when informing the diagnosis and provided adequate explanations to their understanding, while in the other extreme of the scale, 11% understand that the physician did not fulfill these requirements.…”

Section: Resultsmentioning

confidence: 99%

“…However, one study pointed out that many would like to receive more information than they had received 10 . The clarifications contribute for the previous experiences of family members about death and the end of life not to have a negative influence in the moment of decision 11 .…”

Section: Discussionmentioning

confidence: 99%

Percepção de pacientes oncológicos sobre terminalidade de vida

et al. 2017

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With the aim of analysing the perception of cancer patients towards the end of life, a questionnaire was applied to 100 oncologic patients, of which 85% were unaware of living will/advance directives, 81% were unaware of the terms palliative care and 70% were unaware of order to not reanimate. After clarifying the meaning of the terms used, 62% agreed to make living will/advance directives, 82% to receive palliative care at home and 64% to be reanimated in any situation, but the majority (73%) disagreed with the practice of futility. Only 11% reported inadequacies in the communication of their diagnosis by the physician. The fact of having metastases elicited a broader reflection on the termination of life. The results allow to infer that it is necessary to encourage the discussion about termination of life to the population during patient care, as well to promote the respective training to health professionals since the undergraduate course. Keywords: Terminally ill. Oncology service, hospital. Palliative care. Living wills. Resuscitation orders. Resumo Percepção de pacientes oncológicos sobre terminalidade de vidaObjetivou-se analisar, por meio de pesquisa descritiva, a percepção de pacientes oncológicos diante da terminalidade da vida. Aplicou-se questionário para 100 pacientes oncológicos, dos quais 85% desconheciam testamento vital/diretivas antecipadas de vontade, 81% desconheciam cuidados paliativos e 70% desconheciam ordem de não reanimar. Após esclarecimento sobre os termos empregados, 62% concordariam em elaborar testamento vital/diretivas antecipadas de vontade, 82% concordariam em receber cuidados paliativos no domicílio e 64% em ser reanimados em qualquer situação, mas a maioria (73%) discordou da prática de distanásia. Apenas 11% referiram inadequação na forma de comunicação de seu diagnóstico pelo médico. A presença de metástases suscitou reflexão mais ampla sobre terminalidade da vida. Os resultados permitem inferir que é necessário incentivar a discussão sobre terminalidade da vida na população durante a assistência aos pacientes, bem como estimular o debate sobre o assunto durante a formação de profissionais de saúde. Palavras-chave: Doente terminal. Serviço hospitalar de oncologia. Cuidados paliativos. Testamentos quanto à vida. Ordens quanto à conduta (ética médica). ResumenPercepción de los pacientes oncológicos sobre la terminalidad de la vida Con el fin de analizar la percepción de los pacientes con cáncer frente al final de su vida, a través de una investigación descriptiva, se aplicó un cuestionario a 100 pacientes de cáncer, entre los cuales el 85% desconocía las directivas anticipadas de voluntad, el 81% desconocía los términos de cuidados paliativos y el 70% desconocía la orden de no reanimar. Después de la clarificación del significado de los términos utilizados, el 62% estaba de acuerdo para elaborar su testamento vital/directivas anticipadas de voluntad, el 82% para recibir los cuidados paliativos en el hogar y el 64% para ser restablecido en cualquier situación, pero la ma...

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“…Therefore, studies indicate that patients are more satisfied with the information giving by specialists. 12 The role of companions in oncology interactions increases the degree of usefulness of information given by the physician to the patient, i.e., companions participate actively in the interaction, asking clarifying questions. However, patients have a companion in only 20% of their oncology appointments.…”

Section: Discussionmentioning

confidence: 99%