Information needs and sources of family caregivers of home elderly patients

Hirakawa, Yoshihisa; Kuzuya, Masafumi; Enoki, Hiromi; Uemura, Kazunori

doi:10.1016/j.archger.2010.03.019

Cited by 48 publications

(105 citation statements)

References 16 publications

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“…Almost all studies have detected this need . Informal caregivers have pointed out the importance of improving communication with the professionals , which can be achieved through care websites coordinated by professionals . In their view, this feature allowed to communicate more effectively with the various professional groups.…”

Section: Informal Caregivers' Needsmentioning

confidence: 99%

The needs of informal caregivers of elderly people living at home: an integrative review

Silva

Teixeira

et al. 2013

Scandinavian Caring Sciences

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This integrative review offers important insight into the needs of informal caregivers, specifically for the elderly. The inclusive nature of integrative review method enabled us to provide a good understanding of underlying issues on the needs of informal caregivers. Challenges for the future are to broaden and enhance the scope of research in this area to provide effective support to intervention projects, services and care to informal caregivers.

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Section: Informal Caregivers' Needsmentioning

confidence: 99%

The needs of informal caregivers of elderly people living at home: an integrative review

Silva

Teixeira

et al. 2013

Scandinavian Caring Sciences

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“…Dementia CGs engage in various information behaviors within complex information use environments (defined below), but most existing research on CGs and information focuses on the more narrowly-construed information needs (e.g., Conley & Burman, 2011; Hirakawa, Kuzuya, Enoki, & Uemura, 2011; Thompsell & Lovestone, 2002; Wackerbarth & Johnson, 2002; Wald, Fahy, Walker, & Livingston, 2003). Information behaviors within information use environments (IUEs) include a broader spectrum of activities than needs, such as acquisition, management, search, scanning, and avoidance, and take into account changes over time in information activities and sources.…”

Section: Problem Statement and Research Questionsmentioning

confidence: 99%

“…Such approaches tend to focus on filling a gap in knowledge, whether or not that gap is perceived and/or acknowledged by the CG, or they reflect a tacit agenda of others for influencing CG action (e.g., if health care providers believe CGs need information about community-based dementia care). Most information-oriented examinations of CGs focus on information needs (e.g., Conley & Burman, 2011; Hirakawa, Kuzuya, Enoki, & Uemura, 2011; Thompsell & Lovestone, 2002; Wackerbarth & Johnson, 2002; Wald, Fahy, Walker, & Livingston, 2003). Some focus on materials used to provide information (e.g., van der Steen et al, 2011), while others focus on information providers or intermediaries (e.g., Abrahamson, Fisher, Turner, Durrance, & Turner, 2008).…”

Section: Introductionmentioning

confidence: 99%

Information use environments of African-American dementia caregivers over the course of cognitive–behavioral therapy for depression

Kazmer

Glueckauf

et al. 2013

Library & Information Science Research

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“…Information about relevant services 65,74,75,82,83,85,89,92,94,96,98 Need for an overview of available formal care services such as community psychiatric services, domestic help, caregivers' support groups, and insurance.…”

mentioning

confidence: 99%

“…Education/ counseling [59][60][61][62][63][64][65][66][67][68][72][73][74][75]79,80,82,[85][86][87][88][89][92][93][94][95][96][97] Need for specific information on medical and interpersonal aspects of the disease, meaningful counseling on dealing with behavioral problems, guidelines on dementia before and after diagnosis.…”

mentioning

confidence: 99%

Family Physician–Case Manager Collaboration and Needs of Patients With Dementia and Their Caregivers: A Systematic Mixed Studies Review

Khanassov

Vedel

2016

Ann Fam Med

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PURPOSE Dementia case management (CM) in primary care is a complex intervention aimed at identifying the various needs of patients with dementia and their caregivers, as well as the organization and coordination of care. A key element of CM is the collaboration of family physicians with case managers. We conducted a systematic mixed-studies review to identify the needs of the patientcaregiver dyad and the effects of CM. METHODSWe searched MEDLINE, PsycINFO, and EMBASE up to October 2014, regardless of the study design. Our main outcomes were needs of patients and their caregivers and the effects of CM on these needs. We used narrative syntheses to develop a taxonomy of needs and to describe the effects of CM on those needs. We used meta-analysis to calculate the prevalence of needs and the standardized mean differences to evaluate the effects of CM on the needs identified.RESULTS Fifty-four studies were included. We identified needs of the patientcaregiver dyad and needs of the patient and caregiver individually. CM addressed the majority of the identified needs. Still, some very common needs (eg, early diagnosis) are overlooked while other needs (eg, education on the disease) are well addressed. Fully establishing the value of CM is difficult given the small number of studies of CM in primary care.CONCLUSIONS There is good evidence that case managers, in collaboration with family physicians, have a pivotal role in addressing the needs of the patientcaregiver dyad. 2016;14:166-177. doi: 10.1370/afm.1898. Ann Fam Med INTRODUCTIONT he proportion of people with dementia is growing dramatically. According to the US Alzheimer's Association, by 2030, 50% of Americans aged 65 years and older will be diagnosed with dementia. 1 In Canada in 2011, 747,000 Canadians lived with cognitive impairment.2 Today, the combined costs are $33 billion per year, 1 and they are projected to increase to $872 billion by 2038. 3,4 Worldwide, dementia is the main contributor to disability-adjusted life years (11.2%), representing a greater burden than cerebral vascular accident (9.5%), heart disease (5.0%), or cancer (2.4%). 5People with dementia need help with challenging changes in behavior, memory, physical disability, and mood. 6 The main source of help is family caregivers, who often suffer from the burdens of caregiving and from depression and health problems. 7 It has been shown that early intervention makes the greatest difference in management of symptoms. 1 The World Health Organization states that it would be challenging to intervene without effective involvement of primary care. 8 Dementia case management (CM) interventions are becoming a central component of primary health care organizations in North America and Europe. [9][10][11][12] According to the 167Case Management Society of America, case management is "a collaborative process of assessment, planning, facilitation, care coordination, evaluation, and advocacy for options and services to meet an individual's and family's comprehensive health needs through communi...

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Information needs and sources of family caregivers of home elderly patients

Cited by 48 publications

References 16 publications

The needs of informal caregivers of elderly people living at home: an integrative review

The needs of informal caregivers of elderly people living at home: an integrative review

Information use environments of African-American dementia caregivers over the course of cognitive–behavioral therapy for depression

Family Physician–Case Manager Collaboration and Needs of Patients With Dementia and Their Caregivers: A Systematic Mixed Studies Review

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