Information use environments of African-American dementia caregivers over the course of cognitive–behavioral therapy for depression

Kazmer, Michelle M.; Glueckauf, Robert L.; Ma, Jinxuan; Burnett, Kathleen

doi:10.1016/j.lisr.2013.02.003

Cited by 10 publications

(8 citation statements)

References 48 publications

(50 reference statements)

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“…In a sustainable model where FCNs gain experience guiding the counseling sessions and interacting with the caregivers, enlisting experienced FCNs to train new FCNs would allow for the continuation of successful counseling aiming to improve the lives of caregivers. It may also be beneficial for the caregivers of any future intervention programs to form partnerships with other caregivers (Glueckauf et al, 2012; Kazmer et al, 2013). In such partnerships, caregivers can encourage each other, share stories and advice, and gain a feeling of community.…”

Section: Discussionmentioning

confidence: 99%

“…Through the counseling sessions, FCNs often developed strong bonds with caregivers and provided emotional support and a variety of resources to caregivers. These included information about outside help or alternative care, available sources from the local community or organizations, financial sources, and even the FCN's personal help (Kazmer, Glueckauf, Ma, & Burnett, 2013). When caregivers needed outside assistance and had limited access to it, it was helpful for the FCNs to introduce the caregivers to available resources for home care help, such as church respite programs, adult day cares, support groups, and alternatives to ALFs.…”

Section: Cbsc Tools: Skills and Resourcesmentioning

confidence: 99%

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Qualitative Analysis of Faith Community Nurse–Led Cognitive-Behavioral and Spiritual Counseling for Dementia Caregivers

et al. 2017

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This article presents themes emerging from semistructured interviews with dementia family caregivers in rural communities who participated in an integrative, cognitive-behavioral and spiritual counseling intervention, and with faith community nurses (FCNs) who delivered the intervention. The primary objectives of the counseling intervention were to ameliorate dementia caregivers' depressive affect and the severity of their self-identified caregiving and self-care problems. The qualitative portion of the study was intended to elicit caregivers' and FCNs' perceptions of the benefits and drawbacks of the intervention. We conducted interviews with seven FCN/caregiver pairs 4 times during the 6-month counseling process, totaling 56 interviews. Themes emerging from the interviews included caregivers' perception of burden and care partners' problem behavior; formation of therapeutic alliance between FCNs and caregivers; problem-solving skills, tools, and resources; caregivers' use of problem-solving strategies; spirituality in caregiving and counseling processes; FCNs' prior professional experience; and caregiver and FCN time constraints.

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Section: Discussionmentioning

confidence: 99%

Section: Cbsc Tools: Skills and Resourcesmentioning

confidence: 99%

Qualitative Analysis of Faith Community Nurse–Led Cognitive-Behavioral and Spiritual Counseling for Dementia Caregivers

et al. 2017

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“…Thus, caregivers often seek information independently (Barrett, 2004). Yet most research has examined the behaviors of individual patients (Abrahamson, Fisher, Turner, Durrance, & Turner, 2008), while relatively little has considered caregivers (for exceptions, see Kazmer, Glueckauf, Ma, & Burnett, 2013; Veinot, 2009b). Caregivers typically experience illness through another's body and lack access to patients' information sources, such as healthcare providers.…”

Section: Literature Reviewmentioning

confidence: 99%

Information behavior and social control: Toward an understanding of conflictual information behavior in families managing chronic illness

Brown

Veinot

2020

Asso for Info Science & Tech

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The relationship between information and control interests social scientists; however, much prior work has focused on organizations rather than families. Work on interactive information behaviors has also focused on organizations and on collaboration rather than conflict. Therefore, in families managing chronic illness, we investigated information behaviors in the context of health‐related social control and the impact of control on patient health behavior. We conducted a qualitative analysis of interviews with 38 family groups and 97 individuals over 2 years. Findings revealed conflictual information behavior, which led to competitions for control and influence between family members and patients. In response to perceived patient health behavior‐related problems, family members sought, shared, and used information for social control of patients by enforcing norms, leveraging expertise, performing surveillance, and structuring the environment. These behaviors clashed with patients' interests and perspectives drawn from their own information acquisition. Patients responded by assessing family‐presented information and using information to resist or appease norm enforcement, refute or agree with expertise, and permit or block surveillance. Over time, some patient behaviors changed; alternatively, patients blocked family access to information about themselves, or family members retreated. The results challenge presumptions of benefit and harmony that have characterized much prior information behavior research.

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“…Since its initial exposition, Taylor's framework has developed in principally two directions: the description of the Information Use Environment or IUE (Taylor, ); and the extension and testing of value‐adding processes. A number of information use environments have been explored, including those of caregivers (Kazmer, Glueckauf, Ma, & Burnett, ), managers (Simard & Rice, ), medical practitioners (Olatokun & Ajagbe, ), abused and neglected children (Hersberger, Murray, & Sokoloff, ), the home environment (Rieh, ), and inner‐city gatekeepers (Agada, ). Saracevic and Kantor (a, b) develop the notions of value of information, and value of information services in use in the direction of the relationship between value and relevance.…”

Section: Valuementioning

confidence: 99%

Embedded, added, cocreated: Revisiting the value of information in an age of data

Foster

Clough

2017

Asso for Info Science & Tech

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This article proposes that the value of information is a topic worth revisiting in the contemporary era. Although the topic has been of perennial interest to information professionals and others, since at the least the early 1980s, we believe that it is timely to revisit this question in the context of a more connected and networked environment of data, information, and knowledge. The principal argument is that existing models of information exchange and use do not sufficiently take account of the multiplicity of networked users as a source of value, for example, their implicit and explicit interactions with other users, and with the information system. We briefly review existing kinds of value that have been theorized, operationalized, and measured in the information science literature. Principally, these are the notions of information as embedded value; and information and information systems as adding value. To these notions we add the further notion of connected or cocreated value. We conclude our opinion article with a set of questions intended to orient future research into the question of the value of information in the contemporary era.

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Information use environments of African-American dementia caregivers over the course of cognitive–behavioral therapy for depression

Cited by 10 publications

References 48 publications

Qualitative Analysis of Faith Community Nurse–Led Cognitive-Behavioral and Spiritual Counseling for Dementia Caregivers

Qualitative Analysis of Faith Community Nurse–Led Cognitive-Behavioral and Spiritual Counseling for Dementia Caregivers

Information behavior and social control: Toward an understanding of conflictual information behavior in families managing chronic illness

Embedded, added, cocreated: Revisiting the value of information in an age of data

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