Individual quality of life in patients with leukaemia and lymphoma

Abstract

With increasingly sophisticated chemotherapy regimes being prescribed the quality of life of cancer patients has become a key outcome measure. Little has been reported concerning the experience of patients with haematological malignancy receiving chemotherapy. The objective of this study was to evaluate the clinical usefulness of a novel quality of life measure-the Schedule for the Evaluation of Individual Quality of Life-Direct Weighting (SEIQoL-DW) in a sample of patients with either leukaemia or lymphoma. Fifty-one patients from the haematology clinic and in-patient unit at The Royal Devon and Exeter Hospital completed the SEIQoL-DW; in addition, each patient completed the Hospital Anxiety and Depression Scale (HADS) and a ten item questionnaire covering aspects of their treatment and satisfaction with information provided. The practical application of the SEIQoL-DW is described and two patients quality of life profiles are illustrated for comparison. The relationship between quality of life, satisfaction with information provided and psychological distress as measured by the HADS is discussed.

Using a personalized measure (Patient Generated Index (PGI)) to identify what matters to people with cancer

“…There are five MQOL sub-domains: physical symptoms (items 1-3), physical well-being (item 4), psychological symptoms (items 5-8), existential (items [9][10][11][12][13][14], and support (items 15 and 16). The existential sub-domain captured aspects related to meaning of life considering the last 2 days.…”

“…The literature indicates that multi-item questionnaires [11][12][13] correlate only moderately with personalized measures indicating that standardized measures may not capture what is important to individuals. One such measure constructed to capture important concerns of the patient is the Patient Generated Index (PGI).…”

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

“…Diagnoses, prognoses and settings varied across studies. The most common diagnosis was cancer (n = 10) [15,19,20,24,30,31,[40][41][42]45] followed by neurological disorders (n = 8) [17,19,21,23,27,28,43,46].…”

The Effect of Family-Centered Empowerment Model on the Quality of Life of Patients with Leukemia

“…It affects different aspects of patient's quality of life including spiritual, mental, social and economic status and his/her sexual performance. During the recent years, quality of life of patients with cancer has been the main criteria when considering respond to treatment (4). Therefore, the aim of blood malignancy treatment is to increase patients' longevity and, to some extent, improve his/her abilities to keep living with an appropriate level of quality of life (5).…”