Individual and Contextual Determinants of Quality of Life in Adolescents With Congenital Heart Disease

Luyckx, Koen; Missotten, Lies Christine; Goossens, Eva; Moons, Philip

doi:10.1016/j.jadohealth.2011.11.007

Cited by 54 publications

(64 citation statements)

References 37 publications

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“…In another study on the individual and contextual determinants of quality of life in adolescents with heart disease, Luyckx et al. 54 concluded that the perceived level of health, the Sense of Coherence and parental support correlated positively with quality of life over time. These results confirm the importance of considering the biopsychosocial functioning of the adolescent with heart disease in the evaluation of their QoL, and the Sense of Coherence emerges as a valuable resource to be developed.…”

Section: Review Results and Discussionmentioning

confidence: 99%

Quality of Life and Congenital Heart Disease in Childhood and Adolescence

Bertoletti¹,

Marx²,

Júnior³

et al. 2013

Arquivos Brasileiros De Cardiologia

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Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can assist in decision making on the part of health professionals. Although many studies have been conducted to investigate the quality of life of children and adolescents with congenital heart disease, the results prove to be contradictory; while some studies show that congenital heart disease can impact the quality of life, others describe a better perception of quality of life among children and adolescents who suffer from the disease when compared with healthy control subjects. The purpose of this study is to review the literature on the assessment of health related quality of life in children and adolescents with congenital heart disease, in order to systematize the existing knowledge on this topic today. It is observed that research seeks to investigate aspects of personality in cardiac patients, their coping strategies used and perceived social support, aiming at better understanding the association of these variables with the level of quality of life in this population.

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Section: Review Results and Discussionmentioning

confidence: 99%

Quality of Life and Congenital Heart Disease in Childhood and Adolescence

Bertoletti¹,

Marx²,

Júnior³

et al. 2013

Arquivos Brasileiros De Cardiologia

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“…These results were explained by the fact that youngsters with such chronic disease have learned to cope with their problem which increased their manageability, besides having high existential implications that increases their meaningfulness. Moreover, a supportive home environment experienced by these adolescents emphasize specific life events as being more comprehensible, manageable, and meaningful hence, nurtured feelings of SOC (Luyckx, Missotten, Goossens, & Moons, 2012). More expected results were found for adolescents with epilepsy where decreased SOC was found in the long run, reflecting the experience of losing control during seizures and difficulty in assessing when to expect the next seizure.…”

Section: Soc Health Mental Health and Psychosocial Behaviormentioning

confidence: 86%

Salutogenesis: Sense of Coherence in Adolescence

Braun‐Lewensohn

Idan

Lindström

et al. 2016

The Handbook of Salutogenesis

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“…However, adolescents with CHD (especially in the case of moderate to complex lesions) are still confronted with substantial challenges (e.g., uncertainty regarding illness course and prognosis, physical limitations, school absences), putting them at risk for suboptimal psychological functioning (Karsdorp et al, 2007). Recent research has demonstrated that parental and peer support predicted psychological functioning in adolescents with CHD over time (Luyckx et al, 2012b).…”

Section: Studymentioning

confidence: 99%

“…Hence, parental support may be especially important for adolescents with a chronic condition, as parents need to support adolescents in increasingly taking care of themselves and their illness (Seiffge-Krenke, 2001). Parental support indeed negatively predicted depression and loneliness, and positively predicted quality of life 9 months later in adolescents with CHD (Luyckx et al, 2012a;2012b). In adolescents with T1D, parental support has been found to predict better treatment adherence (La Greca et al, 1995) and less depressive symptoms (Butler et al, 2007).…”

Section: Introductionmentioning

confidence: 99%

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

et al. 2015

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Research has consistently demonstrated that contextual support is crucial towards the psychological functioning of adolescents with chronic conditions. However, the literature has predominantly focused on parental support instead of adopting an integrated approach to parental and peer support. The present manuscript with two longitudinal studies in adolescents with Type 1 diabetes and congenital heart disease examined the extent to which different clusters of maternal, paternal, and peer support at baseline were related to well- and ill-being over time. In both studies, four clusters emerged: combined support, parental support, peer support, and lack of support. Follow-up longitudinal analyses indicated that especially combined support from parents and peers proved to be of crucial importance towards psychological functioning. The present studies demonstrated the value of a typological approach for assessing social support in adolescents with chronic conditions. In addition to focusing on parental support, future research should assess peer support as well in these adolescents.

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Individual and Contextual Determinants of Quality of Life in Adolescents With Congenital Heart Disease

Cited by 54 publications

References 37 publications

Quality of Life and Congenital Heart Disease in Childhood and Adolescence

Quality of Life and Congenital Heart Disease in Childhood and Adolescence

Salutogenesis: Sense of Coherence in Adolescence

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

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