Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

Oris, Leen; Seiffge‐Krenke, Inge; Moons, Philip; Goubert, Liesbet; Rassart, Jessica; Goossens, Eva; Luyckx, Koen

doi:10.1007/s10865-015-9680-z

Cited by 31 publications

(20 citation statements)

References 51 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The importance of peer support in addition to parental support has earlier been described by Oris et al [34], and this is in line with the findings in the present study. Some adolescents seemed to be unaware of the transition process and the future adult caregiver.…”

Section: Discussionsupporting

confidence: 94%

Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care

et al. 2017

View full text Add to dashboard Cite

The aim of the study was to explore what adolescents with congenital heart disease (CHD) view as important in the preparation for the transfer to adult care. We performed interviews in four focus groups with adolescents (14–18 years old) at four university hospitals in Sweden. Data was analysed using qualitative content analysis. The analysis revealed one main category; Becoming a manager of the condition and four subcategories; Sufficient knowledge about the health, Be a participant in the care, Parental support, and Communicate with others about the health. The adolescents’ ages differentiated the discussion in the groups. The older adolescents seemed to have more interest in transition planning, information and transfer. The younger described more frustrations about communication and handling the disease. Conclusion: To become a manager of the CHD in daily life, the adolescents want disease specific knowledge, which should be communicated in a developmentally appropriate way. Adolescents want to participate and be involved in the transition process. They need support and guidance in how to communicate their CHD. Parental support is fundamental but it change over time. Moreover, peer-support is becoming more significant during the transition process. What is Known: • Transition during adolescence and transfer to adult care for adolescents with CHD is complex, and there is a shift in roles. • Adolescents often have poor knowledge and understanding about their heart condition and the consequences. What is New: • Adolescents call for disease specific information regarding health issues of importance for them in daily life. • Communicating the disease with other is a challenge- peer support from other adolescents with CHD could be a facilitator.

show abstract

Section: Discussionsupporting

confidence: 94%

Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care

et al. 2017

View full text Add to dashboard Cite

show abstract

“…However, the relationship between adolescent assessment of parental support and adherence in the current study was relatively weak. Previous studies suggest that, in adolescents, it may be beneficial to consider the influence of both caregivers’ and friends’ support in predicting better adjustment to living with a chronic illness [ 59 , 60 ].…”

Section: Discussionmentioning

confidence: 99%

Multi-informant path models of the influence of psychosocial and treatment-related variables on adherence and metabolic control in adolescents with type 1 diabetes mellitus

et al. 2018

View full text Add to dashboard Cite

BackgroundWe assessed the associations between metabolic control and adherence and a broad range of adolescent and family characteristics (e.g., gender, family structure), treatment-related variables (e.g., disease duration, treatment modality), and psychosocial factors (e.g., symptoms of depression and anxiety, parental support, self-efficacy) in a nationwide study of Danish adolescents (age 12–17 years) with type 1 diabetes mellitus (T1DM).MethodsSixty-four percent of invited families participated by completing a survey and providing a blood sample. Two path models of associations between generic and diabetes-related family factors, adolescent self-efficacy, emotional difficulties, and metabolic control and adherence were tested, one for adolescents and one for caregivers. Demographic variables were included as covariates.ResultsBoth path models demonstrated a satisfying model fit. In both models, metabolic control was associated with adherence, age, and T1DM duration. In the adolescent model, metabolic control was also related to treatment modality, single-parent household, caregiver non-support, and anxiety, whereas in the caregiver model metabolic control was associated with family conflict and caregiver support. In both models, adherence was related to age, duration, treatment modality, family conflict, caregiver support, family functioning, and emotional difficulties of the adolescent. In the adolescent model, adherence was also related to adolescent self-efficacy, whereas in the caregiver model adherence was associated with adolescent gender and caregiver non-support and support. Adolescent self-efficacy, emotional well-being, and difficulties related to adolescent/caregiver interaction appeared to be particularly important, as indicated by their stronger association with adherence and/or metabolic control.ConclusionThe results highlight the value of applying a multi-informant approach to address the psychosocial well-being of adolescents with diabetes in a large national sample. Self-efficacy, emotional, and family-related difficulties are important aspects to address in both clinical care and future research regarding adolescents with T1DM.

show abstract

“…Oris et al (2016) showed peer involvement was a core contributor to psychosocial functioning for AYA with type 1 diabetes and congenital heart disease. Peer relationships were shown to improve psychosocial functioning, more so when parent support was present.…”

Section: Discussionmentioning

confidence: 99%

The Capture Gap: Implantable Cardioverter–Defibrillator Quality of Life

et al. 2018

View full text Add to dashboard Cite

We aimed to compare salient characteristics and antecedents of quality of life (QOL) in adolescents and young adults with implantable cardioverter–defibrillators (ICDs) from qualitative methods with quantitative measurement of QOL and correlations between QOL (PedsQL) and measured participant characteristics. Concurrent parallel mixed methods design was used to collect survey data from the PedsQL electronic health record, demographic questionnaire, and semistructured interview data. A convenience sample of 16 individuals with ICDs, aged 13 to 25 years, was obtained from a tertiary pediatric facility. Overall QOL and subdomains of physical, psychosocial, and academic/work were examined by PedsQL and visual analog scale. Select demographics were collected to develop a participant profile. Females with ICDs appear to be at risk of poor QOL given some unknown factors. Financial status of the individual and the family was positively related to QOL. For new ICD persons involved in physical activities that must be stopped, peer support appears to improve QOL.

show abstract

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

Cited by 31 publications

References 51 publications

Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care

Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care

Multi-informant path models of the influence of psychosocial and treatment-related variables on adherence and metabolic control in adolescents with type 1 diabetes mellitus

The Capture Gap: Implantable Cardioverter–Defibrillator Quality of Life

Contact Info

Product

Resources

About