Health-related quality of life questionnaire for polycystic ovary syndrome (PCOSQ-50): development and psychometric properties

Nasiri-Amiri, Fatemeh; Tehrani, Fahimeh Ramezani; Simbar, Masoumeh; Montazeri, Ali; Tahamtan, R A Mohammadpour

doi:10.1007/s11136-016-1232-7

Cited by 36 publications

(41 citation statements)

References 51 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…These results are consistent with previous research [9,[67][68][69] • Women with PCOS show impaired emotional well-being (in particular, anxiety and depression).…”

Section: Discussionsupporting

confidence: 93%

See 1 more Smart Citation

Body image, personality profiles and alexithymia in patients with polycystic ovary syndrome (PCOS)

Scaruffi

Franzoi

Civilotti

et al. 2018

Journal of Psychosomatic Obstetrics & Gynecology

View full text Add to dashboard Cite

Aim: Polycystic ovary syndrome (PCOS) is a common endocrine-metabolic disorder. It affects women's physical well-being and leads to great psychological distress. Indeed, women with PCOS show a compromised quality of life as well as impaired emotional well-being. The aim of the present study is to assess personality characteristics, body image, and alexithymia in women with PCOS. Materials and Methods: 59 women with PCOS and 38 healthy controls were administered the Toronto Alexithymia Scale, the Body Uneasiness Test, and the Minnesota Multiphasic Personality Inventory-2. Results: The PCOS group showed higher values of alexithymia and a higher body uneasiness. They also showed higher values on many Clinical, Content, and Supplementary scales of the Minnesota Multiphasic Personality Inventory-2. Discussion: It seems that physical appearance and bodily function have a central place in the minds of women with PCOS, as well as in their relationships. However, it is a body they find it hard to feel and with which they mostly feel uncomfortable. Their approach to the outside world seems to be characterized by a certain degree of immaturity, anger, hostility, and distrust. Low 4 self-esteem also seems to be connected to a certain tendency toward introversion and withdrawal. This leads to problems in social, professional, and intimate relationships.

show abstract

“…These results are consistent with previous research [9,[67][68][69] • Women with PCOS show impaired emotional well-being (in particular, anxiety and depression).…”

Section: Discussionsupporting

confidence: 93%

“…Symptoms include anovulation, irregular menstrual cycles, micropolycystic ovaries and clinical and/or biochemical hyperandrogenism (e.g., hirsutism, acne, alopecia) [8][9][10]. PCOS is also associated with obesity, and it is the leading cause of female infertility [11].…”

Section: Introductionmentioning

confidence: 99%

Body image, personality profiles and alexithymia in patients with polycystic ovary syndrome (PCOS)

Scaruffi

Franzoi

Civilotti

et al. 2018

Journal of Psychosomatic Obstetrics & Gynecology

View full text Add to dashboard Cite

show abstract

“…The most important was that the questionnaire was developed in Iran, thus requiring translation and revalidation in other communities. It seems that a well-designed questionnaire can be used in various communities after being fully translated and evaluated by the professionals in those communities (44). [7] role limitations due to emotional problems [8] perceived mental health Table 2: Extracted items from the review of the literature to design a questionnaire on "quality of life of mothers with gestational diabetes mellitus" I prefer to eat something I shouldn't, rather than tell someone that I have diabetes (45) I'm worried about whether I will miss work (45) I feel diabetes limits my career (45) I feel satisfied with my blood glucose control (47) Recording your blood glucose levels in your chart/diabetes diary when your health care personnel asks you to (49) I adjust insulin dose based on my blood glucose (49) My diet is repetitious and not diversified (34) Gestational diabetes has caused me not to enjoy my pregnancy (51) I feel that my pregnancy is an abnormal pregnancy (52) Table3.…”

Section: Discussionmentioning

confidence: 99%

Quality Of Life Questionnaire for women with Gestational Diabetes Mellitus (GDMQ-36): Development and Psychometric Properties

Mokhlesi

Simbar²,

Tehrani

et al. 2019

Preprint

Self Cite

View full text Add to dashboard Cite

show abstract

“…The most widely used and only validated PCOS-specific PRO, the PCOSQ, incorporates only one pain-related question on headaches. Pain items are also not included in PCOSQ-50, which was recently developed based on interviews with Iranian women [ 30 ].…”

Section: Discussionmentioning

confidence: 99%

Understanding polycystic ovary syndrome from the patient perspective: a concept elicitation patient interview study

Martin¹,

Halling

Eek

et al. 2017

Health Qual Life Outcomes

View full text Add to dashboard Cite

BackgroundThe aim of this study was to explore the need for a new disease-specific patient reported outcome (PRO) measure for use in clinical trials of drugs designed to target the underlying causes of polycystic ovary syndrome (PCOS), and in the process contribute to our understanding of the symptoms and impacts that define the patient experience with PCOS.MethodsSemi-structured interviews were conducted in 20 women diagnosed with PCOS according to the Rotterdam criteria who had not menstruated in the previous month. The relative importance of PCOS symptoms and impact concepts to patients was determined by analyzing the frequency of their expression in the interview transcripts. These insights were compared to clinicians’ perceptions of PCOS.ResultsPain- and discomfort-related symptoms accounted for the highest proportion (27.6%) of the 735 patient expressions, although clinicians did not consider pain to be important to patients with PCOS. The most frequently expressed individual symptoms were cramping (70% of patients; 14.7% of concepts), irregular menstruation (95% of patients; 12.2% of concepts), facial hair growth (75% of patients; 10.6% of concepts), heavy bleeding (70% of patients; 8.8% of concepts), infertility (70% of patients; 5.4% of concepts), and bloating (60% of patients; 5.2% of concepts). Cramping, heavy bleeding, and bloating were not identified by clinicians as being important to patients with PCOS. The impacts most frequently reported by patients with PCOS related to emotional well-being (e.g. anxiety/stress) and coping behaviors (e.g. acne medication, hair removal).ConclusionsThe only validated PCOS-specific PRO, the PCOSQ, does not capture some key PCOS symptoms and impacts expressed by patients with PCOS, most notably those related to pain and discomfort, bleeding intensity and coping behaviours. Furthermore, some key PCOS symptoms may be under-recognized in the clinic.Electronic supplementary materialThe online version of this article (doi:10.1186/s12955-017-0736-3) contains supplementary material, which is available to authorized users.

show abstract

Health-related quality of life questionnaire for polycystic ovary syndrome (PCOSQ-50): development and psychometric properties

Abstract: The PCOSQ-50 is a valid and reliable instrument for the assessment of quality of life of women with PCOS, capable of assessing some obscure aspects overlooked by previous HRQL questionnaires.

Cited by 36 publications

References 51 publications

Body image, personality profiles and alexithymia in patients with polycystic ovary syndrome (PCOS)

Body image, personality profiles and alexithymia in patients with polycystic ovary syndrome (PCOS)

Quality Of Life Questionnaire for women with Gestational Diabetes Mellitus (GDMQ-36): Development and Psychometric Properties

Understanding polycystic ovary syndrome from the patient perspective: a concept elicitation patient interview study

Contact Info

Product

Resources

About