Global Rating of Change Scales: A Review of Strengths and Weaknesses and Considerations for Design

Kamper, Steven J; Maher, C. G.; Mackay, Grant

doi:10.1179/jmt.2009.17.3.163

Cited by 986 publications

(893 citation statements)

References 59 publications

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“…Another limitation is that the patients on extended half-life factor products had been using those products for less time as they have only been available since 2014. The effects detected were small to moderate using Cohen's criteria [42], which makes them likely detectable and important to caregivers [46,47]. With more experience, the caregivers providing care for patients on extended half-life factor products may show larger effects and / or more effects across the HCI subscales.…”

Section: Discussionmentioning

confidence: 99%

Restless legs syndrome and its relationship with anxiety, depression, and quality of life in cancer patients undergoing chemotherapy

et al. 2010

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Introduction Extended half-life factor products have reduced annualized bleeding rates in hemophilia patients. The impact of extended half-life versus conventional factor products on hemophilia caregiver burden has not been investigated. This study aimed to evaluate caregiver burden in extended half-life versus conventional factor products for hemophilia A and B. Methods This cross-sectional web-based study of caregivers of people with hemophilia A or B was recruited from a panel research company and by word of mouth. Participants completed the Hemophilia Caregiver Impact measure, the PedsQL Family Impact Module (PedsQL), and the Work Productivity and Activity Impairment Questionnaire (WPAI). We also collected demographic, insurance coverage, and medical information related to the hemophilia patient(s). Burden differences were assessed using linear regression and matched cohort analyses. Results The sample (n = 448) included 49 people who were caring for people on extended half-life factor products. Worse caregiver burden was associated with more infusions per week and more bleeds in the past 6 months. Regression analyses suggested that caring for someone who is on a extended half-life factor product is associated with lower emotional impact (β = − 0.11, p < 0.05, Adjusted R 2 = 0.06), and shows a trend association with lower practical impact (β = − 0.09, p < 0.10, Adjusted R 2 = 0.05). The matched cohort analysis also revealed that people on extended half-life factor product had lower Emotional Impact and Practical Impact scores (t = − 2.95 and − 2.94, respectively, p < 0.05 in both cases). No differences were detected on the PedsQL or the WPAI. Conclusion The reduced required frequency of factor product infusions of extended half-life factor products appears to reduce the emotional distress and practical burden of caregiving. Future work should evaluate the longitudinal impact.

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Section: Discussionmentioning

confidence: 99%

Restless legs syndrome and its relationship with anxiety, depression, and quality of life in cancer patients undergoing chemotherapy

et al. 2010

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“…The GRCS is a measure of patient perception that asks respondents to rate the change in their symptoms. To minimize ambiguity and ensure valid information, the GRCS was worded as a conditionspecific and construct-specific functional scale that specifically referred to hip OA and physical function, based on the recommendations of Kamper et al 13 The question reads, "Please imagine how you would have described your level of function 9 weeks ago when you entered this trial. How do you rate your overall strength, endurance, and agility in performing activities today as compared to 9 weeks ago as far as your osteoarthritis of the left/right hip is concerned?…”

Section: Clinical Measuresmentioning

confidence: 99%

A Comparison of 3 Methodological Approaches to Defining Major Clinically Important Improvement of 4 Performance Measures in Patients With Hip Osteoarthritis

Wright¹,

Cook²,

Baxter³

et al. 2011

J Orthop Sports Phys Ther

295

246

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For rehabilitation professionals engaged in the treatment of osteoarthritis (OA), it is standard practice to perform objective assessments of physical function (using both physical performance and self-report measures) to obtain a picture of patient status. These assessments also serve as a baseline value for estimating changes (treatment effects) over time. While reliability and validity of some commonly used physical performance measures have been investigated in an OA population, most require further research regarding clinical utility and responsiveness. 14 Physical performance measures have often been criticized, as detailed testing of their measurement properties has not been extensively reported. 14,22,33 Measures of responsiveness have commonly been reported as statistically significant change scores, which are useful in establishing the threshold of change needed beyond measurement error. 10 Investigation of minimal clinically important differences (MCIDs) of physical performance measures is warranted, as these have become commonly used outcome measures in the treatment of OA. 8,12,17,[35][36][37] At present, the responsiveness (in terms of MCID) of the timed up-and-go (TUG) test, 40-meter self-paced walk test (40-m SPWT), 30-second chair stand (30 CST), and 20-cm step test has not been investigated in T T STUDY DESIGN: Prospective cohort study. T T OBJECTIVES:To establish the major clinically important improvement (MCII) of the timed upand-go test (TUG), 40-meter self-paced walk test (40-m SPWT), 30-second chair stand (30 CST), and a 20-cm step test in patients with hip osteoarthritis (OA) undergoing physiotherapy treatment. As a secondary aim, a comparison of methods was employed to evaluate the effect of method on the reported MCII. T T BACKGROUND: Minimal clinically importantdifference scores are commonly used by rehabilitation professionals to determine patient response following treatment. A gold standard for calculating MCII has yet to be determined, which has resulted in problems of interpretation due to varied results. T T METHODS:As part of a randomized controlled trial, 65 patients were randomized into a physiotherapy treatment group for hip OA, in which they completed 4 physical performance measures at baseline and 9 weeks. Upon completion of physiotherapy, patients assessed their response to treatment on a 15-point global rating of change scale (GRCS). MCII was estimated using 3 variations of an anchor-based method, based on the patient's opinion. T T RESULTS:A comparison of 3 methods resulted in the following change scores being best associated with our definition of MCII: a reduction equal to or greater than 0.8, 1.4, and 1.2 seconds for the TUG; an increase equal to or greater than 0.2, 0.3, and 0.2 m/s for the 40-m SPWT; an increase equal to or greater than 2.0, 2.6, and 2.1 repetitions for the 30 CST; an increase equal to or greater than 5.0, 12.8, and 16.4 steps for the 20-cm step test. T T CONCLUSION:The variation in methods provided very different results. This illustrates the impor...

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“…The scores were clustered in two groups: not improved (extremely worsened, much worsened, little worsened, and unchanged) and improved (little improved, much improved, and completely improved). The reliability of the 7-item GPE has been found to be excellent [16]. Additionally, a clinically important change of the PDI was used as an external criterion to test responsiveness in relation to perceived disability.…”

Section: Global Perceived Effectmentioning

confidence: 99%

Clinimetric properties of the EuroQol-5D in patients with chronic low back pain

et al. 2012

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Global Rating of Change Scales: A Review of Strengths and Weaknesses and Considerations for Design

Cited by 986 publications

References 59 publications

Restless legs syndrome and its relationship with anxiety, depression, and quality of life in cancer patients undergoing chemotherapy

Restless legs syndrome and its relationship with anxiety, depression, and quality of life in cancer patients undergoing chemotherapy

A Comparison of 3 Methodological Approaches to Defining Major Clinically Important Improvement of 4 Performance Measures in Patients With Hip Osteoarthritis

Clinimetric properties of the EuroQol-5D in patients with chronic low back pain

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