Getting personal: an exploratory study of intimate and personal care provision for people with profound and multiple intellectual disabilities

Carnaby, Steve; Cambridge, Paul

doi:10.1046/j.1365-2788.2002.00358.x

Cited by 38 publications

(36 citation statements)

References 24 publications

(21 reference statements)

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“…This type of contact rates as highly intimate on Carnaby and Cambridge’s [23] classification in their study of personal and intimate care. Intimate contact breaches privacy [24] but the two participants above expected it to be maintained during intimate contact.…”

Section: Resultsmentioning

confidence: 97%

Parasexuality in genitourinary investigations: a qualitative study

2014

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BackgroundGenitourinary investigations are performed on a large proportion of middle-aged and older men and the majority undergo investigations for prostate issues. The effects that genitourinary disease can have on men depend on the type of problem, investigations required and treatment including impotence, gynaecomastia and urinary incontinence that have lasting devastating physical, social and psychological effects.The aim was to explore older men’s experience and views of intimate and intrusive genitourinary investigations and specifically to develop hypotheses and theories concerning gender and sexuality issues in intimate genitourinary investigations.MethodsWritten informed consent was obtained for this qualitative study. Data were collected through one-off, semi-structured interviews involving 15 men in the first year following patient’s last urological procedure. Initially, multiple themes were identified and when analysed further concepts were repeatedly present. As the urological investigations were limited to men, gender and sexuality became prominent issues in the data.ResultsOn analysis, the term parasexuality appeared to explain the dynamic of the situation. Parasexuality is a modified form of sexuality which is channelled and limited to maintain propriety. This was not expressed as sexuality in its overt, explicit sense, but instead a type of covert sexuality where professional boundaries are maintained but nonetheless undercurrents remain. This managed version of sexuality created a common currency by which interactions between staff and patients could take place safely.Feeding into parasexuality were gender role stereotypes and for some of the participants this reflected their own experience, context, historical and cultural norms. Intimate contact in the form of exposure and handling of the participants' genitalia during the investigations particularly challenged the boundaries of parasexuality. In order to remain parasexual, many of the participants suppressed their sexuality. Viewing staff as professional was an additional strategy used by participants to limit any sexuality as parasexuality.ConclusionThis study has contributed towards the appeal for more studies to examine privacy perceptions of patients in genitalia-related care, however, it is by no means definitive.Parasexuality goes some way to explain the dynamics of communication between older men and health care professionals during genitourinary investigations.

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Section: Resultsmentioning

confidence: 97%

Parasexuality in genitourinary investigations: a qualitative study

2014

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“…Generic care staff require training about the needs of people with ID and staff working in services for people with ID need training about the ageing process and agerelated ill health. Particular issues include communication, personal and intimate care, managing loss and bereavement, and supporting users with complex and challenging needs (Cambridge & Carnaby, 2000;Carnaby & Cambridge, 2002). Recognition of the age-and disability-related disadvantages accruing to older people with ID and the role of 'double jeopardy' in oppressing and marginalizing this population is also a component of good practice (Bland et al, 2003).…”

Section: Directions For Service Developmentmentioning

confidence: 99%

Planning ahead

Hatzidimitriadou

Milne

2005

Dementia

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Despite the acknowledged increase in the number of older people with intellectual disabilities (ID) in the UK, the age-related health and social care needs of this population have yet to be fully understood and addressed. Although there is some evidence of positive development, the current picture of service provision is characterized by fragmentation and limited choice of resources and specialist care. Policy aims are variably met and inconsistently applied. Research suggests that service planning is often incoherent, that many older people with ID and their carers receive poor quality non-specialist care and that staff are inadequately trained to manage the often multiple and complex needs of this user group. There is a considerable co-joined service development and research challenge in this emerging field. If older people with ID and their carers are to receive quality provision, a coherent and well-funded service planning system is required which is underpinned by articulated agency partnerships, informed by good practice developments in the fields of ID, gerontology and dementia care, and linked to evidence about effective models of care and services. The incorporation of the perspectives of users and carers in the planning process is an essential pre-requisite as is a commitment to the development of effective support across the life course of all individuals with ID. de men tia d e m e n t i a © 2005 sage publications www.sagepublications.com vol 4(3) 341-359

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“…Carnaby & Cambridge (2002) suggest that cleaning under the foreskin of an uncircumcised male is a practice risk not only for practical reasons but also as it confronts both client and staff sexuality (Cambridge & Carnaby 2000). While a brief opportunity during bathing for some males to enjoy some time free of incontinence aids presents part of this sexual confrontation, the chance to masturbate and enjoy sexual exploration of course should not be denied.…”

Section: Introductionmentioning

confidence: 99%