Female family carers’ experiences of violent, abusive or harmful behaviour by the older person for whom they care: a case of epistemic injustice?

Abstract

Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are ‘vulnerable’. This paper reports the findings of a qualitative study that involved 12 in‐depth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker's concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: (1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self‐censured what they shared and, at times, were met with subtle but powerful processes of silencing. (2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the ‘private’ and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice.

How does Carer’s Allowance in the UK construct family carers? History and recent developments

“…Although 'caring' is a positive concept, it is important to note that some relationships may not be. As with other family relationships, caring dyads can be embedded in histories of family violence and abuse (Molyneaux et al, 2011;Isham et al, 2020). Other research, such as Mackay's (2017) exploration of social workers' roles in dealing with safeguarding concerns for an older couple where another relative is also involved, show a more complex understanding of care relationships.…”

Older women and domestic abuse: through a glass darkly

“…Evidence indicates that people with dementia are particularly vulnerable, with challenging behaviour often cited as a trigger. Risk is heightened in contexts where the carer has been subject to abuse by the cared for person; this is not an uncommon experience for carers of relatives with dementia (Ash, 2014; Isham et al , 2020). In a study with well-defined target populations, 11%–20% of family carers reported physically abusing their relative (Cooper et al , 2009).…”

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