Fathers of children with autism spectrum disorder: Their perceptions of paternal role a predictor of caregiving satisfaction, self-efficacy and burden

Rudelli, Nicola; Straccia, Claudio; Petitpierre, Geneviève

doi:10.1016/j.rasd.2021.101744

Cited by 20 publications

(14 citation statements)

References 54 publications

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“…In a more recent study, by Rudelli et al (2021), 63 Swiss-Italian fathers indicated that feelings of self-efficacy, as well as their satisfaction as parents, were impacted greatly and positively, by the importance they gave to their paternal role. Furthermore, the study suggested that their children’s challenging behaviors could predict positively the caregiver’s burden whereas the assessment of social support predicts it negatively (Rudelli et al, 2021).…”

Section: Introductionmentioning

confidence: 98%

Exploring the Lived Experiences of Fathers of Children on the Autism Spectrum: A Narrative Inquiry

Camilleri

2022

SAGE Open

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This study uses narrative inquiry to investigate the lived experiences of fathers of children with autism spectrum disorder (ASD). It aims to answer the question: “What stories do fathers of children with autism tell about their fathering experiences?” Data to inform this study was gathered through 30 in-depth interviews with 10 fathers living in Malta. A narrative analysis, which is defined as the configuration of data in chronological order, resulted in 10 stories that were written in the “third-person omniscient.” An analysis of the stories resulted in the identification of eight common “events”: (1) The diagnosis, (2) Search for solutions, (3) Relationship with spouse, (4) Communication difficulties, (5) Thoughts on fatherhood, (6) Society and autism, (7) Positive outcomes, and (8) The future. The stories illustrate the great lengths fathers of children with autism go to in order to support their children. It also provides insight into the fathers’ concerns about the future. Finally, it highlights specific support needs, such as the need for more sensitivity when communicating the diagnosis, the need for professionals to be more conscious of “professional-client” power dynamics, and the need for more complete information.

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Section: Introductionmentioning

confidence: 98%

Exploring the Lived Experiences of Fathers of Children on the Autism Spectrum: A Narrative Inquiry

Camilleri

2022

SAGE Open

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“…Furthermore, further research is required to underscore the difference in the experience of the burden associated with raising a child with ASD between mothers and fathers. While several studies have indicated that mothers of children with ASD suffer from increased levels of mental health challenges and burdens compared to fathers, some studies have yielded mixed results (Picardi et al, 2018 ; Al Khateeb et al, 2019 ; Rudelli et al, 2021 ). Thus, further research is required to enhance the understanding of the different challenges experienced by parents raising children with ASD in Arab countries, particularly qualitative studies (Leko et al, 2021 ).…”

Section: Discussionmentioning

confidence: 99%

“…have yielded mixed results (Picardi et al, 2018;Al Khateeb et al, 2019;Rudelli et al, 2021). Thus, further research is required to enhance the understanding of the different challenges experienced by parents raising children with ASD in Arab countries, particularly qualitative studies (Leko et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

The Impact of Autism Spectrum Disorder on Parents in Arab Countries: A Systematic Literature Review

2022

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BackgroundHaving a child with autism spectrum disorder can have significant psychological effects on parents. This systematic review summarizes the current state of literature underscoring the impact of autism spectrum disorder (ASD) on parents in Arab countriesMethodsA systematic search of seven databases (PubMed, Scopus, ProQuest, Google Scholar, ERIC, Academic Search Complete, and PsycINFO) was performed, which identified 24 studies (20 quantitative studies and four qualitative studies) that included 3,299 parents or caregivers of children with ASD. These studies were conducted in 10 Arab countries (Saudi Arabia, Jordan, Egypt, Kuwait, Bahrain, Oman, Emirates, Palestine, Qatar, and Lebanon).ResultsThe majority of the included studies found that ASD has a significant negative impact on the mental health and wellbeing of Arab parents. It was found that parents of children with ASD have a poor quality of life (QoL) and an increased risk of psychological disorders. These findings were in contrast to findings of parents of typically developing children and children with other developmental disorders. Challenges faced by parents of children with ASD were associated with several child- and parent-related factors. The most common coping strategy used by parents was religious coping.ConclusionThe impact of ASD on parents has only recently gained traction among researchers in Arab countries. Despite several knowledge gaps, published studies have provided useful information outlining the impact of ASD on parents in some of these countries. Further research comprising larger random samples and using varied research and data-collection methods is required to understand the multifaceted challenges experienced by parents raising children with ASD in Arab countries.

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“…Penelitian oleh (Rudelli & Straccia, 2021) melibatkan populasi terbatas yaitu orang tua yang berasal dari Ticino, Switzerland dan Italia. Selain itu tidak terdapat kelompok pembanding, sehingga penelitian ini sulit untuk digeneralisir pada populasi lebih luas.…”

Section: Fathers Of Children With Autism Spectrum Disorder: Their Per...unclassified

“…Hal ini juga ditemukan pada penelitian (Weaver et al, 2008) bahwa semakin dini deteksi gangguan anak, maka semakin cepat orang tua dapat mengembangkan Parental self-efficacy. Hal ini sejalan dengan penelitian (Rudelli & Straccia, 2021) yang mengemukakan bahwa adanya dukungan sosial membuat beban pengasuhan anak dengan disabilitas menjadi lebih ringan. Hal ini terjadi karena seiring berjalannya waktu, orang tua dapat meningkatkan proses kognisi dan atribusi yang lebih efektif.…”

Section: Dukungan Sosialunclassified

Faktor-Faktor yang Mempengaruhi Parental Self-Efficacy Orang Tua Yang Memiliki Anak dengan Disabilitas

Harita

Chusairi

2022

J. Obs. J. Pendidik. Anak Usia Dini

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Adanya kebutuhan unik dari anak dengan disabilitas menghadapkan orang tua pada risiko permasalahan fisik dan mental dalam pengasuhan. Parental self-efficacy menjadi salah satu faktor penting untuk menurunkan distress psikologis dan perilaku maladaptif dalam pengasuhan. Artikel ini bertujuan untuk mengetahui faktor yang mempengaruhi Parental self-efficacy. Penelitian dilakukan dengan metode systematic review menggunakan framework PICO dalam menentukan kriteria inklusi dan eksklusi. Pencarian artikel dilakukan pada 4 situs yaitu Proquest, SagePub, ScienceDirect, dan SpringerLink. Ditemukan 65 artikel yang selanjutnya diseleksi. Terdapat 6 artikel kuantitaif paling relevan yang di-review, sementara artikel kualitatif dan eksperimen dijadikan sebagai latar belakang dan bahan diskusi dalam artikel ini. Berdasarkan hasil systematic literature review yang dilakukan, diketahui bahwa faktor yang mempengaruhi Parental Self-Efficacy adalah jenis kelamin, kelelahan, pengalaman mengasuh anak dengan disabilitas, dukungan sosial, stres, stigma, dan keterlibatan orang tua. Diperlukan intervensi psikologis seperti program meditasi, mindfulness, dan Cognitive Behavior Therapy (CBT) serta intervensi terkait knowledge orang tua

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Fathers of children with autism spectrum disorder: Their perceptions of paternal role a predictor of caregiving satisfaction, self-efficacy and burden

Cited by 20 publications

References 54 publications

Exploring the Lived Experiences of Fathers of Children on the Autism Spectrum: A Narrative Inquiry

Exploring the Lived Experiences of Fathers of Children on the Autism Spectrum: A Narrative Inquiry

The Impact of Autism Spectrum Disorder on Parents in Arab Countries: A Systematic Literature Review

Faktor-Faktor yang Mempengaruhi Parental Self-Efficacy Orang Tua Yang Memiliki Anak dengan Disabilitas

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