Cancer children experience long periods of hospitalization, which are associated with limited performance in several developmental domains and participation restrictions in age appropriate occupations. Fine motor abilities represent building blocks in performing daily life skills and have been found to be closely connected with later academic success. Moreover, medical and psychological sequelae for cancer inpatients may result in diminished daily activities functioning, poor perceived health related quality of life (HRQOL), and increase the likelihood of long-term impairments. This study examines the variations in the occupational performance of children hospitalized for acute lymphoblastic leukemia (ALL) after their participation to a stimulation program designed to enhance fine motor skills. Parents reported significant gains in children’s motor functioning, a slight improvement in overall occupational performance related to an increase in the area of productivity and self-care, and a better quality of life perception following the stimulation activities. Feasibility of the stimulation program in a health care setting are discussed evaluating its benefits for cancer children and their families.
Le parcours menant au diagnostic du trouble du spectre de l’autisme (TSA) est un processus complexe qui peut être une source possible de stress pour les parents et les spécialistes. La qualité des informations transmises et le suivi post-diagnostic sont des facteurs qui contribuent à la satisfaction des personnes concernées. À un moment donné, les parents se posent la question de savoir comment communiquer le diagnostic du TSA à leur enfant. En collaboration avec les familles, le parcours « Storie di persone », constitué de trois étapes, est un support flexible et modulable permettant de communiquer le diagnostic aux enfants et jeunes adultes[1] présentant un TSA.
[1] Pour des questions de langage épicène, « jeunes adultes » est employé comme synonyme de « adolescentes et adolescents »
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