Faith healing in paediatrics: what do we know about its relevance to clinical practice?

Baverstock, Anna; Finlay, Fiona

doi:10.1111/j.1365-2214.2011.01284.x

Cited by 3 publications

(3 citation statements)

References 21 publications

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“…Second, R&S engender a sense of control over intolerable chaos [ 9 ]. Parents may believe that the child’s wellness is contingent on their continued expectation of a good outcome [ 59 , 60 ]. One father felt his role in his child’s fight for survival was to stay positive and continue believing a miracle could occur.…”

Section: Discussionmentioning

confidence: 99%

Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study

et al. 2018

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BackgroundMedical advances have led to new challenges in decision-making for parents of seriously ill children. Many parents say religion and spirituality (R&S) influence their decisions, but the mechanism and outcomes of this influence are unknown. Health care providers (HCPs) often feel unprepared to discuss R&S with parents or address conflicts between R&S beliefs and clinical recommendations. Our study sought to illuminate the influence of R&S on parental decision-making and explore how HCPs interact with parents for whom R&S are important.MethodsA longitudinal, qualitative, descriptive design was used to (1) identify R&S factors affecting parental decision-making, (2) observe changes in R&S themes over time, and (3) learn about HCP perspectives on parental R&S. The study sample included 16 cases featuring children with complex life-threatening conditions. The length of study for each case varied, ranging in duration from 8 to 531 days (median = 380, mean = 324, SD = 174). Data from each case included medical records and sets of interviews conducted at least monthly with mothers (n = 16), fathers (n = 12), and HCPs (n = 108). Thematic analysis was performed on 363 narrative interviews to identify R&S themes and content related to decision-making.ResultsParents from 13 cases reported R&S directly influenced decision-making. Most HCPs were unaware of this influence. Fifteen R&S themes appeared in parent and HCP transcripts. Themes most often associated with decision-making were Hope & Faith, God is in Control, Miracles, and Prayer. Despite instability in the child’s condition, these themes remained consistently relevant across the trajectory of illness. R&S influenced decisions about treatment initiation, procedures, and life-sustaining therapy, but the variance in effect of R&S on parents’ choices ultimately depended upon other medical & non-medical factors.ConclusionsParents consider R&S fundamental to decision-making, but apply R&S concepts in vague ways, suggesting R&S impact how decisions are made more than what decisions are made. Lack of clarity in parental expressions of R&S does not necessarily indicate insincerity or underestimation of the seriousness of the child’s prognosis; R&S can be applied to decision-making in both functional and dysfunctional ways. We present three models of how religious and spiritual vagueness functions in parental decision-making and suggest clinical applications.Electronic supplementary materialThe online version of this article (10.1186/s12904-018-0360-y) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study

et al. 2018

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“…Interventions from three domains considered relevant for children with ADHD (health sector, academic and self-management) were chosen for survey inclusion through a sequential process including: (a) qualitative research aimed at identifying community academic practices through a sequence of longitudinal experience sampling and focus groups eliciting perspectives of adolescents, parents and teachers on helpful interventions; (b) literature review of health sector ADHD practice guidelines (Pliszka, 2007; Wolraich, et al, 2011) educational interventions and accommodations for ADHD (DuPaul, 2007), review of the available literature on self-management (Baverstock & Finlay, 2012; Berwid & Halperin, 2012; Konofal, et al, 2010; Millichap & Yee, 2012; Nigg, et al, 2012) and complementary and alternative medicine (CAM) (Sinha & Efron, 2005) for ADHD; and (c) survey pilot testing to confirm final item selection, adjust wording and improve item clarity. Through this process we selected 18 interventions (five from health sectors, seven from academic and six from self-management) that expanded upon solely research-based approaches to include interventions grounded in current community practice and elicited as helpful through our qualitative research strategies.…”

Section: Methodsmentioning

confidence: 99%

Willingness to Use ADHD Self-Management: Mixed Methods Study of Perceptions by Adolescents and Parents

Bussing

Koro‐Ljungberg

Gurnani³

et al. 2015

J Child Fam Stud

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Little is known about perceptions surrounding self-management for attention deficit hyperactivity disorder (ADHD), although such interventions appear commonly used and are considered essential components of the chronic care model. Our research is part of a mixed methods study that followed students at high and low risk for ADHD over 11 years. During the final study years, area-representative samples of 148 adolescents (54.8% participation; 97 ADHD high-risk group; 51 low-risk peers) and 161 parents (59.4% participation; 108 parents of high-risk adolescent; 53 parents of low-risk peer) completed a cross-sectional survey on community-identified self-management interventions for ADHD (activity outlets, sleep regulation, dietary restriction, homework help, family rules, and prayer). Respondents also answered open-ended questions addressing undesirable self-management effects, which were analyzed using grounded theory methods. High-risk adolescents expressed significantly lower willingness towards all self-management interventions than did adult respondents, except for increased activity outlets. They also reported lower receptivity towards sleep regulation and dietary restriction than did their low-risk peer group. No gender or race differences in self-management willingness were found, except for higher receptivity to prayer in African American respondents. Cost, perceived ineffectiveness, disruptions to routines, causation of interpersonal conflicts, and reduced future self-reliance were seen as potential undesirable effects. Findings suggest that activity-based ADHD interventions appear particularly acceptable across all demographic and risk groups, unlike sleep regulation and dietary approaches. Further research on self-care effectiveness is needed to incorporate adolescents’ viewpoints about ADHD self-management, as interventions may be acceptable to adults, but resisted by adolescents.

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“…Centro Universitário Presidente Antônio Carlos (UNIPAC-JF), Juiz de Fora -MG. *E-mail: augustoapolinario@gmail.com 2 Faculdade de Ciências Médicas e da Saúde de Juiz de Fora (SUPREMA), Juiz de Fora -MG 3. Universidade Federal de Juiz de Fora (UFJF), Juiz de Fora -MG 4. Fundação Hemominas (Hemominas), Juiz de Fora -MG.…”

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Espiritualidade/religiosidade no processo saúde-doença dos pacientes com Doença Falciforme

et al. 2020

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Objetivo: Realizar uma revisão sistemática da literatura sobre o impacto que a espiritualidade/religiosidade (E/R) exerce no processo saúde-doença dos indivíduos portadores de Doença Falciforme (DF) e despertar nos profissionais de saúde a possibilidade do uso de medidas alternativas complementares (MACs) associadas ao tratamento convencional, em especial o uso da E/R na DF. Métodos: Foi realizada uma pesquisa com os descritores “spirituality”, “religion” e “sickle cell disease” nas bases de dados eletrônicas SciELO, BIREME, Medline, PubMed e Lilacs no período de 10 a 18 de maio de 2020. Critérios de inclusão: artigos que relacionaram de forma direta ou indireta a E/R aos pacientes com DF. Critérios de exclusão: artigos não pertinentes à relação E/R e DF. Foram selecionados 27 artigos científicos. Resultados: Foi verificado o uso de MACs no manejo dos pacientes com DF com um melhor enfrentamento da doença. A E/R tem alta frequência de utilização e apresentou resultados significativos na qualidade de vida desta população. Considerações finais: O uso da E/R faz parte da atenção integral ao paciente com DF e deve ser acrescido no manejo terapêutico convencional. Os profissionais de saúde encontram dificuldades na abordagem e associação da E/R ao tratamento e sugere-se sua capacitação nesta área.

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Faith healing in paediatrics: what do we know about its relevance to clinical practice?

Cited by 3 publications

References 21 publications

Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study

Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study

Willingness to Use ADHD Self-Management: Mixed Methods Study of Perceptions by Adolescents and Parents

Espiritualidade/religiosidade no processo saúde-doença dos pacientes com Doença Falciforme

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