Factors That Determine the Experience of Transition to an Inpatient Palliative Care Unit for Patients and Caregivers: A Qualitative Study

Whitehead, Katherine; Ala‐Leppilampi, Kari; Lee, Betty; Menagh, Jacqueline; Spaner, Donna

doi:10.1177/08258597221105001

Cited by 3 publications

(2 citation statements)

References 25 publications

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“…Qualitative methods are useful for investigating the beliefs, values, and motivations behind individual health choices [ 18 ]. Furthermore, qualitative studies have been used to study other aspects of palliative care, such as patients’ and caregivers’ experience of transition to an inpatient palliative care unit [ 19 ], caregiver coping strategies when a family member is diagnosed with cancer [ 20–22 ], issues regarding the use of Whats App® to thank palliative care professionals [ 23 ], and family and patients’ perception of integrated primary and palliative care [ 24 ].…”

Section: Methodsmentioning

confidence: 99%

The caregiver’s perspective on end-of-life inpatient palliative care: a qualitative study

Herrera-Abián,

Castañeda-Vozmediano,

Antón-Rodríguez

et al. 2023

Annals of Medicine

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Introduction Understanding patient and caregiver experience is key to providing person-centered care. The palliative care approach includes holistic assessment and whole-person care at the end of life, that also involves the patient’s family and loved ones. The aim of this study was to describe the way that family caregivers experienced patients’ deaths during their loved ones’ last hospital admission, comparing inpatient palliative care (PCU) and non-palliative care (Non-PCU) units. Methods A qualitative case study approach was implemented. Family caregivers of terminally ill patients admitted to the Infanta Elena Hospital (Madrid, Spain) between 2016 and 2018 were included using purposeful sampling. Eligible caregivers were first-degree relatives or spouses present during the patient’s last hospital admission. Data were collected via in-depth interviews and researchers’ field notes. Semi-structured interviews with a question guide were used. A thematic inductive analysis was performed. The group of caregivers of patients admitted to the PCU unit and the group of caregivers of patients admitted to Non-PCU were analyzed separately, through a matrix. Results In total 24 caregivers (12 from the PCU and 12 from Non-PCU units) were included. Two main themes were identified: caregivers’ perception of scientific and technical appropriateness of care, and perception of person-centred care. Scientific appropriateness of care was subdivided into two categories: diagnostic tests and treatment, and symptom control. Perception of person-centred care was subdivided as: communication, emotional support, and facilitating the farewell process. Caregivers of patients admitted to a PCU unit described their experience of end-of-life care as positive, while their Non-PCU unit counterparts described largely negative experiences. Conclusions PCU provides a person-centered approach to care at the end of life, optimizing treatment for patients with advanced disease, ensuring effective communication, establishing a satisfactory professional relationship with both patients and their loved ones, and facilitating the farewell process for family caregivers.

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Section: Methodsmentioning

confidence: 99%

The caregiver’s perspective on end-of-life inpatient palliative care: a qualitative study

Herrera-Abián,

Castañeda-Vozmediano,

Antón-Rodríguez

et al. 2023

Annals of Medicine

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“…Constant comparative method 27 was used to spot, categorize, scrutinize and verify emerging themes to achieve data saturation. 28 , 29 The analysis primarily included five steps. Firstly, all researchers independently checked the transcribed data repetitively by looking over the transcripts while carefully listening to the audio data to obtain a general understanding of the meaning conveyed.…”

Section: Methodsmentioning

confidence: 99%

Knowledge and Perceptions of Chinese Female College Students Towards HIV/AIDS: A Qualitative Analysis

Qiu¹,

Wu²

2022

IJWH

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Objective This study aims to explore knowledge and perceptions of Chinese female college students towards HIV/AIDS. Design, Method, Participants and Setting A purposive sampling method was used to recruit participants. Twenty female participants studying at a college located in Chongqing, Southwest China, were involved in the study. Semi-structured interviews were used to collect data. The face-to-face interview data were recorded and analyzed using the method of qualitative inductive content analysis. Results Five themes were identified from the data of transcribed interviews: HIV transmission routes (sexual transmission; blood transmission; mother-to-child transmission), sources of HIV/AIDS knowledge (education; mass media), AIDS prevention measures (avoiding sexual activity; establishing sense of self-protection; avoiding blood contact), attitudes towards PLWHA (treating all PLWHA equally; showing sympathy for the innocent PLWHA; discriminating against the immoral PLWHA), and suggested solutions to combat AIDS (assistance provided by governments; what health professionals can contribute; mobilization of social power; university intervention). Conclusion More efforts should be made to strengthen the HIV/AIDS education for female college students of non-medical majors in Southwest China. Accurate knowledge of HIV/AIDS and the right attitudes towards people living with HIV/AIDS (PLWHA) should be the foci of HIV/AIDS education for this population. In order to better cater future sex education in colleges to the requirements of female college students, educators and lawmakers may benefit from gaining a deeper grasp of their perspectives on HIV/AIDS.

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End of Life Outcomes Following Comfort Care Orders: A Single Center Experience

Tucker,

Hovern,

Liantonio

et al. 2024

Am J Hosp Palliat Care

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Background: Few studies have explored the outcomes of patients placed on comfort care with respect to hospice disposition. The objective of this study was to perform a retrospective analysis of patients who transitioned to comfort care. Methods: We conducted a retrospective study of patients placed on the comfort care order set between July 1st, 2021, until June 30th, 2022. Each individual patient chart was then analyzed to collect multiple clinical variables. IRB approval was obtained as per institutional guidelines. Results: 541 patients were included in the analysis. An average of 1.5 patients were placed on comfort care a day. 424 (78.37%) patients died while in the hospital. The median time on comfort care was 1 day. For subspecialty and hospital medicine patients the median time was 2 days. 40% of non-ICU patients were discharged with hospice services. 60% of patients were in the intensive care unit (ICU) and spent a median of 2.33 hours on comfort care. 19% of these patients were on comfort care for over 12 hours. 94% of the patients placed on comfort care in the ICU died in the hospital as compared to 53% of subspecialty and 59% of hospital medicine patients. Conclusions: The majority of patients placed on comfort care died during their hospitalization demonstrating a real need for comprehensive end of life care and immediate hospice services. For those discharged with hospice services, they spent an excessive amount of time in the hospital waiting for services to be arranged.

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Factors That Determine the Experience of Transition to an Inpatient Palliative Care Unit for Patients and Caregivers: A Qualitative Study

Cited by 3 publications

References 25 publications

The caregiver’s perspective on end-of-life inpatient palliative care: a qualitative study

The caregiver’s perspective on end-of-life inpatient palliative care: a qualitative study

Knowledge and Perceptions of Chinese Female College Students Towards HIV/AIDS: A Qualitative Analysis

End of Life Outcomes Following Comfort Care Orders: A Single Center Experience

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