Factors associated with family risk of children with special health care needs

Abstract

Objective: To identify the factors associated with family risk of children with special health care needs. Methods: Bicentric study, with a cross-sectional design and a quantitative approach, with family caregivers of children with special health care needs. Instruments were applied to obtain a sociodemographic characterization, and identify and classify the family risk. For analysis between variables, Mann-Whitney and Fisher’s exact tests were used and the Spearman’s correlation coefficient was calculated. Results: One hundred and eighteen caregivers participated in the study. The average family risk score was 3.53 (±3.76), with a median of 3.0, and minimum and maximum values of 0 and 16, respectively, with no significant difference between the two studied Brazilian municipalities. In municipality 1, the number of siblings presented a positive correlation with the average family risk score (0.011, p<0.05). Level of education and marital status of the caregiver showed a significant association with the result (0.038 and 0.002, respectively). The social classification variable presented a negative correlation with the outcome in municipalities 1 (0.003, p<0.01) and 2 (0.006, p<0.01). Conclusion: To classify the family risk and recognize associated factors can be taken as a basis for fair home care to children with special health care needs.

Effect of parental mutuality on the quality of life of mothers of children with special health needs

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Continuity of care for children with special healthcare needs during the COVID-19 pandemic

“…National studies demonstrate that the daily life of CSHCN families is marked by efforts and difficulties that transcend the child's clinical fragility, such as social vulnerability, low income, and low level of education of caregivers (24)(25) . Socioeconomic factors have hindered the access of these patients and their families to health services, causing inequities in access (26)(27) .…”

Aleitamento materno na experiência de mães de crianças traqueostomizadas e o uso da válvula Passy-Muir®

“…21,22 For being children who require complex and continuous health care, the family needs to incorporate new knowledge and practices into everyday life. 23 The desire to breastfeed the child drives them to overcome the barriers. Being able to breastfeed and establish body-to-body contact maximized the bond and the exchange of affection between mother and child, giving rise to feelings that conferred pleasure, satisfaction, empowerment, joy, accomplishment, and self-confidence, among others.…”