Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs. Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman’s Correlation and univariate and multivariate linear regression analysis. Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023). Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.
Objective: to analyze the effect of parental mutuality on the quality of life related to the health of mothers who care for children with special health needs. Method: an observational, analytical and cross-sectional study with a quantitative approach. The following instruments were applied to 181 caregiving mothers: The Medical Outcomes Study 36-Item Short Form and Family Management Measure (Parental Mutuality subscale). In the statistical analysis, Spearman’s correlation and univariate and multivariate linear regression were used. Results: the total score of parental mutuality was 30.8, indicating a satisfactory perception of the caregiving mother about the way the couple shares decisions regarding the care of the child. In the multivariate regression analysis, parental mutuality maintained a statistically significant association with the domains of pain, social aspects and emotional limitations of quality of life related to health (p=<0.001, 0.003, 0.002), respectively. Conclusion: parental mutuality has a positive effect on some domains of quality of life related to health. It is recommended to plan actions aimed at strengthening the complicity and connection between the couple, especially in matters related to the care of the child with special health needs.
Resumo Objetivo analisar os fatores associados ao apoio social às mães de crianças que necessitam de cuidados contínuos e complexos. Método estudo observacional, analítico e transversal, de abordagem quantitativa. A coleta de dados ocorreu nos ambulatórios de um hospital pediátrico localizado no interior do estado de São Paulo. Participaram do estudo 36 mães, que responderam a um instrumento de caracterização e ao Medical Outcomes Study- Social Support Survey. Para análise estatística foram utilizados os testes Mann-Whitney, Kruskal-Wallis e Correlação de Spearman. Seguiram-se os preceitos éticos de pesquisas que envolvem seres humanos. Resultados o apoio social afetivo, material e de interação social apresentaram escores satisfatórios (acima de 80 pontos). Os escores das dimensões informação e emocional foram 78,06 e 78,33, respectivamente. A variável idade materna apresentou correlação negativa com o apoio social emocional (0,040) e de informação (0,009). Conclusão e implicações para a prática as mães, em especial as mais velhas, recebem menos apoio de pessoas que possam lhe orientar e dar conselhos, bem como de alguém de confiança para falar sobre seus problemas. Tal resultado pode subsidiar o planejamento de estratégias de intervenção com famílias, a fim de fortalecer o apoio social.
Objective: To evaluate the effectiveness of training in cardiopulmonary resuscitation using realistic simulation as a subsidy to plan an emergency training program for healthcare professors.Methods: Quasi-experimental research, whose intervention was the theoretical and practical training and the outcome was the level of knowledge about the guidelines for cardiopulmonary resuscitation, involving 22 professors of health courses from two universities in São Paulo, Brazil. The tests were applied in different periods to identify changes after training, both in assessing the quality of the used training method, the as the absorption and relevance of the strategy.Results: There was statistical significance of the success rate between the first and the second tests only in the theoretical training, and this result remained after the practical training and realistic simulation, regardless of the professor's area of expertise. Forty-nine percent (49%) of correct answers were found in the pretest before training; 88%, after the theoretical stage and 80%, after the third and final period. Conclusion
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