External mirroring of inner chaos: blogging as experienced by the relatives of people with cancer

Andersson, Maria; Gustafsson, Elisabeth; Hansson, Kristina; Karlsson, Matts

doi:10.12968/ijpn.2013.19.1.16

Cited by 9 publications

(3 citation statements)

References 15 publications

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“…Other descriptive studies (n = 12; 17.4%; Table 2) used surveys, 11,23,24,28,40,43,46,59,60,63,65,74 in-depth interviews, 47 focus groups, 48 social network analyses, 20,68 a mix of measurement techniques, 8,9,13,22,30,39 Web metrics, 72,73 and frequencies 62 to describe how users employed social media to obtain and receive cancer information. It is important to note that only 1 of these studies reviewed the accuracy of information posted on a social media site (YouTube); it reported that roughly 75% of all videos had either fair or poor information about prostate cancer screening.…”

Section: Resultsmentioning

confidence: 99%

Use and Taxonomy of Social Media in Cancer-Related Research: A Systematic Review

et al. 2014

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Little is known about how social media are used in cancer care. We conducted a systematic review of the use and taxonomy of social media in cancer-related studies, in PubMed, Web of Knowledge, CINAHL, and Google Scholar. We located 1350 articles published through October 2013; 69 met study inclusion criteria. Early research (1996–2007) was predominantly descriptive studies of online forums. Later, researchers began analyzing blogs, videos shared on YouTube, and social networking sites. Most studies (n = 62) were descriptive, and only 7 reported intervention studies published since 2010. Future research should include more intervention studies to determine how social media can influence behavior, and more empirical research is needed on how social media may be used to reduce health disparities.

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Section: Resultsmentioning

confidence: 99%

Use and Taxonomy of Social Media in Cancer-Related Research: A Systematic Review

et al. 2014

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“…They are useful to find people with similar experiences, and help them in their grief process and to preserve memories. Contrarily, blogs can also be perceived by readers as tasteless “reality shows” [ 24 ].…”

Section: Reviewmentioning

confidence: 99%

Influence of Internet and Social Media in the Promotion of Alternative Oncology, Cancer Quackery, and the Predatory Publishing Phenomenon

Delgado-López

Corrales-García

2018

Cureus

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In the last decade, electronic media has irrupted physician’s clinical practice. Patients increasingly use Internet and social media to obtain enormous amounts of unsupervised data about cancer. Blogs, social networking sites, online support groups and forums are useful channels for medical education and experience sharing but also perfect environments for misinformation, quackery, violation of privacy and lack of professionalism. The widespread availability of such electronic resources allows some followers of the alternative oncology to spread useless irrational and controversial remedies for cancer, like false medicaments, miraculous diets, electronic devices, and even psychic therapies, as did charlatans in the past, providing false expectations about cancer treatments. Moreover, so-called predatory journals have introduced confusion and malpractice within the academic biomedical publishing system. This is a rising editorial phenomenon affecting all fields of biomedicine, including oncology that jeopardizes the quality of scientific contribution and damages the image of open access publication.

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“…She claims that care is founded in us within the office of being human and thus natural in all of us, then our ability to use that develops depending on social and cultural conditions. Andersson ( 2013 ) claims that natural care is part of what makes us human. Rafii et al ( 2007 ) state that natural care occurs spontaneously and without thinking, in contrast to professional care that is reflected on in relation to ethics and evidence.…”

Section: Introductionmentioning

confidence: 99%

Informal caregiving from the perspectives of older people living alone in India

Gustafsson

Morell

Johansson

et al. 2022

Int J Older People Nursing

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Background:The cultural and social norms in India stipulate that family and preferably children of the older person, provide the support and care that is needed. In recent years, we have witnessed an overall upsurge in interest in informal care from all countries in the developed world considering their ageing populations. The older people living alone group is, especially interesting in this matter, since it seems to deviate from the expectations of extended family living. Objective:The aim was to describe older persons' experiences of informal care when living alone in India. Methods:The study has a hermeneutic design, analysing interviews of older persons living alone in India.Results: Findings revealed informal care as the thematic patterns: Informal care as a fundamental human responsibility, an obligation and thereby a way to act in 'common sense'. It was a way of 'paying-back' care that they had received from others in their life history, motivated by governmental care was not presented as an option. Informal care also created safety by the provision of alert and actionable care by loved ones, including spatial safety. Most of the informants experienced themselves as informal caregivers assisting others in need even if they themselves were old and fragile. Providing self care was also seen as a part of informal care conducted by capable and worthy persons.They also pointed out their own obligation to seek informal care and even to listen to the suggestions of younger generations regarding the type and scope of care.Conclusions/Implications for practice: Informal care in India is not only dependent on having children who ensure that you receive the care you need. Extended family, neighbours and friends feel a basic human obligation to care for the older people in their environment. This responsibility is deeply rooted even within the older people who become fragile in old age.

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External mirroring of inner chaos: blogging as experienced by the relatives of people with cancer

Abstract: Blogging was seen as a complement to professional care that contributed to the prevention of ill health.

Cited by 9 publications

References 15 publications

Use and Taxonomy of Social Media in Cancer-Related Research: A Systematic Review

Use and Taxonomy of Social Media in Cancer-Related Research: A Systematic Review

Influence of Internet and Social Media in the Promotion of Alternative Oncology, Cancer Quackery, and the Predatory Publishing Phenomenon

Informal caregiving from the perspectives of older people living alone in India

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