Exploring experiences of family caregivers for older adults with chronic illness: A scoping review

Jika, Barbara Member; Khan, Hafiz T. A.; Lawal, Muili

doi:10.1016/j.gerinurse.2021.10.010

Cited by 17 publications

(13 citation statements)

References 33 publications

(42 reference statements)

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“…However, they also are forced to be in an intergenerational relationship full of tension. Taking care of elderly grandparents with chronic illness imposes a well-documented burden on second generations, both in health effects and quality of life [ 38 ]. A study of 48 low—and middle-income countries found similarly that informal caregivers who provided help to old or weak relatives were more likely to have physical multimorbidity, especially adult caregivers [ 39 ].…”

Section: Discussionmentioning

confidence: 99%

Effects of family multi-generational relationship on multimorbidity and healthy life expectancy for second generations: insight from the China Health and Retirement Longitudinal Study

Zhong

Zhou

et al. 2023

BMC Geriatr

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Objective In the context of aging, Chinese families consisting of more than three generations (grandparents, parents, children) are the norm. The second generation (parents) and other family members may establish a downward (contact only with children) or two-way multi-generational relationship (contact with children and grandparents). These multi-generational relationships may have the potential effect on multimorbidity burden and healthy life expectancy in the second generation, but less is known about the direction and intensity of this effect. This study aims to explore this potential effect. Methods We obtained longitudinal data from the China Health and Retirement Longitudinal Study from 2011 to 2018, which included 6,768 people. Cox proportional hazards regression was used to assess the association between multi-generational relationships and the number of multimorbidity. The Markov multi-state transition model was used to analyze the relationship between multi-generational relationships and the severity of multimorbidity. The multistate life table was used to calculate healthy life expectancy for different multi-generational relationships. Results The risk of multimorbidity in two-way multi-generational relationship was 0.830 (95% CIs: 0.715, 0.963) times higher than that in downward multi-generational relationship. For mild multimorbidity burden, downward and two-way multi-generational relationship may prevent aggravation of burden. For severe multimorbidity burden, two-way multi-generational relationship may aggravate the burden. Compared with two-way multi-generational relationship, the second generations with downward multi-generational relationship has a higher healthy life expectancy at all ages. Conclusion In Chinese families with more than three generations, the second generations with severe multimorbidity burden may aggravate the condition by providing support to elderly grandparents, and the support provided by offspring to the second generations plays a vital positive role in improving the quality of life and narrowing the gap between healthy life expectancy and life expectancy.

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Section: Discussionmentioning

confidence: 99%

Effects of family multi-generational relationship on multimorbidity and healthy life expectancy for second generations: insight from the China Health and Retirement Longitudinal Study

Zhong

Zhou

et al. 2023

BMC Geriatr

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“…This would provide a more complete picture of these families' experiences, and their support needs, especially as individuals age. This work would add to the growing body of literature on family caregiving, including the different roles caregivers assume and the toll it can have on their health and well‐being (Jika et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

Religion, support and self‐care experiences: A qualitative descriptive study with Indonesian adults with the chronic disease living in Montreal, Canada

Lukman

Merry

2022

Journal of Advanced Nursing

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Aim: To explore and describe the chronic illness self-care experiences of Indonesian immigrants living in Montreal, Canada and to gain a better understanding of how religion and support shaped these experiences.Design: Qualitative description.Methods: Data were collected from January to March 2020 via semi-structured interviews. Eight men and women participated. The data were thematically analysed.Results: Major themes identified were (1) religion, (2) being helpful to others, (3) family support, (4) transnational family support, (5) community support and (6) being in Indonesia versus Canada. Religion and faith were sources of motivation for self-care and provided guidance and strength to heal and accept the illness, mainly through the practice of prayer. 'Being helpful to others' (collectivism), including aiding others to avoid getting sick or giving 'health tips', and also just generally taking care of family also contributed to overall well-being. Spouses were the main source of assistance with disease monitoring and management and health maintenance, whereas support from the Indonesian community was minimal and mostly consisted of informational and social support. Transnational relationships with family members in Indonesia, however, provided an additional means for obtaining emotional support, advice and access to traditional medicines. Overall, there was little expectation that family or the community offer or provide support with self-care. These low expectations may partially be explained by the different cultural and social contexts in Canada compared with Indonesia. Conclusion:Religious, cultural, social and family factors may be carried over from the home country and/or may be altered post-migration, and this may impact how Indonesian immigrants with chronic illness engage in self-care. Impact: Cultural factors (collectivism, traditional medicines), religious beliefs and support networks, both locally and transnationally should be assessed and considered during care to better support and promote self-care among immigrants living with chronic diseases. Patient or public contribution: Two Indonesian community organizations facilitated recruitment and data collection.

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“…However, the present gap in the workforce for the provision of care for patients suffering from long-term diseases requires initiatives emphasizing community-based care and partnership with family caregivers ( 3 ). When a society experiences demographic changes in terms of increases in the aging population, more people need to become volunteers and/or take on caregiving roles ( 4 ). Therefore, collaborative relationships and interaction between healthcare providers and family members can help smooth transitions of care to older people's own homes, leading to more patient-centered care ( 5 ).…”

Section: Introductionmentioning

confidence: 99%

Design and psychometric properties of the family support for older people questionnaire

Shamsikhani

Ahmadi²,

Kazemnejad³

et al. 2023

Front. Public Health

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Background and objectivesThe population of older people is increasing across the world. Older people need care and support from their families to be able to live independently. This study aimed to design and evaluate the psychometric properties of the family support for older people (FSOP) questionnaire.MethodsIn this instrument development study using a mixed-methods design, the psychometric properties of the FSOP questionnaire in terms of validity and reliability were evaluated.ResultsThe FSOP questionnaire consisted of 50 items in six domains. It was shown to have appropriate qualitative and quantitative validities (score > 1.5). The indicators of content validity (CVR > 0.62, ICVI ≥ 0.80, and SCVI > 0.94) and confirmatory factor analysis (indexes of χ2/df = 2.50, CFI = 0.96, GFI = 0.97, AGFI = 0.96, NNFI = 0.96, PNFI = 0.89, TLI = 0.96, and RMSEA = 0.06) were satisfactory. Cronbach's alpha coefficient for reliability was 0.94, indicating an optimal score.ConclusionsHealthcare providers and family caregivers are suggested to use the FSOP questionnaire for improving the quality of life of older people at home.

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Exploring experiences of family caregivers for older adults with chronic illness: A scoping review

Cited by 17 publications

References 33 publications

Effects of family multi-generational relationship on multimorbidity and healthy life expectancy for second generations: insight from the China Health and Retirement Longitudinal Study

Effects of family multi-generational relationship on multimorbidity and healthy life expectancy for second generations: insight from the China Health and Retirement Longitudinal Study

Religion, support and self‐care experiences: A qualitative descriptive study with Indonesian adults with the chronic disease living in Montreal, Canada

Design and psychometric properties of the family support for older people questionnaire

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