Evaluation of the processes of family‐centred care for young children with intellectual disability in Western Australia

Abstract

Overall respondents reported early intervention services for young children with ID in Western Australia provided satisfactory family-centred care by means of the 56-item MPOC. The frequency of contact with allied health professionals was positively associated with parental ratings of family-centred care. The study indicates under-servicing in dental care and psychology services.

Family functioning in families with a child with Down syndrome: a mixed methods approach

“…1991; Hornby 1995; Cunningham 1996). Furthermore, Wilkins et al . (2010) found in their Western Australian study that, although in general families of children with ID were generally satisfied with the standard of care, the provision of psychological support was not adequate.…”

“…Previous research has estimated that 65–70% of families with a child with Down syndrome function like most other families (Cunningham 1996). However, in Western Australia, this healthy family functioning could be related to the high levels of support available, as families have generally reported satisfaction with most areas of family‐centred care they receive (Wilkins et al . 2010).…”

Correlates of child and family outcomes in an Australian community-based early childhood intervention program

“…The positive influence of quality child care on children and families has been amply acknowledged (Hungerford & Cox, 2006;National Institute of Child Health and Human Development Early Child Care Research Network, 2000), with the present study further highlighting the importance of families' access to natural and inclusive environments for their children with disability. Families' experiences of ECI professional caregiving characterised by family-centred attributes were also more likely to report greater overall family outcomes, which is largely consistent with a growing body of evidence in the area (Davis & Gavidia-Payne, 2009;Dunst, Brookfield, & Epstein, 1998;Dunst et al, 2007;King et al, 1999;Wilkins et al, 2010). ECI programs that develop collaborative and respectful partnerships in the planning and implementation of services are more likely to achieve positive outcomes for families.…”

“…Much of the ECI literature has examined service practices, notably "process of care," defined as family-centred professional caregiving practices (Dunst, Trivette, & Hamby, 2007;King, King, Rosenbaum, & Goffin, 1999;Wilkins et al, 2010) in association with parental capacity and wellbeing. In one of the few efforts in the field, Trivette, Dunst, and Hamby (2010) conducted a meta-analytic study that showed the indirect influence of family systems intervention practices on child development through other mediating variables (e.g., parental wellbeing) and their more direct role in family outcomes such as parent-child interactions.…”

Habilitation Service Utilization Patterns Among Children With Mild Intellectual Disability

“…However, the extent to which children in need of healthcare services utilize such services may vary with regard to various features, such as the type of impairment (Thomas, Ellis, McLaurin, Daniels, & Morissey, ), the severity of functional limitation (Weller, Minkovitz, & Anderson, ), the child's age (Witt, Kasper, & Riley, ) and gender, types of services utilized, family income (Stein & Silver, ) and parental education (Thomas et al, ; Weller et al, ). Concerning children with ID, it has been observed that the likelihood to utilize rehabilitation services declines with increasing age (Chang, Lin, Tung, Chiang, & Hsu, ; Lin, Yen, Loh, Li, & Wu, ; Martin et al, ), but also that service utilization in relation to age varies in relation to type of rehabilitation service utilized (Wilkins et al, ). Also gender may be related to rehabilitation service utilization (Martin et al, ).…”