EUROCAT: 25 years of European surveillance of congenital anomalies

Dolk, Helen

doi:10.1136/adc.2004.062810

Cited by 106 publications

(92 citation statements)

References 12 publications

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“…There are wide differences in policies and programmes, as well as, prenatal diagnosis proportions for Down syndrome and other malformations across countries in Europe, Australia and the USA. 21,27,[33][34][35][36] In addition to any direct effects of public policies and programmes for prenatal testing, differences in prenatal diagnosis proportions across countries are no doubt related to a complex set of factors, including the general context of social, economic and cultural attributes for each country. In particular, these factors can influence the prenatal testing policies that are adopted in different countries.…”

Section: Discussionmentioning

confidence: 99%

Long‐term trends for socio‐economic differences in prenatal diagnosis of Down syndrome: diffusion of services or persistence of disparities?

Khoshnood

Vigan

Blondel

et al. 2008

BJOG

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Objective To assess long‐term trends in disparities for prenatal diagnosis of Down syndrome in relation to policy changes. Design Population‐based observational study. Setting Paris. Population Residents of Paris who gave birth or had a termination of pregnancy in Paris during 1983–2003 (approximately 23 000 births per year). Methods Using population‐based data from the Paris Registry of Congenital Malformations on 1934 cases of Down syndrome, we assessed differences in prenatal diagnosis proportions by maternal profession and geographical origin for the years 1983–2003. Analyses included locally weighted scatter plot smoother curves and binomial regression. Main outcome measure Trends in proportion of Down syndrome cases diagnosed prior to birth for different maternal occupation groups and women of different geographical origins. Results The proportion of prenatally diagnosed cases increased substantially, reaching to about 85–90% of cases in 2003 for most socio‐economic groups. This increase was accompanied by a significant decrease in disparities in prenatal diagnosis. Nonetheless, the proportion of prenatally diagnosed cases remained 12% lower for women without a profession compared with those in the highest occupational category (maternal age‐adjusted risk difference −12.0%, 95% CI −17.1 to −6.9). Conclusions Together with the implementation of policies aimed at providing access to prenatal screening for all women, socio‐economic differences in prenatal diagnosis of Down syndrome decreased over time. These trends need to be monitored, particularly in light of technical advances and alternative strategies for prenatal testing. However, while monitoring the proportion of cases with prenatal diagnosis is important, the ideal evaluation of prenatal testing programmes should also include measures of informed choice.

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Section: Discussionmentioning

confidence: 99%

Long‐term trends for socio‐economic differences in prenatal diagnosis of Down syndrome: diffusion of services or persistence of disparities?

Khoshnood

Vigan

Blondel

et al. 2008

BJOG

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“…Environmental pollution, teratogenic drugs, and chemical agent exposure may lead to an increase in deaths due to congenital anomalies. The development of new diagnostic techniques might enhance this increase (22)(23)(24)(25). More detailed research is required on this issue.…”

Section: Discussionmentioning

confidence: 99%

Epidemiology of under-five mortality in İstanbul: changes from 1988 to 2011

Buzcu¹,

Şahin²,

Karapinar³

et al. 2017

Turk J Med Sci

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Background/aim: Understanding the causes of under-five deaths is key to realizing sustainable developmental goals. The aim of this descriptive study was to investigate the causes of under-five mortality in İstanbul during 2011 and compare the findings to those of 1988 and 2000.Materials and methods: All burial records of İstanbul were evaluated, and cemetery records of 1494 children, who died at under five years of age and were buried in İstanbul Metropolitan Municipality Cemeteries between 1 January and 31 December 2011, were analyzed. Several sociodemographic characteristics and causes of death were compared with the results of studies carried out in 1988 and 2000 in İstanbul with similar methods.Results: Under-five mortality rate was lower in 2011 than in 1988 and 2000. Of all deaths, 58.8% had occurred in the neonatal period and most were in the first day of life, similarly to those of 1988 and 2000. The proportion of deaths in the age group of 1-4 years was found to be increasing. Prematurity and perinatal causes remained the main cause of death under five years of age in İstanbul during the 23-year period. Unknown causes, due to misclassification, were still seen in a relatively high proportion. Conclusion:Under-five mortality rate and death due to infectious diseases decreased in İstanbul from 1988 to 2011. Our findings showed a need for more emphasis on perinatal events and better evaluation of causes of death in clinical practice.

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“…Сотрудничество индивидуальных популяционных регистров врожденных аномалий европейских стран наблюдается в сети EUROCAT (European Surveillance of Congenital Anomalies and Twins), когда ежегодно соби-раются сведения о более чем 1 миллионе новорож-денных, что включает более 1/4 всех новорожденных в Европе [60]. В международном масштабе такой сетью является International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR) [61].…”

Section: информационное обеспечение доказательности безопасного исполunclassified

Safe Use of Drugs During Pregnancy in Focus of International Practice of Pharmacovigilance System and Teratological Information Service Organization

Луцевич¹,

Reshetko²,

Санина³

2012

Pediatr. farmakol.

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EUROCAT: 25 years of European surveillance of congenital anomalies

Cited by 106 publications

References 12 publications

Long‐term trends for socio‐economic differences in prenatal diagnosis of Down syndrome: diffusion of services or persistence of disparities?

Long‐term trends for socio‐economic differences in prenatal diagnosis of Down syndrome: diffusion of services or persistence of disparities?

Epidemiology of under-five mortality in İstanbul: changes from 1988 to 2011

Safe Use of Drugs During Pregnancy in Focus of International Practice of Pharmacovigilance System and Teratological Information Service Organization

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