Etiologies of epilepsy and health-seeking itinerary of patients with epilepsy in a resource poor setting: Analysis of 342 Nigerian Africans

Ogunrin, Olubunmi; Adeyekun, AA; Adudu, Philomena

doi:10.1016/j.seizure.2013.04.012

“…The majority of PLWE in this sample did not know the cause of epilepsy and the associated precipitating factors. Our finding is consistent with earlier studies on epilepsy knowledge and attitudes in Uganda and other similar settings in Africa (4,(18)(19)(20). Having the right knowledge, attitudes and resources to provide adequate epilepsy management in PLWE and their caregivers' influences the preferred choice of care either traditional healers or mainstream medicine.…”

Section: Individual Factorssupporting

confidence: 93%

Barriers to epilepsy care in central Uganda, a qualitative interview and focus group study involving PLWE and their caregivers

Kaddumukasa

¹

,

Nalubwama

²

,

Kaddumukasa

³

et al. 2019

Preprint

0

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Background Epilepsy is a common neurological disease with substantial impact on the subject and their caretakers. This exploratory study identified barriers to care for persons living with epilepsy (PLWE) to develop a culturally acceptable nurse led self-management intervention for PLWE previously developed in the United States. Methods The study involving 48 participants (31 PLWE and 17 caregivers) with in depth interviews and focus groups was conducted. We obtained insights into barriers to care in PLWE and their caregivers. Using a thematic analytic procedure emphasizing the dominant themes the qualitative responses were analyzed. Median age of PLWE was 24 years (IQR 19–30), and10 (52.6%) were male. The median age of epilepsy onset was 12 years (IQR 6 – 18), range of 1 -37 years. The median age of caregivers was 50 years (IQR 45 – 50.5), with a range of 18 -78 years. Seventy five percent of caregivers (6/8) were females. Results Three major areas of perceived barriers involving individual, family or community and provider and healthcare system barriers to epilepsy care emerged. Individual factors like limited epilepsy knowledge and medication non-adherence were reported to be key barriers to epilepsy care. Caregiver burden and lack of family support as well as poor health care access were identified from the family and health care systems. Conclusions The main barrier to epilepsy care is limited epilepsy knowledge in PLWE and their caregivers. Improving epilepsy care awareness and knowledge within communities and appropriate health care provider service for epilepsy would help reduce epilepsy barriers and improve care.

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“…The majority of PLWE in this sample did not know the cause of epilepsy and the associated precipitating factors. Our finding is consistent with earlier studies on epilepsy knowledge and attitudes in Uganda and other similar settings in Africa ADDIN EN.CITE (4,(18)(19)(20) . Interpersonal and social support networks.…”

Section: Individual Factorssupporting

confidence: 93%

Barriers to epilepsy care in central Uganda, a qualitative interview and focus group study involving PLWE and their caregivers

Kaddumukasa

¹

,

Nalubwama

²

,

Kaddumukasa

³

et al. 2019

Preprint

View full text Add to dashboard Cite

Background Epilepsy is a common neurological disease with substantial impact on the subject and their caretakers. This exploratory study identified barriers to care for persons living with epilepsy (PLWE) to develop a culturally acceptable nurse led self-management intervention for PLWE previously developed in the United States. Methods The study involving 48 participants (31 PLWE and 17 caregivers) with in depth interviews and focus groups was conducted. We obtained insights into barriers to care in PLWE and their caregivers. Using a thematic analytic procedure emphasizing the dominant themes the qualitative responses were analyzed. Median age of PLWE was 24 years (IQR 19–30), and10 (52.6%) were male. The median age of epilepsy onset was 12 years (IQR 6 – 18), range of 1 -37 years. The median age of caregivers was 50 years (IQR 45 – 50.5), with a range of 18 -78 years. Seventy five percent of caregivers (6/8) were females. Results Three major areas of perceived barriers involving individual, family or community and provider and healthcare system barriers to epilepsy care emerged. Individual factors like limited epilepsy knowledge and medication non-adherence were reported to be key barriers to epilepsy care. Caregiver burden and lack of family support as well as poor health care access were identified from the family and health care systems. Conclusions The main barrier to epilepsy care is limited epilepsy knowledge in PLWE and their caregivers. Improving epilepsy care awareness and knowledge within communities and appropriate health care provider service for epilepsy would help reduce epilepsy barriers and improve care.

show abstract

“…Although these studies have identified numerous risk factors associated with epilepsy, the results were highly variable. While stroke and head injury have been implicated as factors for adults from high-income countries (Guekht et al, 2010;Pi et al, 2014), epilepsy was associated with parasitic diseases, perinatal insults and central nervous system (CNS) infections in developing countries (Ogunrin et al, 2013;Asadi-Pooya and Hojabri, 2005;Osakwe et al, 2014).…”

Section: Introductionmentioning

confidence: 99%