Erfahrungen und Bedürfnisse von Eltern hospitalisierter Kinder mit Behinderung und den in der Betreuung verantwortlichen medizinischen Fachpersonen – Eine systematische Review

Abstract

Considering the burden experienced by parents, their support must be of central concern for all health professionals. Nurses can support parents and thus the hospitalized child in the adjustment process by focused preparation and continuous attendance based on family-centred care. The latter must be supported by the management and the multidisciplinary team to tailor the competences and the organization accordingly.

Diagnósticos e intervenções de enfermagem em famílias de crianças hospitalizadas Nursing diagnoses and interventions in families of hospitalized children [Diagnósticos e intervenciones de enfermería en familias de niños hospitalizados]

“…Nessa perspectiva, intervenções de enfermagem devem ser direcionadas às reais demandas das famílias, visando tornar a doença e a hospitalização da criança uma experiência menos traumática e fatigante 10,25 , prevenindo e revertendo desequilíbrios, por meio de uma assistência ao ser humano direcionada ao atendimento de suas necessidades básicas 16 .…”

“…Além disso, conhecer as demandas de cuidado permite, à equipe de saúde, implementar intervenções que qualificam e humanizam a assistência às famílias, ajudando-as a superar fontes de angústia e estresse, e possibilitando a transformação da prática profissional de modo a evitar a fragmentação do cuidado 4,10 .…”

Effectiveness of a nurse‐led preadmission intervention for parents of children with profound multiple disabilities undergoing hip‐joint surgery: A quasi‐experimental pilot study

“…In order to systematically explore the parents' specific experiences and support needs, we began by conducting a systematic review (Seliner et al, 2015) followed by a qualitative and a cross-sequential study involving parents of hospitalized children with PIMDs at the children's hospital in question (Seliner et al, 2016a(Seliner et al, , 2016b. Both studies showed a need for quality improvement at all levels.…”